Co-Moderator for the IBS Forum
glad i'm not the only one lol :)
odd you mentioned about the gallbladder attacks keri as i suspect i may have those probs although peeps always seem to have double over can't do anything pain which i don't get mine is more chronic as opposed to acute
i'm thankful i haven't had a bad attack for a while now although i do sometimes doubt myself and think i have imagined it all when i don't get the symptoms
I probably misused the word "accute" above. I was thinking strong or intense when I think it properly means pinpoint. More a stabbing pain than an ache. I definitely ached. Ached so badly I couldn't stand up straight during an attack. And, like you said, it comes in waves. Badbadbad, livelivelive, badbadbad. Even now, after it's gone, if I eat something that triggers the bile, I'll have diarrhea urges and cramps in waves. Gogogo, relaxrelaxrelax, gogogo. I've learned to one, use the bathroom two or three times to help keep the pain from being so frequent, then hold out. Because after two or three trips, there is little left to expel and it doesn't make you feel any better at that point. In fact, the burning from it can actually make you feel even worse for having gone. Of course I have medicine I can take that will stop the bile and it takes 30 minutes to go fully into effect, so if I take it when I get "the twinge" and I go three times, enough time will have passed after the medicine to allow me to hold on--I'll hurt less and hurt less often until it goes away completely. And then I'm usually good to go for the rest of the day. On the rare occassions where I haven't completely stopped needing to go after 30 minutes, then I'll take another pill. That will fix it up.
If they can't find stones or sludge, then you are probably dysfunctional for some reason, like me. My mother's gall bladder was dysfunctional because it malformed. Mine just didn't work sometimes for some reason. When it was analysed after they took it out, it was diagnosed as being "chronically inflamed." My theory is that my liver, for whatever reason, produces too much bile sometimes and it overwhelmed the storage capcity of my gall bladder--it tried shoving more bile in when it was already full and/or tried to push it in when it was trying to come out (the bile duct is two-way). The reason why I suspect this is because I work the exact same way as I did when I had a gall bladder, only without the horrible pain and pretty much without nausea. But if I consume a trigger food, here comes the bile all at once, just like old times. So I don't think it was my gall bladder that was dumping all of the bile at once--it was the liver providing too much.
You need a hida scan to test for function. It's not too bad a test. They give you an injection of radioactive stuff and put you up on a table under a camera after so many minutes. When the radioactive "dye" has settled suffciently in your gall bladder, they will give you an injection to make your gall bladder empty. That can be nauseating even for people with a good gall bladder. For people with a bad gall bladder, you will find it very uncomfortable to be laying on your back during this test. If you have a weak stomach, you may even vomit. Be sure to warn the tech if you feel that coming on. I had it done three times and kept my stomach down all three times, but I wouldn't eat soon beforehand if I were you. I've heard, though, that some people aren't bothered by it.
If you can't find anyone to schedule the test for you or it comes back negative (mine did twice--but I wasn't in the middle of having pain or an attack when it was done--I figure my gall bladder was actually working correctly at the moment which is why it didn't show up), then try going on a very low fat diet. That can help your symptoms since fat is what triggers the release of the bile. Beware that a low fat diet can cause constipation, though. You have to really look to your fiber and prune juice and the like. Also, I found caffeine was a major trigger. Alcohol and carbonation can make it worse too.
thank you so much for you help
i will try to go on a low fat diet its not easy these days lol but it does help i can't eat processed foods cos of MSG but i am a cheese addict funnily enough though fat doesn't tend to cause problems on its own its certain kinds of foods which trigger it the above attack happened when i was on an anti candida and wheat/gluten free diet. I do drink coffee i find it hard to function without it but this attack also happened when i was on a caffeine free diet only drinking herbal teas. I'm scared to eat certain stuff incase it triggers a bad attack again.
I will have to see about the hida scan the dr may be reluctant to refer me as i have been quite well for a while, maybe i have to be rushed to hospital in an ambulance before they do anything
My mum had her GB removed 4 years ago and she was like me fat wasn't an issue it was certain foods like pastry and bananas which killed her.
The thing about dysfunctional gall bladders is that sometimes they work. Cheese may not bother you today, but tomorrow it may be the thing that puts you over the edge. I drank cokes and would be fine and then I would drink cokes and be sick. They're still a trigger even if they don't trigger me every time. It's kind of like playing Russian roulette. A bullet is a bullet regardless of whether it's in the active chamber or not. If you spin the cylinder and it comes up....
Herbal teas can contain caffeine. I can tolerate the limited caffeine in green tea but not that in regular black tea (I think it's properly pekoke, but I can't remember--anyways, it's what we weird Americans--specifically Southern ones--drink cold with meals). When I still had a gall bladder, I wouldn't touch anything that had any caffeine in it at all. I even checked medicine bottles for it. That helped some, but it never cured the problem, of course.
I found out about the low-fat diet after I had my gall bladder out. You may not respond as well to it with it still in. I was taking Welchol everyday to prevent bile problems, but when I started counting calories and going low-fat, I stopped taking my medicine; I didn't need it anymore. Even after I got off my diet, I stayed fairly good--avoiding fried foods and chips (crisps) and the like--for about a year and I stayed off my medicine, unless I was going to eat something particularly bad like fried chicken or pizza. I've been back on it now since about August and I'm finally getting straightened back out again. I've dropped the calcium supplements and am still going fine.
Make sure your doctor knows that your mother had her gall bladder removed. GB disease runs in families.
i don't know whether or not to push for the hida scan or just wait until it gets so bad i'm rushed to hospital in an ambulance lol
i haven't had an attack for months until last night i had fried egg chips (french fries) and baked beans haven't had that combo for ages well it started - bloated while i was still eating gurgling and gas within minutes of finishing eating radiating pain all over upper half of my abdomen but no specific area pain in the right side of my back hiccups and burps which i don't get with my IBS as i have IBS attacks regularly but don't get the hiccups and burps well lets just say i am not eating that again :) teaches me for getting lazy on a friday night. Hopefully i escaped the worst of it not feeling too bad today no bloating or gas just discomfort under the right side of my ribs today :) which i can live with.
thanks keri for sharing your experiences with me and the advice you have given me and thanks to the others for helping with this issue :) i just need to now decide what steps i need to take. I'm not a pushy person but maybe i'm gonna need to get assertive. I'm just too tired to care sometimes :(
Good luck!
Co-Moderator for the IBS Forum
Well, I was supposed to have this hida scan done on my gallbladder but now that you said it's quite nauseating, I don't think I'm going to do it!! You have scared me out of it! I'm super scared of throwing up!!! I have that vomit phobia (Emetophobia) and I cannot just walk in willingly to do a test that could probably make me throw up!!!
Forget that mess!! I will just keep my (potentially) non-functioning gallbladder!!
Michelle :)
Faerun, you don't usually have flatulance, burping or bloating??? Maybe it is your gallbladder then. I would push for the scan.
Good luck!
They already did the ultrasound and it came back "perfectly normal" according to the general physician. GI guy wants to do the hida scan. Don't know why, I guess he just wants something to hang onto. FORGET IT!! Not if I can potentially vomit!!! He didn't say anything about that to me at all. He said I wouldn't even know they were putting that stuff in me. He's a LIAR!!! LOL!!
Michelle :)
Fly, if you have a bad gall bladder and haven't vomited yet, you probably will. I did once or twice, and I was an exception to the rule. Most people who suffer from gall bladder disease for a while will end up vomiting more often than I did. Some people are even vomit-predominent (I was diarrhea-predominant). And it's worse than vomiting when you are sick with the flu or food poisioning because it's full of bile and that stuff burns so bad! Your esophagus and the back of your throat will feel scorched for a day or more and no amount of water or milk will help it. So better to risk the test and hopefully get a diagnosis than to keep a bad gall bladder and suffer. And if your gall bladder isn't the problem, then the test probably won't bother you.
I bet, Faerun, those beans did you in more than your chips. Those can do regular people in. Personally, I found that my flatulence dropped off significantly when I had my gall bladder problem. I would get gas-like cramps but couldn't burp or pass gas. Man the times I wished I could! It just felt hung up in there. But some people do get indigestion and belch a lot from it, so it's one of those variables.
If I were you, I would push for the test, because you really do sound like you have a problem. Since I had a couple of tests come back inconclusive/negative because I had them done when I wasn't having a problem, I would either 1, schedule the test when you're in a bad streak or 2, cause yourself to have a bad streak. A day or two before the test, just eat all of those things that bother you. The greasiest fish and chips you can find, cokes and beers and fizzy water, pizza with extra cheese--you name it. Get yourself torn up, then go in. Hopefully your gall bladder will show up as bad, you can have it out and you can go on with life. If it doesn't show up while you're in the midst of having intestinal fits, then you can just about rule out gall bladder disease and chalk it up to IBS. Either way you should know for certain what problem you have, so hopefully making yourself sick on purpose won't have been in vain.
If I knew 8 years ago what I know now, I would have made myself sick before having my first hida scan. Because I wasn't in the middle of an attack and it came back negative, I suffered needlessly for four more years. If I had it to do over again, I would not hesitate to make myself sick in the pursuit of getting the tests to come up positive. That's how bad it was for me over those next four years. I have cautioned other people about caffeine, fat, etc. and so many of them will say, "Oh, I can't live without my pot of coffee everyday." And without malice or sarcasam I tell them, "Well, then, you're just not that sick." Because if they were bad sick, they'd drop anything in the pursuit to be pain and diarrhea free. Me, I once was a 2-liter-a-day coke drinker. When I figured out that it was the caffeine making my gall bladder worse, I dropped caffeine like a hot potato. Gave up cokes, gave up tea, sometimes even avoided chocolate. I didn't miss those 2am attacks with diarrhea and horrible pain. I hurt bad enough to give up just about anything.
And on a final note, if this problem really is your gall bladder, it won't go away. You'll be okay for a while, then you'll be sick again. It will just keep happening and the length of time you stay sick will generally increase and it may manifest itself in new and unpleasant ways.