trish
LIVE IN THE MOMENT!
LIVE IN THE MOMENT!
trish
Hi Everyone, sorry I haven't posted lately, My daughters and granddaughter were visiting most of last week and the house was wild. I did enjoy them but, I am glad we have our home back. Nice and quiet! Mark has not been doing very well either. We just got back from the Dr., today and the Dr. is making arrangements to put Mark in the hospital for about 5 days, he is going to put a cath in Marks abdomin and drain the fluid off of Mark daily, hospitalized. His kidney's just are not working very well and he is trying to see if this will get them functioning more normally. He is just staying full of fluid, his weight is up to 203 lbs., his normal weight would be around 160 lbs. Other than that we are praying for the call to come for a new Liver.
Trish, we were first given a date with a 5 month wait for a hepatologist. Mark was hospitalized, a social worker was talking to me and I told her I had just about had it with the doctors not knowing how to treat Marks disease. I also told her I was not beyond, checking my husband into a hospital E.R., where they had a Liver transplant clinic. Well she went all out and got Mark transported to one via ambulance and with a hepatologist agreeing to take his case. Sometimes you have do or say what you must to get what you need. How did the CT scan go? Rick really does sound like he is having a hard time, I will keep you both in my prayers!
Connie, have you gotten your schedule for your appointments? I know it is going to be another busy month for you! My thoughts and prayers are with you! Please keep us posted!
Ma, so sorry you had a reation to the antidepressant, but sometimes you just need to keep an open mind, there are others out there that may that you can try! Hopefully they will find the one that is right for you! glad to hear Pa is doing better. The dates sound like a wonderful idea! Love you!
Love and Hugs,
Teresa
LIVE IN THE MOMENT!
barb,,i need to do meditation,,,,maybe it would help me out,,but it seems like there is always something goin on around here. oh btw,,,my son and his gf moved in with us on top of everything else,,,,,shes preggo and they were in a bad living arrangement,,,,so i gave them 2mths to GET OUT lol. told them that by the time school starts again,i want my house back,,,,,,cause its not fair to the 2 i still have living at home to be put out once school is back in. mind you,we only have a 2 bedroom apt,,,,,,we have lots of storage space,,,including a huge attic,,,,,but me and ricks bedroom is in the living room and with 2 extra ppl,we have NO privacy,,,my son walt whos still at home is in Tx with my mom for the next 3 weeks so that helps with the sleepin arrangements some for now,,,,,i thought i would go crazy with them here but so far,they have been a big help to me,,so again,things turn out the way they are supposed to :)
take care everyone
trish
Hi Everyone, Well Marks doctor called today, and told us his lab results were worse and that he wanted Mark to be admitted to the hospital today! The creatine was much higher, the renal function is pretty bad right now. They have stopped all diuretics, for now. Mark is having blood cultures done to confirm he is infection free, then in the morning he will go to radiology and have a pigtail cath put in via fluoroscope. They are going to pull fluid off of him at intervals with albumin replacement for 5 days. They are hoping that the renal function will come back. I was doing fine earlier, but I am now feeling the after effects from my day of stress. I guess I need to get to bed, so I can handle whatever tomorrow brings. Thanks for listening. Hope everyone is doing okay!
Hugs and Prayers,
Teresa
LIVE IN THE MOMENT!
Well, Marks procedure went well today. They took off 5 liters of fluid, so it gave him a little relief. The Renal function is still down. He is in decent spirits. Michael and I are home for the night. I do appreciate the support that all of you give me. Ma thanks for being there for me! Trish hope all is going well for you and Rick, hope the flu bug stays away! Connie hope all is well with you.
Hugs and Prayers,
Teresa
ok here goes,i dont have much time on the pc as i am afraid somethin might happen at the hospital and they wont be able to reach me ..............
rick had the most wonderful day yesterday(tues),,,,,,,,he even cooked supper for everyone,,,and was so proud,he wanted to take some to his brother in law who is also his best friend,,,,,,,,he was so back to his normal self,,,laughing,joking,,,,,god how good it was to see ,,,,,,,,i felt my spirits lifting so much as i watched him actually enjoy life again,,,,,,,,,,when we got back from his brother in laws,,,,,,rick was laughing and so happy,,,,,i said man i love this rick,,,,what has brought on the change in attiitude??? he replied,i dont know,its like a dream come true i feel so good,,,,,,,,,,,i hope im not goin to die tomorrow! and he laughed,,,,,,,then went to take a shower...he returned from the shower,,,,,and was all wet,and i thought,,,,why didnt he dry off,then he said trish,i have had two nitro tabs and my chest is still killin me,,,,,,,,,he headed for the bathroom to puke,and told me to get him another one,,,,,,,i helped him up off the floor as he told me,,,,,,call 911,,,,,,i did right away,,squad came fast,,,,,gave him morphine,more nitro,oxygen,and aspirin,,,,,and off to the ER we went,,,,my daughter goin with me in the car,,,,when we got to ER,the nurses were all in the cubicle hookin rick up to monitors n such,,,,so me and brianna just took a seat outside the curtain and waited,,,as soon as the crowd around him died down,i slipped into the room with only one nurse left in there,,,told rick i loved him and he was goin to be ok,,,,,motioned brianna to come in for a sec,,,as soon as she reached the foot of his bed,rick looked at me and said,i need to puke,,the nurse said right there is somethin to puke in,pointing to a very small little thing,,,,,i said noooooooo he needs a trashcan,and turned around to grab it,,,,when i turned around,,,,,ricks arms locked in a weird position,his eyes rolled back in his head,and he coded,,,,,,,,,,gone,,,,,,,,my daughter turned to get out,,,,i screamed,,,,GET IN HERE NOWWWWW,,,,,,,,,RIGHT NOW MOVE MOVE MOVE,,,,,as i got out of the way of incoming help,,,,,,they called in heart dr and went in to see what was goin on with his heart,,,,,his stent collapsed that he had put in just a couple weeks ago,not clogged,COLLAPSED,,,,,,,,,,,,they put another one in to try to open up the artery temporarily,,,,,and cracked the artery,,,he is goin to have to have open heart surgery now,but his blood levels are so bad,,,,,,,very low platelets,.,,,,,,,,that they have to wait 4 or 5 days to do it,,,,,,,so hes in intensive care til they can do it,,,,,,i was told later he wouldnt have made it through by pass last night,if they couldnt have got the stent in temporarily,,,,,i wandered the halls of the hospital last night,,,,watchin ppl in the ER,,,,,,and then would shoot back up to listen to rick breathe at his bedside,,,,,,,,,i didnt sleep at all,and did alot of thinkin,,,,,worryin about how to take care of him when he gets home,and what if he doesnt come home,,,,,,please yall,,,,,,take hold of ya spouses and hug them so tight,,tell ya kids how much you love them and appreciate them,,,,,,i am so scared,,,,,,,i have never in my life felt so helpless,then when i looked at his face and the life had gone out of him,i am haunted by that look every time i shut my eyes,,,,sorry to lay all this on yall but i cant let this out with my kids and i feel like im goin crazy,,,,,,,,,gotta go in case any calls from hospital,,,please take care of yourselves and your families,,love each other like theres no tomorrow,,,,cause there might not be,,,,keep us in your prayers and ill check back in when i can,,,,,,:hugs:
trish
LIVE IN THE MOMENT!
My hip dislocated Mon. night while I was sleeping. This was the 4th time since Sept. (I have bilateral hip replacements for those who don't know, and a revision of the left one, which keeps dislocating.) I went to the ER and they admitted me, and took me to OR for reduction at 12:30 AM. They kept me overnight. I got home Tues. afternoon and Tues. night the same thing happened again. Repeat of Mon. night, except that this time I had an MRI of chest and abdomen (was to have been done Thurs., anyway, to find out how much cancer is left in liver.) Also had 4 x-rays, 2 rounds of blood work, etc., etc. I was worn out, as I had really not had more than 5 hours' sleep since Mon. night. I was in terrible hip pain in the MRI machine, and later found out that the hip was not completely back in the socket. Also learned that I really have no socket left. That is gone, and so is most of the pelvis on that side. Ortho hip specialist said I would need a cage and bone procedure, but there is only 50/50 chance it will work. If it doesn't, he will have to remove my left pelvis completely. Said I would still be able to walk with a walker. Obviously, I will have to try to have it fixed first. Major, major surgery with lots of PT and long recovery. That hip will never be "right." Anyway, I am forgoing further treatment for my hep C or liver cancer right now. The interventional radiologist said I'd had a remarkably positive response to treatment. Now all my energy will go towards becoming mobile. I still have Hep C and will continue to visit this forum, though maybe not to post as much. Thank you for being here for me, and I hope my experience and words have helped some of you.
Connie
LIVE IN THE MOMENT!
Hugs,
C.
trish