Hello everyone, I'm new here, hmmmm where do i start? at the begining i guess,,,,,,,,so mother had a brain tumor for which she received WBRT (whole brain radiotherapy) ,,,,,,,,,now after the tumor recurred it was surgically removed.....now I've only got the wrapping,,,,,,,she's here but her mind is somewhere else, most of the time.......I've been reading on WBRT that it causes some sort of demylination and consequently progressive dementia but her MRI doesn't show that........Her doctor sid she's gonna need rehab, both physical and psychological........we've been doing that for almost a month now........I got a book called "The 36-hour day" a Johns Hopkins book.......it helps a bit, I got her a physiotherapist and an occupational therapist.........what else should i do? I try to work on her reading and writing, today was a good day, the past couple of days were very trying to both of us.....she barely uttered a word, it was like i was handling a barbie doll........suggesttions?
Hi Snowden and Welcome to HW.........IMHO ,.I do not think there is anything harder than seeing your parent(s) go thru this and having to take on the parent role .....Just want you to know that you are not alone and there are great peeps on here that will help you out in anyway they can ........In the yellow box at the side of the screen you will find AD resources and it is great info ........The book you got is a very good one and many on here have it ......I would think after what your Mom went thru she will need more than a month of therapy,but I am not a doctor so maybe you should ask Him/Her about the length of time it normally may take ........At least now you know you are not alone ........Take care and God Bless you for doing all of this for your MOm.............Lyn
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I cannot keep your feet from stumbling..........I can only offer my hand that you might grasp it and not fall...........Lyn
Hi Snowden,
Dad is less and less able to understand verbal communication. But I have found that he still does well with body language and miming. I just have to keep reminding myself that it helps. He also reads faces extremely well. I hope you are able to find a similar key with your mom, it is so sad when communication goes down the tubes.
Might your mom enjoy some of the music from her day??? I play some of Dad's old stuff and and he really likes it. Mom even plays polka music to get him to exercise. They dance around the dining room table and have a lot of fun.
Hugs for you sis!!
Blessings!
In His Grip,
Dad is less and less able to understand verbal communication. But I have found that he still does well with body language and miming. I just have to keep reminding myself that it helps. He also reads faces extremely well. I hope you are able to find a similar key with your mom, it is so sad when communication goes down the tubes.
Might your mom enjoy some of the music from her day??? I play some of Dad's old stuff and and he really likes it. Mom even plays polka music to get him to exercise. They dance around the dining room table and have a lot of fun.
Hugs for you sis!!
Blessings!
In His Grip,
AlwaysRosie "We can't control the waves, but we can learn to surf!"
Psalms 139
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Both my parents love to listen to music .......ffom their time though lol.............have radio on the way oldies for them ........okay and me lol.......God Bless .....Lyn
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I cannot keep your feet from stumbling..........I can only offer my hand that you might grasp it and not fall...........Lyn
Bump
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I know there are great things out there for you .....and it is within your power to make them happen ..I believe in all of you and know you have what it takes to follow your dreams..Let that strong Spirit of yours be your guide.........Lyn