My husband was diagnosed about a year and a half ago. Because of his ADHD and recently discovered moderate compulsive behavior it is difficult for me to tell how much of his behavior is pd related and how much isn't. He denies any depression or anxiety but it is ovewhelmingly obvius, he also refuses to be honest with the doctors or himself. He is VERY moody (AHHHHHHHH!!!), still works full time and is barely able to maintain that, the added bonus is our 3 year old son who demands time and attention. He insists on doing too much, get exhausted and cranky and says regrettable things, then apologizes and feels SOOO bad about his behavior. I know how to break the vicious cycle.......we are working on it.......but is this common family struggle stuff for pd patients? Just wondering if this is common for newly diagnosed patients?
Cansado,
Welcome to healing well.Getting exhausted and moody is common in PD patients that aren't dealing with work and a 3 year old.i can't imagine adding those to the mix;Sounds like a full plate.Next time your husband sees the Dr ask to be with your husband if you are not now.this might help with a more honest husband.You might also consider counseling.Wishing you and your husband the best.Stay in touch.Ed
Ed-Diagnosed with Parkinson's Disease in 1998.As long as I can fish life is good.Keep a great attitude.It benefits all.
Welcome to healing well.Getting exhausted and moody is common in PD patients that aren't dealing with work and a 3 year old.i can't imagine adding those to the mix;Sounds like a full plate.Next time your husband sees the Dr ask to be with your husband if you are not now.this might help with a more honest husband.You might also consider counseling.Wishing you and your husband the best.Stay in touch.Ed
Ed-Diagnosed with Parkinson's Disease in 1998.As long as I can fish life is good.Keep a great attitude.It benefits all.
support Healing Well thru the sponsors and with donations.The light is always on stay well,and listen to your neurologist.
My husband has also exhibited some compuslive behavior and I'm worried about it. He makes frequent large impulsive purchases and has been overeating to the point that he has gained 20 pounds. I have never been allowed to accompany him to his doctor so I have never met him. He is adamant about not being treated like a kid and says he doesn't need me to take him to his appointments. I don't know how to handle this.
I don't believe in miracles, I rely on them!
Life may not be the party we hoped for, but while we are here we might as well dance.
Hi Cheeto, I am really sorry about your husband. I am 32 and have recently received a diagnosis of MSA. I have always been very independent but since I have been sick I have had to move in with my mom, she goes with me to all my doctor appointments no matter how much I may protest as when I get to one I may forget something. Perhaps you need to sit down with your husband and discuss your fears and issues on this subject with him. I know for me one of my biggest things is that I feel like I don't have any control over my body and life anymore. So my mom really goes out of her way to give me space and as much independence on my good days and she is always there to help on my bad. That maybe one of the things with your husband not wanting to give up control or have things change but you have to have a plan of action or some ideas on what your going to do as things will change. Please keep us updated...Take care.
So when I sit down with my hubby and try and "talk" about his illness he denies the effects i has on him BIGTIME. Slow process I suppose, with time he'll begin to communicat more? I am also a bit concerned about him concentration and comprehension. He won't mention this to his doctors, flat out refuses to.
Hi Cansado, It sounds like you do need to just be patient and work on communication with him especially if he has a diagnosis of ADHD before his parkinson's. Also, as Ed said make it a point to go to his doctor appointments with him so you can impart the correct information over to the physicians as this is extremely important to his care. Please keep us updated on how he is doing...take care
Hi all:
I am new here tonight and am very happy to find this type of venue! I was dx 12/05 and have been going through a learnig process myself. I have found it helpful to read everything and aything I can get my hands on.
I spent almost two years with Neuros etc. in my home town until they ruled out everything and said ••••
"hmmmm, you have symptoms of ALS!" I went to Mayo and dx a month or so later. The Sinemet and Requip keep me mobile and able to work and be productive although it proves to be a struggle now and then.
I have recently been noticing telltale signs of depression and am concerned as to what to do. I have almost no sense of smell and little taste so eating is not enjoyable, mostly a futile effort to remain as normal as possible.
I am also a hopeless insomniac! I will be awakenened by the frequent cramps and contortions of my legs and feet and at that point, no matter what time it is, I'm up for the duration. I have tried unsuccessfully to alter dosage times to help me relax and sleep. I get my best resolve by using my AA principles living one day at a time. Guess I should see my Neuro again soon eh?
I am new here tonight and am very happy to find this type of venue! I was dx 12/05 and have been going through a learnig process myself. I have found it helpful to read everything and aything I can get my hands on.
I spent almost two years with Neuros etc. in my home town until they ruled out everything and said ••••
"hmmmm, you have symptoms of ALS!" I went to Mayo and dx a month or so later. The Sinemet and Requip keep me mobile and able to work and be productive although it proves to be a struggle now and then.
I have recently been noticing telltale signs of depression and am concerned as to what to do. I have almost no sense of smell and little taste so eating is not enjoyable, mostly a futile effort to remain as normal as possible.
I am also a hopeless insomniac! I will be awakenened by the frequent cramps and contortions of my legs and feet and at that point, no matter what time it is, I'm up for the duration. I have tried unsuccessfully to alter dosage times to help me relax and sleep. I get my best resolve by using my AA principles living one day at a time. Guess I should see my Neuro again soon eh?