I tried three different search engines once I got healing well and clicked on the forum part nothing would happen….
I thought it was completely done, gone, ….history.
Well, half hour later and it popped up.
They’re obviously not keeping up with website maintenance. They didn’t even comment on my administration comment at the very top post from 9-8-2024
So what is the deal with this place? Is there any communication on the owners anymore?
**In "remission " / "Cured" (?) for 8 years.** Initial lyme symptoms late 80's, then again with bullseye early 90's. ABX 2014 - 2016. Now: Healing / Rebuilding / fixing muscle damage and still improving nutrition and immune via anti- cytokine diet. 25 years of Hashimoto is now improving and Thyroid Nodule dissolved too. Other autoimmune issues though.
yep - been down sporadically for me too - all day yesterday
and generally seems to go down randomly maybe once per week-ish - but typically seems to be back up again if i try it again later so i think someone is actively managing it.
(i seem to recall one of the other moderators - Jim? was employed at least part time to try to act as dedicated support)
i have no direct knowledge - but my guess is they are dealing with legacy issues with the software as the forum was created a very long time ago in software terms - and a lot has changed in that time in the web environment - security etc - so they will be on constant reactive mode to whatever breaks next
it also seems like the plan to migrate it to a newer/ better/ more up to date platform did not go well and, from the outside at least, it seemed to revert back to the original - so i guess there was some technical issue there preventing it - at least in the wholesale manner that was envisaged.
overall there are some positives
- someone was employed to try to keep the wheels on the wagon
- it still goes down now and then - but typically not for as long these days
- those are at east signs that the owners dont want it to wither on the vine complete
i agree it would be good if something could be done to improve the search function.
the large repository of lyme patient knowledge and experiences held within the sites previous posts are one of the forums greatest assets - but for a long time now the search function has been so poor as to make them almost totally inaccessible.
i think a lot of users who don't post or don't post often - still want to come and search and read in the archive for things relevant to their condition - so its one of the main things that keeps people coming back - and more useful search results in search engines would bring more new users/members in.
seems a shame for the forum to not maximise anything that retains users to help keep it alive in the face of headwinds from social media leaching away users and escalating forum running costs.
ill since Feb 2015 – Lyme (Armin), Mycoplasma Pn, suspected Bart
Bart now conclusively diagnosed by microscopy see https://tinyurl.com/2eatxxz7
60% recovered - most useful approaches:
=Wholefood Keto Diet
=Exercise – initially walking – now weights too
=Buhner Lyme herbs and co-infect herbs
=Immune modulation- Ivermectin and LDN
=Methylene Blue (Bart)
+T4 and T3 for thyroid
and generally seems to go down randomly maybe once per week-ish - but typically seems to be back up again if i try it again later so i think someone is actively managing it.
(i seem to recall one of the other moderators - Jim? was employed at least part time to try to act as dedicated support)
i have no direct knowledge - but my guess is they are dealing with legacy issues with the software as the forum was created a very long time ago in software terms - and a lot has changed in that time in the web environment - security etc - so they will be on constant reactive mode to whatever breaks next
it also seems like the plan to migrate it to a newer/ better/ more up to date platform did not go well and, from the outside at least, it seemed to revert back to the original - so i guess there was some technical issue there preventing it - at least in the wholesale manner that was envisaged.
overall there are some positives
- someone was employed to try to keep the wheels on the wagon
- it still goes down now and then - but typically not for as long these days
- those are at east signs that the owners dont want it to wither on the vine complete
i agree it would be good if something could be done to improve the search function.
the large repository of lyme patient knowledge and experiences held within the sites previous posts are one of the forums greatest assets - but for a long time now the search function has been so poor as to make them almost totally inaccessible.
i think a lot of users who don't post or don't post often - still want to come and search and read in the archive for things relevant to their condition - so its one of the main things that keeps people coming back - and more useful search results in search engines would bring more new users/members in.
seems a shame for the forum to not maximise anything that retains users to help keep it alive in the face of headwinds from social media leaching away users and escalating forum running costs.
ill since Feb 2015 – Lyme (Armin), Mycoplasma Pn, suspected Bart
Bart now conclusively diagnosed by microscopy see https://tinyurl.com/2eatxxz7
60% recovered - most useful approaches:
=Wholefood Keto Diet
=Exercise – initially walking – now weights too
=Buhner Lyme herbs and co-infect herbs
=Immune modulation- Ivermectin and LDN
=Methylene Blue (Bart)
+T4 and T3 for thyroid
Good to see three familiar names. Garzie is a mainstay. Great to see Astromsn and Dude.
I thought the same - the site is down - as I had a blank come up on several different days of trying to get to site.
I thought the same - the site is down - as I had a blank come up on several different days of trying to get to site.
Good to hear from you three again.
————————-
What I’ve been doing :
So I’m just kind of cruising along approaching older age now. Kinda like a beat up car that still runs. Surprisingly, I look younger on the outside than what I feel like on the inside.
But Pretty soon my 50s will be history. (Wow!!).
I’ve had friends who didn’t really have much for health problems …..or so they assumed so and never really paid attention to going to the doctor or anything. Some of those people have already died in their 50s. They had Lyme disease they probably would’ve passed even before then I would guess.
Moral of the story:?People with chronic illness who take care of it really become aware of changes in their body.
I’ve also been on LDN for about 15 months. I leveled off at 4.5 mg two months ago. It helps me sleep so far. Not much for muscle tension or pain though. I adjusted my life to four hours of sleep every night (with a nap every early evening after work) which seemed to work for the last decade.
I’m thinking I can slowly increase sleep to about six hours a night. That would be a new “project.”.
———————
Back to the forum:
Unless you have this forum bookmarked, it’s really hard to find.
I thought maybe my bookmark was outdated like they change something on the websitebut then I tried googling it some other ways and nothing else came up either.
Google can find the website but you used to be able to Google the forum directly and it would come up. Now Google (or anything else you use ) can’t even find this forum.
So then theres no posts that come up anymore either , so new people are not going to find this place……ever.
————————-
What I’ve been doing :
So I’m just kind of cruising along approaching older age now. Kinda like a beat up car that still runs. Surprisingly, I look younger on the outside than what I feel like on the inside.
But Pretty soon my 50s will be history. (Wow!!).
I’ve had friends who didn’t really have much for health problems …..or so they assumed so and never really paid attention to going to the doctor or anything. Some of those people have already died in their 50s. They had Lyme disease they probably would’ve passed even before then I would guess.
Moral of the story:?People with chronic illness who take care of it really become aware of changes in their body.
I’ve also been on LDN for about 15 months. I leveled off at 4.5 mg two months ago. It helps me sleep so far. Not much for muscle tension or pain though. I adjusted my life to four hours of sleep every night (with a nap every early evening after work) which seemed to work for the last decade.
I’m thinking I can slowly increase sleep to about six hours a night. That would be a new “project.”.
———————
Back to the forum:
Unless you have this forum bookmarked, it’s really hard to find.
I thought maybe my bookmark was outdated like they change something on the websitebut then I tried googling it some other ways and nothing else came up either.
Google can find the website but you used to be able to Google the forum directly and it would come up. Now Google (or anything else you use ) can’t even find this forum.
So then theres no posts that come up anymore either , so new people are not going to find this place……ever.
Post Edited (astroman) : 4/10/2026 1:23:40 PM (GMT-4)
Just popping in to say hi to you all!!! It's been a while!
I'm doing great!! I am very busy every day of the week, although I still tire too easily, and must make sure I take all my prescription meds now (there will always be herbs that I use, despite the drs best efforts!).
I do hope you all are doing well! Take good care of yourselves!!
Trav =)
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
http://www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014, reinfected with Lyme 2021 (Doxy tx)
Now, malignant hypertension and autonomic nervous system damage.
I'm doing great!! I am very busy every day of the week, although I still tire too easily, and must make sure I take all my prescription meds now (there will always be herbs that I use, despite the drs best efforts!).
I do hope you all are doing well! Take good care of yourselves!!
Trav =)
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
http://www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014, reinfected with Lyme 2021 (Doxy tx)
Now, malignant hypertension and autonomic nervous system damage.
You just answered my "hope" for you, Traveler.
Hello Trav!
(Another blast from the past)
(Another blast from the past)
Hey, young'un!! Astro, I left my fifties a few years ago!
Yep! Gotta pull out the "way back when" phrase now! 😂
As for finding the forum, I had no idea! I still have pepple reaching out to me from this forum, so I didn't realize there was such trouble!
It's really a shame too. All of us old timers really put a lot of effort to make this 'the place to be' for good reliable information.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
http://www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014, reinfected with Lyme 2021 (Doxy tx)
Now, malignant hypertension and autonomic nervous system damage.
Yep! Gotta pull out the "way back when" phrase now! 😂
As for finding the forum, I had no idea! I still have pepple reaching out to me from this forum, so I didn't realize there was such trouble!
It's really a shame too. All of us old timers really put a lot of effort to make this 'the place to be' for good reliable information.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
http://www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014, reinfected with Lyme 2021 (Doxy tx)
Now, malignant hypertension and autonomic nervous system damage.
Hey, everybody! Awesome to see recent posts from some old timers! I don’t realize the site was inaccessible intermittently. I haven’t been there recently.
Sep 2016: Dx CIRS from mold
Sep 2016: Labcorp WB: IGG pos 41, 66
Nov 2016: Igenix: IGG 39 Ind, 41++, 58+ / IGM 39 Ind, 41+, 45+, 58+
Dec 2016: DNA Connexions pos Borrelia burgdorferi, Ehrlichia chaffeensis
Sx of bart and/or babs since early childhood
Sep 2009: life altering sx started
Apr 2015: full blown sx; immune system off the cliff
Luke 1:37-For with God nothing shall be impossible.
Sep 2016: Dx CIRS from mold
Sep 2016: Labcorp WB: IGG pos 41, 66
Nov 2016: Igenix: IGG 39 Ind, 41++, 58+ / IGM 39 Ind, 41+, 45+, 58+
Dec 2016: DNA Connexions pos Borrelia burgdorferi, Ehrlichia chaffeensis
Sx of bart and/or babs since early childhood
Sep 2009: life altering sx started
Apr 2015: full blown sx; immune system off the cliff
Luke 1:37-For with God nothing shall be impossible.
interesting - thanks for posting Dude
I hadn't seen that before
i haven't had any emails - but i guess since i am supposed to be moderating (v little to do in reality) i tend to log on briefly most days
to my mind it doesn't really have the structure of a forum - so it looks to me like its perhaps some effort to capitalise on the forum archive to generate more clicks to the "main" site
i know for most of us regulars the main site IS the forum - but to the owners - i suspect the main website with articles etc ( and more ads) is the main site - over the last 12 months of so i have seen they have put some effort into writing new articles
i think there was even some attempt at redrafting the ones on lyme disease after some of us gave rather scathing feedback on the initial attempts due to the content being at odds with what we all experience and understand to be true.
perhaps the site is part of some kind of trial
these days its fairly easy and common to do A/B testing in that way to see what works better
at least it signals some ongoing development and investment in the site as a whole
anyway - just sharing my random thoughts
i hope you are doing OK
all the best !
ill since Feb 2015 – Lyme (Armin), Mycoplasma Pn, suspected Bart
Bart now conclusively diagnosed by microscopy see https://tinyurl.com/2eatxxz7
60% recovered - most useful approaches:
=Wholefood Keto Diet
=Exercise – initially walking – now weights too
=Buhner Lyme herbs and co-infect herbs
=Immune modulation- Ivermectin and LDN
=Methylene Blue (Bart)
+T4 and T3 for thyroid
I hadn't seen that before
i haven't had any emails - but i guess since i am supposed to be moderating (v little to do in reality) i tend to log on briefly most days
to my mind it doesn't really have the structure of a forum - so it looks to me like its perhaps some effort to capitalise on the forum archive to generate more clicks to the "main" site
i know for most of us regulars the main site IS the forum - but to the owners - i suspect the main website with articles etc ( and more ads) is the main site - over the last 12 months of so i have seen they have put some effort into writing new articles
i think there was even some attempt at redrafting the ones on lyme disease after some of us gave rather scathing feedback on the initial attempts due to the content being at odds with what we all experience and understand to be true.
perhaps the site is part of some kind of trial
these days its fairly easy and common to do A/B testing in that way to see what works better
at least it signals some ongoing development and investment in the site as a whole
anyway - just sharing my random thoughts
i hope you are doing OK
all the best !
ill since Feb 2015 – Lyme (Armin), Mycoplasma Pn, suspected Bart
Bart now conclusively diagnosed by microscopy see https://tinyurl.com/2eatxxz7
60% recovered - most useful approaches:
=Wholefood Keto Diet
=Exercise – initially walking – now weights too
=Buhner Lyme herbs and co-infect herbs
=Immune modulation- Ivermectin and LDN
=Methylene Blue (Bart)
+T4 and T3 for thyroid