and up on the newest and innovated stuff.Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
uh....good question. i don't know? & i suppose i went "phone stupid" when speaking with the pain doc and didn't ask him for another name. but perhaps he's right. if that's what "he" would RX....perhaps i should just go to my PCP until i find someone else?
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
Hi Erin,
Just curious--why can't you take ultracet? I'm currently taking that because I can't take any of the NSAIDS either, including the Cox-II inhibitors. Ultracet works well for me, although my pain is probably nothing like your pain.
Elcamino
Goodmorning elcamino & thanks for checking in on my inquiry!
Regarding the Ultracets: I was taking them back in 2002 for joint pain. They really did nothing for the pain and on top, they made me very dizzy but even worse...they made me hurl! Oh I would vomit sometimes 3 or 4 times a day and every time I would get in a car too, carsick.
Ultracets and Ultram have tramadol in it....something I'm allergic to or just cannot tolerate; don't know which but they make me puke nonetheless.
But for pain...they really didn't help me. Over the past 6 years Darvocet, morphine, percocet, dialuadid and ugh....prednisone, have been the only medications that can get a grip on the RA joint pain. It gets that bad. Sometimes ER bad.
So I'm on a little quest to find a system that works. Right now I'm just taking dialuadid 4mg when needed, but they're very short acting.
Thanks for your concern. If ya think of anything let me know!
Have a good day.
erin
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Erin, Hi Sweetie,
Oh so sorry to hear you are still having so much pain. Just wanted to tell you, my sis takes Nubain SC, works very well for her..but as you know, we are all different.
Also, I know you are on some monster drugs, but have you ever though about Toradol, IM, for the breakthrough pain. It works great for post-op patients, sometimes called the wonder drug. Doc could RX it for you and you could give it to yourself, in the thigh, or teach mom to do it.
Feel better.
i can't take Toradol. was given Toradol IV push and also IM on 3 occassions @ the ER and all times my throat closed & tongue swelled. so it's safe to say i shouldn't & REALLY wouldn't wanna try it again!
i've given it a few times...very popular in the ER. Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Ultracet made me dizzy and nauseous too, the first time I took it. It took me several weeks to try it again, but the first time I took it, I took a double dose (because that's what the directions instructed me to do). When I took it again, I only took 1 in the morning, and it got me through the morning. Yeah, it wore off, but I know what you mean by dizzy and sick, so I will only allow myself to take one. I've also had toradol injections-had no reactions to it and it worked well. Don't know much about nubain, but I have heard of it. The Humira and imuran is not relieving any of your joint pains? I know that you're getting ready to start remicade; hopefully that will do the trick. Personally, I feel that one shouldn't have to take pain meds if they're taking the heavy duty arthritis/IBD drugs. Until I no longer need to take the ultracet, I will not consider Humira effective.
Good luck in finding something,
Elcamino
i know what you mean elcamino. personally, i feel the same way! i'm on TNF & Imuran and pred....shouldn't that be ALL? but it's not the case. i never thought i would be having to take pain meds myself! sometimes i think that if i was treated for the RA when it first showed up in my bloodwork (@ 16 y/o) and the joint pain was almost nill & Advil was enough...that i wouldn't be like how i am today.
honestly, Enbrel & Humira in my own feelings, have not helped with the major joint pain enough to not be on pain medication. the TNF's have helped me the most regarding RA related fatigue, less severe hip pain and the AS back pain. (but...when in a CD flare, here comes major back pain!)
many nurses though, who i've spoken with & who have helped me through this...they've never known of severe arthritics even while on arthritis meds, to NOT have pain meds. everyone's different i suppose. all cases range in severety.
i'm at the point that i'll do or take anything to just be able to get back to work!
thanks elcamino...hang in there!....have a good night.
erin
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.