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Diseases & Conditions Epilepsy
1
Hello, My name is Candace and I am 23. I had my first seizure at the age of 20, right out of the blue and the doctors don't know why! I have had two grand mal seizures and one mild one that affected my face only. This is very scary and they seem so violent. I am always on edge and always scared. I have been on Dilantin for almost four years and as long as I take my medication faithfully I am seizure free.
 
I have heard a lot of bad things about being on dilantin and getting pregnate. Anyone with any experience? I am so scared to come off my medication.
 
Any suggestion would be great!
 
I never new how many people have epilepsy.
 
Candace
2
Candace,
Hi and welcome to HW.
IMO you shouldn't have to worry about the dilantin. I've been on it (275mg/day) since 1979 (age 21) and I'm OK however I am a male and I don't know how it will affect pregnancy(but I've heard it's OK if in low doseages and closely monitored)
 
Randy

Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.
 
275mg-dilantin/day
120mg-pheonobarb/day
3,000mg-Mesasol/day
20mg-Celexa/day

3

Thank you Everyone for replying! It make me feel better to know I am not alone! I think that is the scariest part.

 

C

Diagnosed with Epilepsy in 2000
 
Medication: 600mg of Dilantin a day
 
"Never frown, even when you are sad, because you never know who is falling in love with your smile"