I don't know if this is similar, but I had a reaction to taxotere when I first took it - it made my chest tight and my face red - I was given benedryl, and it was given very slowly. Days later I was hypersensitive to everything and became neutropenic. I had to argue with the on-call oncologist that it was a serious condition :
"hi,doc, I'm calling because I hurt everywhere, and now I have a 102 deg fever."
"hmm...why are you calling?"
"Because the taxotere help sheet says I may have these other symptoms, but a fever of 102 deg means I have a serious situation."
"hmmm...why don't you wait until tomorrow when your doctor is back? He knows your case better."
"Because I have the fever TONIGHT and it says on the sheet I need imediate attention."
I did wait until the AM, just cuz I couldn't drive to the hospiutal and I didn't want to wake up friends, but I did have a blood draw early am that showed my neutrophils were at the "hey, you could die from a papercut" stage.
Anyhow, I thought the story might sound familiar to some and have a laugh, even though it is true.
I had neulasta shots, and did not get neutropenic again, but still had bone pain pretty bad, and was hpersensitive to everything. I had to keep shoes or very thick slippers on because just walking was bad.
Did Cathi mention any benedryl? Or neulasta? Or any vitamin mineral, naturalpathy supplements? Here at CTCA, they gave me a sheet with what supplements are specifically given for breast cancer. Oh, I also had from the Walgreen's (pharmacy) website, just before surgery and after and when I was worried about getting an infection Impact Recover - a drink mix that was basically whey protein, amino acids, and some extra vitamins that is supposed to help the immune system. Maybe that could help her?
Cathi, you're in my prayers!
Thanks for letting us know. Wow!! I am saying prayers for her and a quick recovery.
Hugs,
Candy
Hugs and prayers to Cathi....
Lori
Jeremiah 29:11 - "For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."
(NIV)
Thanks for letting us know. I am so sorry for our dear Cathi. I cannot think of anyone who deserves a break more than her. She has been such a trooper...
Hugs,
Julie
Cathi, my prays are with you and I hope you are feeling better soon.
In my thoughts and prays.
Randi
"Her doctor thinks she has an allergy to the taxotere family of chemo."
Being fairly new to the board, I really haven't had the opportunity to meet Cathi but from what I have read and been told by others, she is a wonderful, caring sister. I am furious that she is having to go thru all of this. The one question that I have is this....Since she has had so much trouble with this drug, why the heck didn't her onco do a test to see if she was allergic to it and save her the pain and hospital stays?
Cathi, please take care of yourself. Lots of prayers being said from my family and friends for you to get back on your feet and home.
Love and prayers....Deb