I was wondering the same thing - you tend to do this when you're down, and worry us all! Is Kevin still there? Have you made an appt with the doc yet? If he's gone, do you think maybe that's the ol' comedown after something fun is over? I know, it wasn't all fun, I am sorry about that, did you guys make up? If he's gone did he leave on an OK note or not?
Well, one good thing about Nickie being a little "hyper" is that she is a crack up, right? Just go read all her posts today, I bet you laugh! She even made me laugh when I was really pissed today, not an easy task!
God, 6 classes??????? How? That's a hell of a full plate, hon, I just hope the mood swings don't make it too hard. I beleive you'll do fine, tho, you're very strong when you have to be.
Love you both Lots,
Patti ;~)
Epilepsy (31 years) Keppra (300mg x 4 per day), Valium-myoclonic jerks PRN/as neeed
Hi, Patti - are you doing some better today? How about maybe going to lunch and a matinee with Kevin? I love doing that - we try to go every weekend (if there is something worth seeing), it really picks me up and doesnt take any effort or energy, yea!
I know your headaches are bad, can't you take some pain reliever? When I had chronic, crippling migraines I took Fioricet and they helped, not to mention made my "mood" a little better if ya know what I mean! YOu're sooooo lucky, Kevin could just set up up, no doctor visit required! I would totally take advantage of that! Or vicodin, yum.
(Not trying to be a drug pusher, you understand, just trying to help you feel better so you two can actually enjoy some time together!) You NEED to do something enjoyable together. Or play cards or a board game if you don't want to leave the house. At least you aren't chained to the toilet with diarrhea! Your bladder infection should be gone by now, it's been over a week, so how's that for some er, opportunity!
Try to think of something good to do, instead of dwelling on what's wrong. I know it sounds stupid, but you really need to take advantage of the time he's there, I promise if you will just do something good, anything, you will feel better.
Don't worry so much about people on the board, I know it's upsetting, but Kevin is oh so much more important!
I do hope you feel some better, and I'm sorry if I sound like an idiot, lol.
Collagenous and ulcerative colitis since 1999, currently in remission on Entocort and Cymbalta.
Hi hot chicks. Sorry it has taken me sooooooolong to get back to you all, but my head was killing me so friggin bad this a.m.I was almost going to the ER for a shot of Demerol. And,Shannon, I take Fiorecet w/codeine for my headaches (30 years of grand mal seizures have done a number on my head, and I have headaches daily) even before I was geting these side effects from the Entocort EC. But, at lest it is working (the entocort) as I am having bowel movements like a normal person, no more side aches, etc. Anyway...here is the story, and Nickie if you tell me that I dont have to tell u if I dont want to I WILL BE ON THE NEXT FLIGHT TO MICHIGAN!!!! You know you ladies can ask me ANYTHING you want,I love you both and consider u my friends, so why the heck wouldnt I want to talk to you both about it??? Dingbat! There is this guy (Mark aka musicmork) on the UC board who is really down and out and got a script from his doc for Entocort, and he started a thread asking about it, so I went into all the ins and outs of the drug thinking I was helping him. Well my friends, tht is where my mistake began. He started emailing me privately telling me that KNEW he had Cancer..late stages and a bowel obstruction, and to please help him get thru it. So, like the butthole I am, I was just trying to help him. Then he tells me that he has issues with his Gastro, the doc never has time for him, etc. So, I tell him that he should look for a new Doc as the Doc should handle his needs, and the Doc works for him, blah, blah, Now understand that this man has NEVER had a Colonoscopy. So, I am not understanding how the Gastro can treat him when he hasnt done the proper tests (peed a few members off at me, why..u tell me)Then he tells me that he has done the prep and gone to the surgical center 4 times and chickened out (he is 51 y/o by the way).So I thought it was time for some tuff love...so I started asking ? that apparantly a few members didnt like...so the Forum Moderator closed the thread. Trust me u both can look if u think I am wrong, but I swear there was NOTHING from my end that was against the rules, not to mention I think the worst thing I was guilty of was helping a fellow UC person!!! Then (before she closed the thread) one of the members, who thinks her crap doesnt stink, not to mention she thinks she knows EVERYTHING somehow makes it so I cant read her posts (answers to the threads)and I didnt even say one thing to her, but for some reason that is beyond me EVERYONE treats her like she is an online Doc (prior to this the Moderators made her state at the bottom of her posts/threads that she is not a Doctor, so I just want u both to know it isnt my opinion, only) and ALWAYS asks her opinion over the other members and treats her with the utmost respect. I cannot even begin to tell you girls how hurt I was. I was pacing, couldnt sleep, wondering what I did wrong. So, I then decided that I was DONE with a forum where people can get away with that. I then began re-reading Mark's threads and I swear to god you guys it was the same thing over and over. Asking people for help, then they would give him their advice, he ACTED as if he would take it, then ask another member the EXACT same thing and so on. Anyway, a couple of the Forum Moderators (emailed meprivately) and asked me not to quit coming as everyone has the right to help, and I help a lot of people. I do not know if that is their "job" or they did it because they cared. As u both know, my email is on my profile, and after all this Mark dissed me (trust me, he has NEVER helped or had words of wisdom for the other members) and so has a couple members. You are correct, there are A LOT of people that I have helped and do not want me to stop, but darn it I cnnot handle the "mean" members. You guys know how sensitive I am. But, Shannon u r so right in that Kevin is more important.
All that said...let me move on to us. Shannon, Kvin PROMISES that he will attempt to find a pic of all of us and email it to you both. And honey u cracked me up yesterday w/ your post about the Linenes and things experience. I feel the same way...WHY DO U HAVE TO HAVE MY PHONE NUMBER WHEN I AM BUYING LINENS, so I give them a false number as I know it is just for marketing purposes
Nickie, my baby I am worried...please do not get mad, as I know u r SO intelligent, but 6 classes is a lot! Especially with that precious lil girl of yours and Jason. And u better send me and Shannon some pics ASAP! Now onto the Kevin issue. OK, he doesnt think I am BiPolar 1 or 11! His reason is that he says "I have never seen the "manic" side of you!" Maybe I am wrong, but I do know that I have a severe chemical imbalance. Not that I WANT to be BiPolar (please dont think I am disrespecting either of you
) But, I think I am BiPolar, and if he is right then why am I the way I am? It cant be depression, or I would have gotten better by now. And Shannon, I havent made my appt. as he (the pdoc I was referred to) will not be back for another week. But, u know me well enough by now that I will be on the phone next Thursday making an appt. Unlike some people, I ask for advice and TAKE IT. Why the Heck would I want to waste other members time? So, I think this long enough to have pissed u both off
which is, of course my intention! Please analyze this story and tell me what u guys think I should do. Please? I know it is a pain in the butt, but I value both of your opinions so much, it would mean a lot to me.
Hope to hear from u both before the day is over.
All my love to the hottest chicks,
Patti
Epilepsy (31 years) Keppra (300mg x 4 per day), Valium-myoclonic jerks PRN/as neeed
Hi, Patti! I went and read that thread (took me forever to find it!) but I totally and completely agree with you. The guy is totally feeling sorry for himself. Not to be mean, but i have seen WAY more of those kinds of patients than I care to. Nothing you do helps. They complain about everything, they are so negative they don't even give meds or other advice a chance, and they are alarmists, always thinking they have cancer without even getting tests, because they dxd themselves online. Thanks for letting me rant. These patients have more psych issues than medical in most cases. But they don't want to admit that, they just want the attention.
I think what you said was spot on, even if it was a bit "brusque"? I remember a certain someone who shall remain nameless that I tried the tough love approach on..........
But seriously, you tried to help and you give good advice. I just don't think he wants help, only wants people to listen, adn that;s fine, that's what support groups are all about, but it's also about letting fellow sufferers help you - after all, sometimes I think the sufferers are better experts in some ways than the docs! I truly love this forum because I have never had BP friends that could understand all the subtle nuances never published in journals. It's great! If someone told me something worked great and I hadn't tried it, I would darn sure try it! Try not to fret too much. I didn't see anyone getting on you after you posted, were they removed?
So, you didn't say, are you and Kevin going to go do something together? I hope you do.
Oh, and you better quit stringing me and Nickie along with this "Kevin's going to send a pic" stuff! *teasing*
Also, if I EVER get obnoxious like that person you were talking about ("online Dr."), tell me or shoot me in the head!
Ya know, I have seriously had my doubts about your dx of BP. You just do not sound it at all. If you haven't had at LEAST one true manic episode lasting more than 4 days, you are not BP. I think you need a second opinion from the pdoc, which if he's good he will give you anyhoo. IMHO you have depression/anxiety disorder with possible panic as well. That doesn't resove itself, either - it is also a lifetime thing and needs the right combo of meds, just like us! But either way, please stay here!
Lots of Love,
Patti ;)
Epilepsy (31 years) Keppra (300mg x 4 per day), Valium-myoclonic jerks PRN/as neeed
Okay I am not even about to attempt to go threw and look for some persons pathetic attempt to lay out his life story and not even consider one persons' opinions. What a fruit! Anyways, lets do lunch guy if ya beg to differ. I see it all the time. It's sad ,because some of us really value another person's opinion especially, if asked. Whatever!
OMG, total frustration do you remember Patti what I told you to tell your neighbors, when you first started the forum, tell that dude the same. he he. Gosh Nick, settle down.lol Shannon vented , I wanted to.
Ok, about the pics , I believe you, I am going to get a new one, unless you want a few years ago, I am still hot now, but really thin then. That's about the only difference, but I am not about to do no false advertising.lol It's confident.... not conceited.lol I am cracking up. What goes up must come down, mood changed again? Don't ask me I just live in my body!
about the classes Patti, ahhh...... I will be fine, I work great under pressure, this is my only semester like this, then it's just my surgical classes. Are you doubting me, sometimes I do, but don't tell anyone.
So Shannon, are you worried you sound like Dr. Welby? Lol I am rolling on the floor laughing my a**off! Yeah right, you give great information here, you have facts, sites to back them up, oh and that other small thing... YOU ARE A NURSE? GEEZ..... Not to mention you have BP, and have been through it all and are now stable, and to remind us , or let us know, you still have not so great days yourself. It's informative, knowledge, from a respectable f****** BP. Get it the " f" word. To anyone else, this is a joke in one of the lastest threads. ( Please no hate mail, it really is a joke, who says the f word more, me or Shannon). Anyways, alot of people including myself wouldn't know what to do without ya girl.
Okay last but not least, about your dx, of BP. I have never really witnessed your manic side either, Kevin would know more than us here. Unless you sign off when your manic, I am opposite I think, of course I am just all over the place. I think if your not, great. Maybe with all the problems going on, it is causing your depression or attacks? It's a possibility. You do have alot going on. If you are only a doc will know, although your husband is one. Still keep your appt. , you will want to get treated for whatever it is you are experiencing. I hope you are not , and I am soooooooooooooooooooooooooooo glad Kevin is there with you right now. If you are not , you better stay here though. Well at least drop us a few lines, ya know.One more thing, Shannon, is it possible you haven't noticed my manic side. I am being serious, I often wonder if people notice. Do you think my dx is right, you know I question it, and go off my meds,but I have to go right back on.If I was normal , could i just stay off them? Holy s****, did I just right all that? OMG..... I need to do something else, like clean ...oh wait that's done!!! BYE
Epilepsy (31 years) Keppra (300mg x 4 per day), Valium-myoclonic jerks PRN/as neeed
Collagenous and ulcerative colitis since 1999, currently in remission on Entocort and Cymbalta.
Hey, Patti, your hubby is soooo right. What I would give to be in the same city as you guys!
Your dogs are soooooo much like mine, I swear. The jealousy bit - Sophie can't stand Gerhardt, I can't pet him, and she doesn't approve of Paul and me sitting on our club chair together. They both come up there and start whining and staring us down. We have to sit on the sofa with them, or be harassed all night, haha! She is my baby, we are joined at the hip, it's totally ridiculous. If Paul wants to love on her, she pulls away all the while looking at me like "I can't get away from him, I'm sorry!", then when he's done holding on to her, she makes a mad dash for me and kisses me feverishly like she's apoligizing! there's more, like I'm sure you have tons more stories, too. My theory (proven, in fact) is if you spend all day every day with them and treat them like people, they are just like people. Only better, IMAO! (Friends and family excluded, of course!)
So Kevin likes us redheads, huh! People either love us or hate us, usually, even our hair color is controversial, lol! The only thing worse than a BP is a redheaded BP,
I am so flattered, you know how us 40+ girls need the ego strokes! You're totally gorgeous, no wonder a doc married you!
They don't marry the ugly girls!
I'll send you both some pics of me and Paul - we're having a friend who's an amateur photobug do them on Saturday.
OK, Nick, time to put up or shut up. I want that pic by 09:00 hours tomorrow. You're dismissed.
Seriously, if you have a digital camera, you just take a snapshot, download it on the computer and put the file in an email. It's hard if you don't know what you're doing, Jason probably will. I don't mean to insult your intelligence, I don;t know if you mean you're going to try to send a regular photo, not digital!!!! I had to learn all that from Paul, and it's still a challenge - I'm about as illegitimet as you can get. (Catch the joke there?)
I am sooooo happy to hear of your "luckyness" (good word Nick!) - IMO it makes EVERYTHING better.
Home Depot? My hubby lives there, too, he can do absolutely anything there is to do with a house! He has actually turned me into a convert - I love doing projects, it's fun! Not to mention the great benefit at cost! We tiled the guest bathroom a few months back, and I was actually the tile cutter!! It was a blast, and looks totally professional if I do say so.
Well, gotta run and actually do some semblance of responsibility now. Paul has tomorrow thru Mon. off (Yay!!!!!!) so I won't be on as much, but I'll check in for sure, OK?
Talk to ya later babes
Shan
Love,
Patti
Epilepsy (31 years) Keppra (300mg x 4 per day), Valium-myoclonic jerks PRN/as neeed
Peace baby,
Patti
Epilepsy (31 years) Keppra (300mg x 4 per day), Valium-myoclonic jerks PRN/as neeed
Love,
Pats
Epilepsy (31 years) Keppra (300mg x 4 per day), Valium-myoclonic jerks PRN/as neeed