hi my name is frank and i'm 36 yrs old with cf. am new to computers and obviously forums too. this is really very interesting to me since i've never had a place likethis to share concerns with other cf patients. so far i've have never been hospitalized in my life and am healthy. don't know why i'm lucky and even sometimes feel guilty that others suffer with more severe cases. but i do have many questions and concerns that i'd like to share with other cf patients. and of course will try to answer any questions others might have for me. i'm sooo happy to have found something like this. will respond to all friends. thank you so much. one of my first questions of interest was my lack of smell. i know many cf patients have polyps (as do i) but i have never ever been able to smell since infancy. so polyps probably not the cause. does anyone know of this in any other cf patients?? hope to talk to many of you soon bye and thank you
Hi Frank, Welcome
Congrats. on staying so healthy. As for your lack of smell, I'm not sure why but I have the same thing. although I can smell if it's a strong smell.
Oh by the way, my name is Mark I'm 42 w/CF I haven't been as lucky as you with my health. I'm 3 yr. post bi-lateral lung transplant. and doing awsome.
pour on the fat and hope for the best
Congrats. on staying so healthy. As for your lack of smell, I'm not sure why but I have the same thing. although I can smell if it's a strong smell.
Oh by the way, my name is Mark I'm 42 w/CF I haven't been as lucky as you with my health. I'm 3 yr. post bi-lateral lung transplant. and doing awsome.
pour on the fat and hope for the best
Hi Frank, Welcome to HW!.
Awsome News on staying healthy! We are a friendly group here on HW. If you care to see who all is a part of the CF Room, step on over, add your info and check out others as well. Go to thread...Sound Off: CF Member Room.
Again, welcome and enjoy your stay!
Hugs!
Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
Awsome News on staying healthy! We are a friendly group here on HW. If you care to see who all is a part of the CF Room, step on over, add your info and check out others as well. Go to thread...Sound Off: CF Member Room.
Again, welcome and enjoy your stay!
Hugs!
Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
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Hi Frank. Like you I've managed to stay out of hospital. I've only been on IVs once in my life for CF and that was 10 years ago for plugs. I have a polyp, but have never had it removed because it doesn't cause me problems at all. I would imagine though that the fact you can't smell has something to do with it. Have you talked to your doc about getting it removed?