I am depressed, frightened and terrified. No diagnosis but told to be thinking of PD. Hand very shaky, thumb goes non-stop. Cramps in two fingers with all fingers going rigid. Cramps in lower arm (back of arm) extreme pain (I think due to constant twitches). Dystonia?
Just want a diagnosis. Have to wait 8 months for tests. 4 Months to see neurologist again, meanwhile I'm just LEFT alone to consider the worst. PD nurse on helpline good but the minute I put phone down I'm terrified again.
I am tearful and very frightened. Things are happening fast. Noticed upper arm cramp today. First time.
Will I ever get my PhD finished at this rate. So terrified can't concentrate.
X
Girlirish,I would check with my General practioner to see if youcan get into see a neuro sooner,and to let him/her know how you feel in general.Your GP is your first line of offense.If things get out of control for you I would say it is time for a visit to the Emergency room.Try adding a couple glasses of orange juice a day to your diet.It definitely helps relieve my cramps.I wish you the best,and let me know how things go.Ed
Ed-Diagnosed with Parkinson's Disease in 1998.As long as I can fish life is good.Keep a great attitude.It benefits all.
Ed-Diagnosed with Parkinson's Disease in 1998.As long as I can fish life is good.Keep a great attitude.It benefits all.
support Healing Well thru the sponsors and with donations.The light is always on stay well,and listen to your neurologist.
Hi Girlirish, I am sorry for all your going through 
. Waiting to get a diagnosis is difficult especially when you know something is really wrong and you physically are having severe symptoms. I would certainly call on your Primary Care doc to help smooth the way into getting these appointments sooner. Keep posting, HW is a great place for information and support. Take care.
. Waiting to get a diagnosis is difficult especially when you know something is really wrong and you physically are having severe symptoms. I would certainly call on your Primary Care doc to help smooth the way into getting these appointments sooner. Keep posting, HW is a great place for information and support. Take care.
Elisha
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I feel so badly for you. I know just how you are feeling. I was diagnosed a year ago but I'm still very scared about my future. I don't understand why you have to wait so long for an appointment. I called the hospital referal service and got an appointment within a weeks time. This is the fourth nurosurgeon I've seen. I like the one I was going too, but after he sent me for an MRI and to a urologist I had a terrible time trying to find out my results so I decided to go elsewhere. Please don't assume the worse.
Make an apointment and get checked out by a reputable nerologist.You are in my prayers.
PLease let me know how you are doing.
Margaret