in this forum. 
in this forum. I hope Dana reads this have questions,
Only when you can Dana, I know you are so busy, and are in pain, and have lots on your plate too, so only respond when you can, I will understand. Thanks for anyone who may be able to offer support, or some uplifting advice. Thanks...Love....Sheryl
My dauhger was doingbetter and still is, she has strep and is being treated for it, I had to renew cpr and first aid certs today and left them (my kids with the aunt and uncle, uncle not blood related here is what I have been typing for he pyhcitirst to tell next time I see him has info on today and what I experienced. i am so frustrated, I mean I have drs. backing me up Kara needs meds, just getting the right combo is tricky, and she does have all that I tell you she has this documented, austsim, bipolar, tourettes ocd, anxiety, and adhd. So here is what I am up set about I will just copy and paste todays happening plz forgive spelling very tired and fingers hurt:
This is my journal for today to her psychiatrist: I am truly frustrated and feel like a bad parent
I am trying my best and just don't know the answers her is journal, just needed to confide and vent thanks for listening to all who are concerned and interested about Kara;
11-19-05 Kara has strep, and is taking antibiotics, she spent day at aunts, as I had to renew CPR and first aid certificates. She seems fine when I left, she has been eating good, probably the depekene but has need to eat,she is extremely thin, but active. Unfortunately she likes junk food which I try to keep to a minimum at my house occasionally I will get some. But she knows that at her aunts house they have a bunch of junk food and she will eat it, apparently uncle by marriage, said he told her no more snickers,and she did it any was, but aunt blood related said Kara was fine, her aunt told her not to do something, Kara said ok, maybe Kara doesn't like uncle, usually she does. When I went to pick her up I asks aunt9 so i was soliciting her veiw of karas day, was not solicitng what drunk uncle thought) how Kara was as she is having med changes and issue right now, aunt was telling me fine, and aunt said if it wasn't fine she would have told me so, as she wants to help Kara as much as she can. Uncle yelled at me said she is on too many med's, and he knows what he talking about he has raise three kids (oldest in jail), other two are fine, but I credit mother the aunt for this. Just a note the uncle has been drinking since 11 in the morning, so he was is an angry drunk. he said Kara was belligerent, disobedient, obnoxious, and arrogant. I have never heard Kara been described in such a manner, I was upset and walked out, yes she can be those things at times, but she has issues. I am at my wits end, is she on too much drugs, what's the magic drug that is going to help all her syndromes, I don't like her on so much drugs either, but she has so many issues, I believe I am not even going worry about the adhd , its the least of my worries, not going to worry about the tics as long as they stay at home, my biggest concern is her anxiety, aggression and obsessive compulsiveness, she tells people what they have to say, you cant even look at her side ways, she wants to be the authority and will chant an adult Kara there and an adult Kara here. she picks her self til she bleeds, not just scabs,but makes fresh wounds too. She also did this befre meds. Before any med's she was with drawn and rocked all day and could not functional at all, she became depressed, would not eat, would sleep all, day, and not play outside. I felt like this drunk man was attacking my daughter verbally and me as a parent and my parenting, I am not perfect but am trying the best I can, I do not want to have to medicate her, but I cant have her in a state where she cannot function and with out med's she cannot function, she shakes from anxiety, obsessive compulsive is even worse than it is now. My guess is if we can treat the anxiety the other will fall in place?? I think depakote helping with aggression, but not with anxiety, or the OCD, that as why I think she still needs the buspar Prozac and I guess the impermine, what else is there that could help panic anxiety OCD and not take so many med's Risoerdal she could not tolerate, very anxious even with Prozac, geodon aggression was till bad, Prozac helps abit with her at least being somewhat social at school, and anxiety and the buspar help amplify it, not sure what the impermine is going to do???
Anyways this was her day, what to do!! do I ignore this uncle or what, I just feel bad, my son see phych on monday he still haveing mood swings and periods of crying for no reason, and anger out bursts, I am weaning him of seroquel as it does nothing, and see if doc will put him on impermine for anxiety as this is a big factor, as if anxiety and moods under control I beleive anger would subside, Also they may need to up the deokote he is 130 lbs, on 250 in am and 250 in pm, he could probably stand to be on 500 in the am and 500 in the pm. Dana if you read this what do you think about all this, son is bipolar, the adhd for him is waning not so much of a factor, do you think the depakote imperine combo is worth a try or to suggest to son's phych?? And with my daughter you see whats shes on, and she has as you can see every syndrome under the sun, what would be a good combo in your opion, not asking you to be doc, but staying generic what can help her aggression, anxiety, ocd, i dont care about her adhd, or tourettes, she gets As and the tic stay at home, so I am not goging ot treat that medicinally anyway, but what about the other stuff. Depakote seem to be doing ok, prozac and buspar ok, but the impermine does this just take time, and with her taking prozac in the am is it ok to take the impermine in the pm, doc knows shes on both, but warning say something about being on both, what do you think, they seem like opposite drugs? What would you think in you opion not as a doctor just as concerned person would be a good combo for her, she cannot take resperidal make to anxious even with the proxac, cant take tenex, cant take klonipin. she can take clonidine but it knocks her out, dont want to do that,and if she not ticing bad why should I. she couldnt take the trlipital either, cant afford lamical. whats left, are we really at the point of lithium with her, i dont think so. what do you think, thanks for your comments..Love...Sheryl
by the way she got green lights at school the last two days, fisrt time in a month so the meds must be helping some. Green light is good!!
***Take Care.....Sheryl***
This is my journal for today to her psychiatrist: I am truly frustrated and feel like a bad parent
I am trying my best and just don't know the answers her is journal, just needed to confide and vent thanks for listening to all who are concerned and interested about Kara;
11-19-05 Kara has strep, and is taking antibiotics, she spent day at aunts, as I had to renew CPR and first aid certificates. She seems fine when I left, she has been eating good, probably the depekene but has need to eat,she is extremely thin, but active. Unfortunately she likes junk food which I try to keep to a minimum at my house occasionally I will get some. But she knows that at her aunts house they have a bunch of junk food and she will eat it, apparently uncle by marriage, said he told her no more snickers,and she did it any was, but aunt blood related said Kara was fine, her aunt told her not to do something, Kara said ok, maybe Kara doesn't like uncle, usually she does. When I went to pick her up I asks aunt9 so i was soliciting her veiw of karas day, was not solicitng what drunk uncle thought) how Kara was as she is having med changes and issue right now, aunt was telling me fine, and aunt said if it wasn't fine she would have told me so, as she wants to help Kara as much as she can. Uncle yelled at me said she is on too many med's, and he knows what he talking about he has raise three kids (oldest in jail), other two are fine, but I credit mother the aunt for this. Just a note the uncle has been drinking since 11 in the morning, so he was is an angry drunk. he said Kara was belligerent, disobedient, obnoxious, and arrogant. I have never heard Kara been described in such a manner, I was upset and walked out, yes she can be those things at times, but she has issues. I am at my wits end, is she on too much drugs, what's the magic drug that is going to help all her syndromes, I don't like her on so much drugs either, but she has so many issues, I believe I am not even going worry about the adhd , its the least of my worries, not going to worry about the tics as long as they stay at home, my biggest concern is her anxiety, aggression and obsessive compulsiveness, she tells people what they have to say, you cant even look at her side ways, she wants to be the authority and will chant an adult Kara there and an adult Kara here. she picks her self til she bleeds, not just scabs,but makes fresh wounds too. She also did this befre meds. Before any med's she was with drawn and rocked all day and could not functional at all, she became depressed, would not eat, would sleep all, day, and not play outside. I felt like this drunk man was attacking my daughter verbally and me as a parent and my parenting, I am not perfect but am trying the best I can, I do not want to have to medicate her, but I cant have her in a state where she cannot function and with out med's she cannot function, she shakes from anxiety, obsessive compulsive is even worse than it is now. My guess is if we can treat the anxiety the other will fall in place?? I think depakote helping with aggression, but not with anxiety, or the OCD, that as why I think she still needs the buspar Prozac and I guess the impermine, what else is there that could help panic anxiety OCD and not take so many med's Risoerdal she could not tolerate, very anxious even with Prozac, geodon aggression was till bad, Prozac helps abit with her at least being somewhat social at school, and anxiety and the buspar help amplify it, not sure what the impermine is going to do???
Anyways this was her day, what to do!! do I ignore this uncle or what, I just feel bad, my son see phych on monday he still haveing mood swings and periods of crying for no reason, and anger out bursts, I am weaning him of seroquel as it does nothing, and see if doc will put him on impermine for anxiety as this is a big factor, as if anxiety and moods under control I beleive anger would subside, Also they may need to up the deokote he is 130 lbs, on 250 in am and 250 in pm, he could probably stand to be on 500 in the am and 500 in the pm. Dana if you read this what do you think about all this, son is bipolar, the adhd for him is waning not so much of a factor, do you think the depakote imperine combo is worth a try or to suggest to son's phych?? And with my daughter you see whats shes on, and she has as you can see every syndrome under the sun, what would be a good combo in your opion, not asking you to be doc, but staying generic what can help her aggression, anxiety, ocd, i dont care about her adhd, or tourettes, she gets As and the tic stay at home, so I am not goging ot treat that medicinally anyway, but what about the other stuff. Depakote seem to be doing ok, prozac and buspar ok, but the impermine does this just take time, and with her taking prozac in the am is it ok to take the impermine in the pm, doc knows shes on both, but warning say something about being on both, what do you think, they seem like opposite drugs? What would you think in you opion not as a doctor just as concerned person would be a good combo for her, she cannot take resperidal make to anxious even with the proxac, cant take tenex, cant take klonipin. she can take clonidine but it knocks her out, dont want to do that,and if she not ticing bad why should I. she couldnt take the trlipital either, cant afford lamical. whats left, are we really at the point of lithium with her, i dont think so. what do you think, thanks for your comments..Love...Sheryl
by the way she got green lights at school the last two days, fisrt time in a month so the meds must be helping some. Green light is good!!
***Take Care.....Sheryl***
SERENITY PRAYER: "GOD GRANT ME THE SERENITY TO ACCEPT THE THINGS I CANNOT CHANGE; COURAGE TO CHANGE THE THINGS I CAN; AND THE WISDOM TO KNOW THE DIFFERENCE........
Post Edited (jk) : 11/20/2005 2:46:03 AM (GMT-7)
Hey Sheryl,
What is impermine. Is it the same as imiprimine? Like the tricyclic AD tofranil?
Sorry I can't be of much help. I know how it is to deal with kids without all the medical problems yours are having. I have six and it isn't always easy. You certainly have alot on your plate.
As for the drunk uncle. Have you ever noticed the more people drink the smarter they think they become? By the time they're a puddle on the floor they think they have all the worlds answers and they cant even untie their shoes. Sad really. And annoying just the same.
I hope you have a better day today.
Take care
Ellie
What is impermine. Is it the same as imiprimine? Like the tricyclic AD tofranil?
Sorry I can't be of much help. I know how it is to deal with kids without all the medical problems yours are having. I have six and it isn't always easy. You certainly have alot on your plate.
As for the drunk uncle. Have you ever noticed the more people drink the smarter they think they become? By the time they're a puddle on the floor they think they have all the worlds answers and they cant even untie their shoes. Sad really. And annoying just the same.
I hope you have a better day today.
Take care
Ellie
Thanks Ellie for your support, yes its the generic tofrinal, she is still a mess, its real hard when you child has multiple disorders, and can only offeord genreic, wish there was supplemental inurance to cover co-pays, for people who make too much money to qualify for anything else, goverment thinks we make too much but its all outgoing. i hope when Dana feels better she can help me with soem ideas. I am looking at zyprexia, it says is used with tics, yes she has mild ones, hard to treat OCD yes majorly!!! bu its usally used with prozac as well, ok she is one htat, and a mood stablizer the depaokte she is on that, if that combo woould work maybe we could drop the impermine and the buspar and she can be on less meds, but hoping insurance will at least only charge 30 not 60 for zyprexia, its been suggested before, but i cannot afford i will recheck. has anyone had any exeprience with zxprexia?? anyways thanks Ellie for respoding, sometime I feel I overwhwlm people too much her, but I am desperate and need all the info and support I can get. Uncle propbaly doesnt even remneber what he said, and guess what whole family gets to come to my house for thanksgiving, I dont drink, but have to keep sanity!!LOL!! welll thanks again...Lvoe...Sheryl
***Take Care.....Sheryl***
***Take Care.....Sheryl***
SERENITY PRAYER: "GOD GRANT ME THE SERENITY TO ACCEPT THE THINGS I CANNOT CHANGE; COURAGE TO CHANGE THE THINGS I CAN; AND THE WISDOM TO KNOW THE DIFFERENCE........
we have more out goign then incoming, and with ourselves and two children we were pushing 600 to 700 in co pays alone with docs and meds, we just cant do it, and the newer genration drugs werent wroking anyway!!! Thats the problem she is having with the buspar I think is the same problem you had with zyprexia, last for a coule hours, then rebound, plus the buspar kind makes her even more hypersexual then she already is, but its the only things that seems to help enhance the effects of the prozac, she is currently on 5 mg s of the buspar in the am, and 5 in the pm, thinking about having to do lunch time or up the dose, but I realy have allready tired that on my own not really see much of a difference, its hard when you have achild with multiple issue, she is bp, mildly autsitc, tourettes and adhd, anxiety, and Obcesive coplusive disorder. Been doing alot of role playing with puppets to try and get more info from her and how she feels and whats goign on. I am trying everyithing!!