my mother

Diseases & Conditions Migraine Headache
1
hi all,
new to this forum (hello!).
 
i'm glad to have found you, but unhappy for the reason.  i've read many of these posts, and although they've been most helpful, i'm confused, and have an unusual situation. 
 
it's not me that's suffering from migraine's.  it's my mother. 
 
she's been suffering for almost 30 years, and i am embarrassed to say that i don't know much about it. 
 
as far as i know...she's had TMJ, and had treatment in the way of her jaw being broken in the '80's.  she's done food modification, drugs, etc. 
 
nothing seems to work.  she has a neurologist.  she's stuck in bed for days and months, so i'm assuming she has cluster headaches, and 'aura's'?.
 
i want to help her!  she was just here to visit, and even when i was young, she's suffered mania!  it's terrible.  it makes me really upset to see her this way. 
 
no one seems to help her! 
 
please help me (and her), i want her to have some sort of quality of life. 
2
Sorry for your Moms and your situation. I realize more every day how our illnesses really do effect our families. I don't really have muh advice but I do want to ask about rebound h/a. Does your mother take a lot(on a regular basis) of OTC meds, or narcotics? We migrainuers get sucked into a rebound cycle often. But do understand getting of most pain meds. isn't a cure or anything. I still have frequent migraines, but they are a lot better after stopping pain meds. My doc's rule is no more than 2 pain meds. of any kind a week. I was like"he's never had a migraine" at first and have to admitt I still struggle with that one, but it is good advice.
What is her Neuro. said about her h/a's...has she tried preventative meds? What about seeing a Headache specialist. They are good b/c thats what they do every day. Most Neuro's have to cover a lot of things, and sometimes don't have the same knowledge, up-to-date info.

Just some idea's. I wish God blessings on you both.
3

thanks angmichelle,

i will try to get my mom to see a specialist for h/a's. 

 

she's had them for 30 years.  it's been a struggle.   actually searching for this forum should have been done years ago by me.  so now i feel guilty. 

 

it's been terrible.  loud noises, smells, light, food, etc. are the triggers. 

 

 

4

Hi Swampy,

I really respect you for trying to find answers for you mother's migraines.  From your post, it seems that you may have some misconceptions about migraines.  First, some migraine sufferers have an "aura", which is any combination of symptoms, like seeing flashing, which precede a migraine attack, as sort of a warning system.  This is also known as a "prodrome", which comes with a "classic" migraine.  If a migraine sufferer doesn't have the "aura", they have "common" migraines.  Either type of migraine can last for days, especially if not treated.

Cluster headaches are a totally different animal.  Cluster headaches are very intense headaches, which generally only last a few hours.  These headaches come in groups, several in succession, but then stop for period of time, sometimes weeks or months between attacks.  From your description, it sounds like your mother has migraine attacks, not cluster headaches.

You mention her having "mania".  Has she been diagnose as manic-depressive or bi-polar?  If so, is she taking any medication to control the mood swings?  Is she taking anything for her migraines?  Migraineurs should be on a preventative medication, an abortive medication to take when a migraine starts coming on, and an emergency medication for breakthrough pain.  What medications will work for your mother should be worked out with her primary care physician or preferrably a neurologist.

TMJ can be a major trigger for migraines.  I am personally dealing with a bad case of TMJ myself, and I'm getting 2/3 migraines a week.  My migraines are so bad, I'm having to get a shot for pain at least once a week.  I have some bad dental work which triggered a really bad case of TMJ.  I can't get my teeth fixed until the end of the month, so tomorrow I'm going to see a doctor that is also a dentist.  He specializes in TMJ, so hopefully I can get some relief from this horrible pain.  Maybe you can find a similar doctor for your mother.

I takes a great amount of compassion to reach out and try to find help for your mother.  I hope this information gets you started in your quest.  Please let us know how things are going.  We'll be glad to answer any questions you might have, and nothing is out of bounds.

Best wishes,

Leigh Ann cool

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