I just heard that one of the members passed. His sister posted today on facebook but I don’t know the details of Mark’s passing. He had IBD for a long time and last time I talked with him, he was in remission on entvyio and very into GI mapping. He was an avid race car driver and spent a lot of hours on the tracks around the US. During my last hospital stay, he sent me a giant stuffed animal to my room which I still have in my bedroom. I met him on here back in 2012 or so. Just wanted to mention it in case anyone else remembers Canada Mark. May he rest in peace🙏🏻
Joanna, 35, Pa
Formerly known as bananagirl
Diagnosed with UC at 16. Tried remicade, humira, simponi, and am on rinvoq but will start tremfya soon. Will stay on rinvoq while receiving tremfya infusions.
I look forward to every day and just being alive and getting to smile. I love talking with everyone and laughing a lot. I sing and dance everywhere I go
Oh boy. So sorry,Mark and myself were good friends here.
Thanks Banana.
oldmike
UC-1980 MEDS: None. UC gone. Go Figure.
95+ % Colon left, plus rectal stump.
Stoma name is Laurie,named after it's mommy.
Rectal stump, Death Vader.
Thanks Banana.
oldmike
UC-1980 MEDS: None. UC gone. Go Figure.
95+ % Colon left, plus rectal stump.
Stoma name is Laurie,named after it's mommy.
Rectal stump, Death Vader.
RIP........
MODERATOR-UC FORUM
female - diagnosed with moderately severe proctitis/colitis/mild diverticulitis
6mp - 50 miligrams
Zocor - 40 mg
Zetia - 10 miligrams
Calcium with Vitamin D
Zinc
"Fly under the radar" - Dad -
MODERATOR-UC FORUM
female - diagnosed with moderately severe proctitis/colitis/mild diverticulitis
6mp - 50 miligrams
Zocor - 40 mg
Zetia - 10 miligrams
Calcium with Vitamin D
Zinc
"Fly under the radar" - Dad -
Ooohhhh...really sad to hear 😞 He shared a lot of varied information. It's awesome you and Mike got to know him outside of HW.
q
MODERATOR - UC FORUM *Heather*
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 2x weekly (nightly for flares, tapered slowly back to 2x weekly maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Esomeprazole 40mg; Pulmicort/Oxeze/Airomir (asthma); Pristiq 50mg (depression); Rosuvastatin 10mg (cholesterol); Telmisartan 80mg + Diltiazem 120mg (BP & PVCs); Vyvanse 30mg (ADD)
~LDN 4.5mg / Celebrex 100mg x2 for pain
~vitamins/minerals/supplements; Probiotics....(Natural Factors Critical Care 55 Billion / Genuine Health Advanced Gut Health 50 billion alternate or both as needed @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 3500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
~Sjogren's (secondary)...symptomatic treatment
"TREAT (FROM)BOTH ENDS" worth it !!
q
MODERATOR - UC FORUM *Heather*
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 2x weekly (nightly for flares, tapered slowly back to 2x weekly maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Esomeprazole 40mg; Pulmicort/Oxeze/Airomir (asthma); Pristiq 50mg (depression); Rosuvastatin 10mg (cholesterol); Telmisartan 80mg + Diltiazem 120mg (BP & PVCs); Vyvanse 30mg (ADD)
~LDN 4.5mg / Celebrex 100mg x2 for pain
~vitamins/minerals/supplements; Probiotics....(Natural Factors Critical Care 55 Billion / Genuine Health Advanced Gut Health 50 billion alternate or both as needed @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 3500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
~Sjogren's (secondary)...symptomatic treatment
"TREAT (FROM)BOTH ENDS" worth it !!
Post Edited (quincy) : 3/27/2025 2:16:20 PM (GMT-4)
Sorry to hear this. Thanks, for letting us know.
66 yo female diagnosed UC 2013. Remission on Entyvio 10/2016-12/2017. Humira didn't do much Nov 2018. Remicade (5 mg 3/2019, 10 mg 8/2019, 6 wks 1/2020, 4 wks 4/2021), REMISSION 12/2021!! Current: Inflectra 10 mg/4 wks 1/2023, Dexilant, cocktail of meds for hypertension
66 yo female diagnosed UC 2013. Remission on Entyvio 10/2016-12/2017. Humira didn't do much Nov 2018. Remicade (5 mg 3/2019, 10 mg 8/2019, 6 wks 1/2020, 4 wks 4/2021), REMISSION 12/2021!! Current: Inflectra 10 mg/4 wks 1/2023, Dexilant, cocktail of meds for hypertension
Very sad; thanks for letting us know, BG. So touching about his gift to you! We had a very nice guy in Missouri posting here a couple summers ago; I think he went by the signature LJones89 or something like that. He had major trouble getting DXed/treated because only 1 gastro practiced for a radius of 200 miles in his part of the state! He got shuttled to ERs and suffered a lot of pain, then he wrote that there was a chance of malignancy in his case. That was the last time he posted, and he had mentioned having concerns for his young family. / Old Hat (40+ yrs with left-sided UC)
Oh no, how sad to read this! I remember Canada Mark. I believe he was from the Kitchener-Waterloo area, my old stomping grounds.
Female, 58, Vancouver BC
Pancolitis: Current status - remission
Jan-Mar2009: Asacol HD. Resulted in severe joint pain and no discernible benefit.
May26-Sep4/2016: Mezavant 4800 mg
Sep5/2016-Aug24/2020: Mezavant 2400 mg
Aug25/2020 - : Mezavant 4800 mg
Female, 58, Vancouver BC
Pancolitis: Current status - remission
Jan-Mar2009: Asacol HD. Resulted in severe joint pain and no discernible benefit.
May26-Sep4/2016: Mezavant 4800 mg
Sep5/2016-Aug24/2020: Mezavant 2400 mg
Aug25/2020 - : Mezavant 4800 mg
Oh no, I am so sorry to hear this. I always enjoyed his posts. In fact, I was thinking about him not that long ago since he hadn't seemed to post in a long while. If you communicate to his sister, please let her know that those of us here in HW remember him fondly.
49 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- Colazal (generic), 100 mg Imuran, Canasa as needed- supplements: curcumin, 2 g a day Allergic to sulfites. Currently gluten/dairy free
49 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- Colazal (generic), 100 mg Imuran, Canasa as needed- supplements: curcumin, 2 g a day Allergic to sulfites. Currently gluten/dairy free
His sister doesn’t accept messages on facebook which is unfortunate because I would like to send her a message with a link to this post so she could read it. I only found out that he passed away because he was tagged in a memorial post. His memorial is on April 6. Not sure if I should send her a friend request or if that is weird…
He had a lot of siblings (more than 5 but less than 10). He lived ten min from Lake Ontario and loved the summer. He said he would spend a lot of summers in the country by the water. I am not sure what he passed from but that is the sad part about online friendships. You may never know. He was always so nice though and I regret not meeting him. I remember he drove by my house when he was traveling here and I was very sick. I told him I was too sick to meet him and wish I had just had him over even if it was meeting him from the bathroom. I just felt awkward meeting an online friend at such a terrible time. I knew he would have understood though.
Joanna, 35, Pa
Formerly known as bananagirl
Diagnosed with UC at 16. Tried remicade, humira, simponi, and am on rinvoq but will start tremfya soon. Will stay on rinvoq while receiving tremfya infusions.
I look forward to every day and just being alive and getting to smile. I love talking with everyone and laughing a lot. I sing and dance everywhere I go
He had a lot of siblings (more than 5 but less than 10). He lived ten min from Lake Ontario and loved the summer. He said he would spend a lot of summers in the country by the water. I am not sure what he passed from but that is the sad part about online friendships. You may never know. He was always so nice though and I regret not meeting him. I remember he drove by my house when he was traveling here and I was very sick. I told him I was too sick to meet him and wish I had just had him over even if it was meeting him from the bathroom. I just felt awkward meeting an online friend at such a terrible time. I knew he would have understood though.
Joanna, 35, Pa
Formerly known as bananagirl
Diagnosed with UC at 16. Tried remicade, humira, simponi, and am on rinvoq but will start tremfya soon. Will stay on rinvoq while receiving tremfya infusions.
I look forward to every day and just being alive and getting to smile. I love talking with everyone and laughing a lot. I sing and dance everywhere I go
BG, if you know his last name you could search for an obituary.
Female, 58, Vancouver BC
Pancolitis: Current status - remission
Jan-Mar2009: Asacol HD. Resulted in severe joint pain and no discernible benefit.
May26-Sep4/2016: Mezavant 4800 mg
Sep5/2016-Aug24/2020: Mezavant 2400 mg
Aug25/2020 - : Mezavant 4800 mg
Female, 58, Vancouver BC
Pancolitis: Current status - remission
Jan-Mar2009: Asacol HD. Resulted in severe joint pain and no discernible benefit.
May26-Sep4/2016: Mezavant 4800 mg
Sep5/2016-Aug24/2020: Mezavant 2400 mg
Aug25/2020 - : Mezavant 4800 mg
His last name is Clawsey but I searched for an obit and couldn’t find one. He was 50 years old.
Joanna, 35, Pa
Formerly known as bananagirl
Diagnosed with UC at 16. Tried remicade, humira, simponi, and am on rinvoq but will start tremfya soon. Will stay on rinvoq while receiving tremfya infusions.
I look forward to every day and just being alive and getting to smile. I love talking with everyone and laughing a lot. I sing and dance everywhere I go
Joanna, 35, Pa
Formerly known as bananagirl
Diagnosed with UC at 16. Tried remicade, humira, simponi, and am on rinvoq but will start tremfya soon. Will stay on rinvoq while receiving tremfya infusions.
I look forward to every day and just being alive and getting to smile. I love talking with everyone and laughing a lot. I sing and dance everywhere I go
Okay all I could find was his date of death was Feb 28, 2025. No obit.
Female, 58, Vancouver BC
Pancolitis: Current status - remission
Jan-Mar2009: Asacol HD. Resulted in severe joint pain and no discernible benefit.
May26-Sep4/2016: Mezavant 4800 mg
Sep5/2016-Aug24/2020: Mezavant 2400 mg
Aug25/2020 - : Mezavant 4800 mg
Female, 58, Vancouver BC
Pancolitis: Current status - remission
Jan-Mar2009: Asacol HD. Resulted in severe joint pain and no discernible benefit.
May26-Sep4/2016: Mezavant 4800 mg
Sep5/2016-Aug24/2020: Mezavant 2400 mg
Aug25/2020 - : Mezavant 4800 mg
So sad, if you find out where his memorial is, I live not far from where he lived and would consider going. I'm just not sure what border crossings are like these days.
49 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- Colazal (generic), 100 mg Imuran, Canasa as needed- supplements: curcumin, 2 g a day Allergic to sulfites. Currently gluten/dairy free
49 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- Colazal (generic), 100 mg Imuran, Canasa as needed- supplements: curcumin, 2 g a day Allergic to sulfites. Currently gluten/dairy free
It’s Sunday April 6th at Evo Kitchen, 31 Water Street, South, Cambridge Ontario from 1-4 pm. I wanted to go as well but was just in the hospital over the weekend (tremfya crap) and can’t travel in my current state of health. I haven’t been to Canada since I was a child but imagine the tensions are very heightened there right now about the US. If you do go, let us know!
Joanna, 35, Pa
Formerly known as bananagirl
Diagnosed with UC at 16. Tried remicade, humira, simponi, and am on rinvoq but will start tremfya soon. Will stay on rinvoq while receiving tremfya infusions.
I look forward to every day and just being alive and getting to smile. I love talking with everyone and laughing a lot. I sing and dance everywhere I go
Joanna, 35, Pa
Formerly known as bananagirl
Diagnosed with UC at 16. Tried remicade, humira, simponi, and am on rinvoq but will start tremfya soon. Will stay on rinvoq while receiving tremfya infusions.
I look forward to every day and just being alive and getting to smile. I love talking with everyone and laughing a lot. I sing and dance everywhere I go
Oh my, so sorry to hear of his passing, and that's far too young! Tip of the hat to Canada Mark, definitely up there as one of the most knowledgeable and helpful posters over the decades here. Many benefiting from his help. Awesome if some from here know him well enough and are able to attend.
Moderator Ulcerative Colitis
John, UC Proctosigmoiditis in Remission
Rx: Remicade @5mgs/kg/6wks; as needed
A semi-finalist in the Olympic 15-meter bathroom-sprint. Aimed for the gold but just ended up getting brown...
Moderator Ulcerative Colitis
John, UC Proctosigmoiditis in Remission
Rx: Remicade @5mgs/kg/6wks; as needed
A semi-finalist in the Olympic 15-meter bathroom-sprint. Aimed for the gold but just ended up getting brown...
I'm very sorry to hear about this. I did a search for an obituary, and haven't found one yet. However, I found this tribute video of him racing - https://www.youtube.com/watch?v=luuawr2aozg
Jim...thanks for posting that!
q
MODERATOR - UC FORUM *Heather*
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 2x weekly (nightly for flares, tapered slowly back to 2x weekly maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Esomeprazole 40mg; Pulmicort/Oxeze/Airomir (asthma); Pristiq 50mg (depression); Rosuvastatin 10mg (cholesterol); Telmisartan 80mg + Diltiazem 120mg (BP & PVCs); Vyvanse 30mg (ADD)
~LDN 4.5mg / Celebrex 100mg x2 for pain
~vitamins/minerals/supplements; Probiotics....(Natural Factors Critical Care 55 Billion / Genuine Health Advanced Gut Health 50 billion alternate or both as needed @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 3500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
~Sjogren's (secondary)...symptomatic treatment
"TREAT (FROM)BOTH ENDS" worth it !!
q
MODERATOR - UC FORUM *Heather*
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 2x weekly (nightly for flares, tapered slowly back to 2x weekly maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Esomeprazole 40mg; Pulmicort/Oxeze/Airomir (asthma); Pristiq 50mg (depression); Rosuvastatin 10mg (cholesterol); Telmisartan 80mg + Diltiazem 120mg (BP & PVCs); Vyvanse 30mg (ADD)
~LDN 4.5mg / Celebrex 100mg x2 for pain
~vitamins/minerals/supplements; Probiotics....(Natural Factors Critical Care 55 Billion / Genuine Health Advanced Gut Health 50 billion alternate or both as needed @ bedtime)
~Metamucil capsules 6 @ 2x daily with meals; Vitamin D 3500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
~Sjogren's (secondary)...symptomatic treatment
"TREAT (FROM)BOTH ENDS" worth it !!
Sad to read this member has passed away. That was a nice video that Jim put up on here.
Susie
Moderator in Chronic Pain & Psoriasis Forums
Susie
Moderator in Chronic Pain & Psoriasis Forums
Thank you for posting that video...
MODERATOR-UC FORUM
female - diagnosed with moderately severe proctitis/colitis/mild diverticulitis
6mp - 50 miligrams
Zocor - 40 mg
Zetia - 10 miligrams
Calcium with Vitamin D
Zinc
"Fly under the radar" - Dad -
MODERATOR-UC FORUM
female - diagnosed with moderately severe proctitis/colitis/mild diverticulitis
6mp - 50 miligrams
Zocor - 40 mg
Zetia - 10 miligrams
Calcium with Vitamin D
Zinc
"Fly under the radar" - Dad -
I found his obit. Doesn't say how he passed....
https://obituaries.cambridgetimes.ca/obituary/mark-clawsey-1092804839
UC/Crohns/PG Remission after 30yrs-p’ve for MAP antibodies & mycobacterium
chronic fistulas/abscesses 13 surgeries Failed setons...it was pure torture.
started Stelara May 24, 2017. 100mg imuran, IVIG
30 yrs IBD--started as parasites, then IBS, UC, PG, CD
Dog had IBD
Permanent port insertion 2019.
both parents had IBD. My advice: be selfless don't procreate with ibd
https://obituaries.cambridgetimes.ca/obituary/mark-clawsey-1092804839
UC/Crohns/PG Remission after 30yrs-p’ve for MAP antibodies & mycobacterium
chronic fistulas/abscesses 13 surgeries Failed setons...it was pure torture.
started Stelara May 24, 2017. 100mg imuran, IVIG
30 yrs IBD--started as parasites, then IBS, UC, PG, CD
Dog had IBD
Permanent port insertion 2019.
both parents had IBD. My advice: be selfless don't procreate with ibd