My husband has been on mirapex, sinemet and comtan for 15 years. Major hallucinations began this year where he is acting on them and they are frightening to all. He is now on seroquel and night time is bad. He is incontinent and removes his absorbent pants during the night and soils carpet, bed etc. He has been such a meticulous person that this is so difficult for him. Last night he had a violent dream and grabbed me and started punching. This is new behaviour and wonder if it is seroquel. Also he is unable to wallk well since adding this med and wonder if it diminished the Parkinson meds. I am trully tired and feel I am impatient and not the caregiver I wish I could be. There is some support but with the chronicity of this and never knowing what each hour will bring I feel I am breaking down. Any suggestions.
Saragh,
Welcome to healing well.part of the problem could indeed be seroquel.This drug, according to the nursing drug handbook, may antagonise the effects of dopamine agonists and levodopa.I would definitely check with your husbands neurologist on this one.
Sounds like you need help with your caregiving role,and for this I would ask my GP for advice.Possibly home health care could assist you for that needed break.I wish you the best.Please let us know how you make out .Any suggestions from others in this forum would be appreciated.Ed
Ed-Diagnosed with Parkinson's Disease in 1998.As long as I can fish life is good.Keep a great attitude.It benefits all.
Welcome to healing well.part of the problem could indeed be seroquel.This drug, according to the nursing drug handbook, may antagonise the effects of dopamine agonists and levodopa.I would definitely check with your husbands neurologist on this one.
Sounds like you need help with your caregiving role,and for this I would ask my GP for advice.Possibly home health care could assist you for that needed break.I wish you the best.Please let us know how you make out .Any suggestions from others in this forum would be appreciated.Ed
Ed-Diagnosed with Parkinson's Disease in 1998.As long as I can fish life is good.Keep a great attitude.It benefits all.
support Healing Well thru the sponsors and with donations.The light is always on stay well,and listen to your neurologist.
Thank you Ed. I went out to a meeting last night and got my husband ready for be where he was to watch t.v. When I came home he was in the kitchen, leaning on the sink and said he had been playing with the children since I left. He had left a trail of clothing from bed to kitchen and was incontinent. My son came over to help me get him to bed. He had a very good night then and is fine this morning. I do have home care but I am finding the need is growing. I will talk to the neurologist...although this is a challenge on its own. I find the psychiatrist will not return my calls and perhaps she thinks I am over reacting. Thanks for your response. Everything helps these days. S.
I chose the colour blue because it best describes my mood today. My husband has been on Seroquel for two weeks and the hallucinations seem more constant and severe at night. The neurologist doubled the dosage and I fear there has been no change. The neurologist has not seen him in three months but prescribes based on believing this is med related. The social worker who has been coming for six weeks says she has noted a downward movement in both of us. I was always active in the community but have become isolated because I don't know how he will be when I'm out. I do have some respite but any relaxation is cancelled by the horror he experiences in the night.
He remembers them. Says he knows they are not real, but at the same time won't come into the bedroom because of all the people and what they are doing.
I am frustrated because I do not want him to be in a long term care facility if there is a way he can have quality at home.
I am hoping there is someone on the forum who has had a similar experience and can offer something to me. Saragh.
saragh
I know how scarry this must be for you and exhaustion for you. Please find sthingth through the prayers of your friends.
I know how scarry this must be for you and exhaustion for you. Please find sthingth through the prayers of your friends.
Hi saragh, I just wanted to post to you and lend you my support. I dont have any answers for you as I too go through what your husband does at night sometimes myself. I have MSA and MS, due to my multiple medications to control medical problems my physicians have decided not to place me on any Parkinson's type medications at this time. I do take an antidepressant (effexor) and anti-anxiety (xanax) as needed. However, Seroquel is an anti-psychotic medication and as Ed has said there may be some problems with interaction going on. I would suggest calling his neurologists nurse and requesting a sooner appointment and perhaps a change in medication as this has effected his and your quality of life greatly. Please do keep us updated and take care. Our thoughts are with you both.
Thanks Elilsha. There a so many with multiple problems that I feel guilty when I grow impatient. Life is about caring for others at all levels and I forget that sometimes. Good to have this site as a reminder that we are not alone. Neurologist did remove seroquel and reduced mirapex. I think all these adjustments are difficult. Just had the homemaker here for this bath and he is feeling very weak and dizzy. I suspect his blood pressure has dropped with the bath although it was just warm. The VON will be in tomorrow and she will check it. Thank you for your support. You have no idea how much it means. It breaks the isolation.
Saragh.
saragh
Weak and dizzy could very well be a cause of low blood pressure.I shouldn't admit this but I eat a few chips when my BP gets to low.Anything below about 100 systolic and i start to get dizzy,especially when getting up from a sitting position.Stay well best to you Ed
Ed-Diagnosed with Parkinson's Disease in 1998.As long as I can fish life is good.Keep a great attitude.It benefits all.
Weak and dizzy could very well be a cause of low blood pressure.I shouldn't admit this but I eat a few chips when my BP gets to low.Anything below about 100 systolic and i start to get dizzy,especially when getting up from a sitting position.Stay well best to you Ed
Ed-Diagnosed with Parkinson's Disease in 1998.As long as I can fish life is good.Keep a great attitude.It benefits all.
support Healing Well thru the sponsors and with donations.The light is always on stay well,and listen to your neurologist.
His bp is 100/60 and I gave him lemonade and then had lunch shortly afterward. Some better but weak. Thanks for the tip.
My Bp is currently 88/44 so I got no energy,and I'm hitting the salt.Linda Miller RN Med wrote a concise article on BP.titled low Blood Pressure in Prkinsons Disease.You might want to google it Ed
Ed-Diagnosed with Parkinson's Disease in 1998.As long as I can fish life is good.Keep a great attitude.It benefits all.
Ed-Diagnosed with Parkinson's Disease in 1998.As long as I can fish life is good.Keep a great attitude.It benefits all.
support Healing Well thru the sponsors and with donations.The light is always on stay well,and listen to your neurologist.
yekkimo, how do I access that article? Is it available on this site? My husb. has very low BP spells and while the dr. advised adding salt to food, they did not mention this for a quick fix. Should be no problem, as he LOVES potato chips : - ). Thanks for help with the article.
What great information here. I will google it now. Saragh
Okay its the 3rd now and I am behind on the loop but yes salt is a very good quick fix for low blood pressure. This is one of my biggest symptoms with my disease process of MSA. My BP this past Monday was 62/38 and I was passing out every time I went to stand up. Dizziness and fatigue are huge side effects. But if you do increase the salt intake make sure that you increase the fluid intake also. Water is extremely important. Gatorade is supposed to have lots of sodium in it and the electrolytes that stick with you. I don't like the taste so wont drink it but perhaps your husband may like it. Also you may want to invest in a home blood pressure monitor that is digital so you can take his blood pressure yourself. Just some suggestions or ideas for you. I hope he is doing better with his medication change. Take care...
BP seems to be okay but the hallucinations are worse. The nurse was in yesterday and said it takes a long time to get mirapex down. He is very fatigued but yet can't sleep. I will try the gatorade. Thanks for the advice. This is most helpful.
Hi Saragh. I just found this message board and am thrilled as I have been taking care of my mother with PD. Mom started with hallucinations......seeing people in the bedroom at night, snakes in the bathroom and ants around the ceiling, etc. This was caused by too much medication.......can't remember whether it was the Sinemet or Comptan or Parcopa. Just wondering if you have thought about that.
Once her dosages were lowered she didn't hallucinate anymore.
Mom seems to get weak and dizzy late in the afternoon and after reading your postings I am wondering if it is caused by low BP. I was thinking maybe it was low blood sugar. Hmmmm.
Once her dosages were lowered she didn't hallucinate anymore.
Mom seems to get weak and dizzy late in the afternoon and after reading your postings I am wondering if it is caused by low BP. I was thinking maybe it was low blood sugar. Hmmmm.
CKelly
Welcome to Healing well.I would purchase a blood pressure cuff,the automatic variety.No stethoscope needed,and check it several times a day both standing and sitting.The best to you and your mother.Ed
Ed-Diagnosed with Parkinson's Disease in 1998.As long as I can fish life is good.Keep a great attitude.It benefits all.
Welcome to Healing well.I would purchase a blood pressure cuff,the automatic variety.No stethoscope needed,and check it several times a day both standing and sitting.The best to you and your mother.Ed
Ed-Diagnosed with Parkinson's Disease in 1998.As long as I can fish life is good.Keep a great attitude.It benefits all.
support Healing Well thru the sponsors and with donations.The light is always on stay well,and listen to your neurologist.
This is in regard to the post about the effects of medications.
I have discovered that if my husband takes his bedtime dose of Seroquel on an empty stomach, he becomes energized and cannot sleep. I need to give the last dose no later than 9PM AND with a good snack. You may need to experiment with times and food.
I have discovered that if my husband takes his bedtime dose of Seroquel on an empty stomach, he becomes energized and cannot sleep. I need to give the last dose no later than 9PM AND with a good snack. You may need to experiment with times and food.