Is this Normal??

Diseases & Conditions Epilepsy
1
HI.  My Neuro told me to up my meds to 1000MG Nightly.  And stay at my 500MG in the morning.  I decided to up my meds to 750MG nightly and go up slowly.  I don't know if this is all just timing or I am forgetting something sad
 
I started taking extra Friday night.  Since saturday I have been dizzy, heavy headed, nauseus and had a stomach ache, with no appetite.  I am wondering if this is the upping of my meds or if I just happen to have a virus on top of upping them.  I am gonna stop taking extra until I see him.  I feel like crap and all I am doing is resting as soon as school is over.  I feel more comfortable meeting with him to discuss upping meds.  Do you think it is the meds, or maybe I just have a bug.  Thanks for any help.  Tracy

 25 years old
Nursing Student

2
(((tracy)))) Upping meds can sure make you feel bad. It could also be a viral thing as well.
 
If you feel better talking to him at an appointment before upping that is probably ok. I think he wanted you to up it because of the thumb jerking. You see him soon, right?
 
Sorry you are feeling so awful right now. It is hard to go up so fast on these meds! Hoping you have better days!
 
Ginny
3
Thanks guys. I went back down to my 500MG doseage tonight. I can't feel this way. Not unless I know it is necessary for me to be upping my doseage. I was like a zombie in class and that is the last thing I want. All I have done is sleep since going up Friday. Thanks so much for the fast support. I needed reassurance. I am getting cranky and that I KNOW is from the Kepprage!! I will give a call to the Neuro soon. Thanks again, Tracy

 25 years old
Nursing Student

4
Sounds like it is going around! Hoping tomorrow goes better for you!
GInny
5
Hey guys. I didn't take extra meds last night ... just my normal dose. I am off to school.. will check in later and let you know how my day goes. I will call the Neuro later. Ginny check out my post on BT. It is amazing the difference between HW and BT. TTYLater Tracy

 25 years old
Nursing Student

6
Hello. My day went much better. I left a message at the Neuros office. Hopefully it will go well. Talk to you guys when I hear back. Thanks for checking in on me. :)

 25 years old
Nursing Student

7

Hi Sweetie, I don't blame you for lowering your dose on your own.  I've done that myself before when my meds were obviously making me toxic.  I really hope this does turn out to be nothing.  You deserve a break.  (((((Hugs)))))

Christine

8
Did you talk to the neuro? Hang in there and take care!
Ginny
9
Daisy -
I too am on Keppra and, although seizure free I hate the way it makes me feel. I am supposed to be taking 500 mg two times a day. I went down to 250mg two times a day. Otherwise I sleep all day unless I am peeing.
Is it normal for this medication to make everyone crazy? Or am I just one of the lucky ones???
dammy

Thanks for listening.
If I can do anything to help you please let me know.
 
"Someone's opinion of you doesn't have to become your reality."

10
Dammy, this med does have that affect on a lot of people. I just heard a neuro in conference last night, Dr Elizabeth Thiele talk about even adults using Vitamin B 6 along with Keppra. It has been known to help some kids wiht mood swings and things. Now they are starting studies to see if it can also help adults. WOuld not hurt to ask your neuro if this is good to try.

Hang in there!
11
HI Guys.
Ginny, I did put a call into the neuro tuesday to let them know I am taking my old dose. I didn't hear anything back from the Neuro. I am starting to feel alot better now not upping my dose. Upping Keppra is so hard.
(((Christine))) I will email you soon. I miss chatting with you
Dammy, I found that I had SEVERE mood swing my first THREE months of taking keppra. It is a very common side effect. Just when they upped me last week I was so cranky and just truly pissed about nothing. It is hard but after the third month I adjusted. A nickname they have for Keppra is KeppRAGE. My dose is 500MG twice Daily.
Hope you all are doing well. Tracy

 25 years old
Nursing Student

12
Glad you are feeling a bit better! Hang in there!
Ginny
13
Hi
Yeah lowering my dose helped alot. I am back to myself again!!
Except, now my tailbone cyst has filled up and I may have to get it drained if I can't get it to shrink myself. Last time it filled was about 2-3 years ago. Last time it got so big I couldn't walk. Anyway if it isn't one thing it is ALWAYS another with me unfortunately. And none of these things are pseudo. There is a big old inflammed cyst. Dr said if it gets inflammed to often I will have to have it surgically removed. IF not it always has to potential to become inflammed. It did from all the pressure I put on my butt at school on those darn metal fold out chairs. Talk to you soon Tracy

 25 years old
Nursing Student

14
Mandiann. It is hard to push forward while upping meds. I just had to cut back. I knew that my mind/body couldn't take that right now unless necessary. I do have my in office EEG on Oct 11 then will follow up with him Oct 27. This tailbone thing drives me crazy.

Thanks for reminding me to laugh. Sometimes I just drive my self bonkers and don't just relax. Thanks for praying fo me. I know it helps..
Tracy

 25 years old
Nursing Student

15
Sure will LOL :)

 25 years old
Nursing Student

16
((Tracy))) Can bringing a cushion help some to ease the pain of the cyst? Sorry you have that flaring up, too!! Hang in there!

G
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Bum Bum alot better. I have been using one of those microwavable heating packs on it and keeping off my butt :) That is seeming to help. It is always something you know. I am just puppysitting this weekend. Ginny the pad is a good idea, my mother bought me one it is just too big for my chair. Alot of the girls bring in couch pillows. I am gonna look into it. Take care Tracy

 25 years old
Nursing Student