How many of you that have CF, have a abnormal liver function test results? Secondly, how bad does it get? Thirdly, have you developed hepatitis or other major disease from having a abnormal liver function?
Have you had to do additional testing due to abnormal liver function bloodwork?
Kathy, mom to identical twin boys with CF (9yrs), daughter 20, grandaughter 2 1/2, one on the way!
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
Moderator, Cystic Fibrosis. "If there is questionable doubt, check it out"....with your healthcare provider!. We are here to offer support, encouragement, and answer your questions as best we can. Don't hesitate to step on in and enjoy!.
Hi twinstride, I don't have an answer to your question but abnormal liver tests are never wrong, nor are they anything to ignore !Yes abnormal liver tests do mean there is a problem with the liver. Please write all your questions down & make an appointment with your Dr. If you have any liver disease insist on seeing a hepatologist ASAP. Make sure any meds you are taking do not affect the liver or will not cause the dammage to worsen. My thoughts & prayers are with you. later....
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.Valerie
did your kids have an adnormal liver test result? when they first tested me for cf, i had a pancreatic insuffiency/pancretitis,part of my liver was destroyed,damanged lungs. they recheck my liver like once every 6 mos,more of it is damanged, but they said thats is slowly getting damanged so im guessing to anwser one of your questions its a slow progress,however this is why i have such bad stomach pains and i have to take pain meds for it. how old are ya kids again? i hope its gets better for them and for all of us with cf and maybe tomorrow there will be a cure!!!!!!!!
best of luck
tricia
Hi Tricia,
Sorry, its taking me a while to answer you back. They are 10 and hopefully soon, we will be seeing a doc for their abnormal liver functions.
Thanks again
Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
Sorry, its taking me a while to answer you back. They are 10 and hopefully soon, we will be seeing a doc for their abnormal liver functions.
Thanks again
Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
Moderator, Cystic Fibrosis. "If there is questionable doubt, check it out"....with your healthcare provider!. We are here to offer support, encouragement, and answer your questions as best we can. Don't hesitate to step on in and enjoy!.
Sorry Kathy,
Never had any problems with my liver.... just lungs and I take enzymes! Sorry again
Stephen
Never had any problems with my liver.... just lungs and I take enzymes! Sorry again
Stephen
Thank you Stephen.
I am afraid that my boys cat scan of lungs is not very good. I missed the call from the nurse on friday. She has some information from the doctor to give us....:(
Praying that the results were not too terribly bad of their lungs and the treatments they want to do will be easy on them.
Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
I am afraid that my boys cat scan of lungs is not very good. I missed the call from the nurse on friday. She has some information from the doctor to give us....:(
Praying that the results were not too terribly bad of their lungs and the treatments they want to do will be easy on them.
Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
Moderator, Cystic Fibrosis. "If there is questionable doubt, check it out"....with your healthcare provider!. We are here to offer support, encouragement, and answer your questions as best we can. Don't hesitate to step on in and enjoy!.
Best of luck, Kathy. Let us know how everything turns out. <3
Hi,
The cat scan results are in. There is minimal damage right now at 10 yrs old. The lung transplant coordinator/pulmonologist is a very aggressive doc, so therefore, he is starting some medication to keep the progression down in their lungs. We will take our first treatment in the office soon. I will let you know how things will turn out.
Hugs!
Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
The cat scan results are in. There is minimal damage right now at 10 yrs old. The lung transplant coordinator/pulmonologist is a very aggressive doc, so therefore, he is starting some medication to keep the progression down in their lungs. We will take our first treatment in the office soon. I will let you know how things will turn out.
Hugs!
Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
Moderator, Cystic Fibrosis. "If there is questionable doubt, check it out"....with your healthcare provider!. We are here to offer support, encouragement, and answer your questions as best we can. Don't hesitate to step on in and enjoy!.