Laura
Laura
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
New to the group but am also having problems with my Pisiform bone. Have a lot of pain in that bone and moving my hand to the left causes more pain, plus shooting pains in the pinky. My hand surgeon is considering removing this bone. Has anyone had theirs removed and if so what are the limitations? I have something called avascular necrosis of the lunate bone in my right wrist (also called Kienbock's)
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Thank you for your response. Hopefully someone out there who has had a pisiformectomy will answer. I have had full fusion on my other wrist this past summer with discouraging results so I am very curious as to what lies ahead if my pisiform bone is removed. The fusion was a results of Kienbocks (which from what I've read is a form of arthritis - although I have my doubts about that). Kienbock's is basically when the lunate bone in your wrist "dies" causing a lot of pain and loss of range of motion in your wrist.
Laura, as Erin suggested, the best thing to do would be to find a Hand Specialist, who deals specifically with the hand/wrist area. Based upon what little knowledge I've picked up over the years with regards to the hand/wrist you definitely want someone who has that type of experience. Did the ortho suggest any other type of treatment? I was given 3 sets of cortisone shots (which do not seem to be working). I do find that if I ice it - it helps with the pain to some degree.
After I heard the word "surgery" my brain went on hold (lol) and I didn't ask the questions I should have. I will see her again in the next month so hopefully by then I will remember to ask all the pertinent questions I need to.
Thanks again
Jean
i too hope someone comes across this post.
are any of you close to New York City? there are several hand surgery specialists, world renound one's at that too. and centers for bone & joint diseases and special surgeries.
bless you both....hang in there.
sincerely,
erin
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Hi Erin:
Yes, I am close to NYC - I live in Northern NJ. I am going to a hand surgeon in Englewood and she does have experience with Kienbock's (luckily for me) She actually "fixed" my fusion to some degree. The first surgeon I had did what I consider to be a failed surgery but the doctor I am seeing currently removed the plate that was too big for my wrist, fixed an impacted ulna bone and also removed bone chips. Unfortunately, it seems that the problem with my pisiform started exactly at the same time I started having more problems and pain from KD, so it was pretty much the feeling that the pain I was experiencing was from overcompensating for my right wrist. It seems like when it flares up that my bone is on fire - that's really the only way I can describe it. There is a history of osteoarthritis in my family - it pretty much goes back as far as I can trace my family tree, so I'm assuming that it's arthritis that is causing the pain. I did have an MRI a year ago and was told at that time that I had ganglion cysts in that wrist but from what both doctors have told me - they shouldn't be causing the pain that I'm experiencing. The burning sensation is very similar to the pain that KD causes as well but I've been assured that I don't have bilateral KD (which I consider to be a real good thing!).
Any advice or suggestions you might have - or even doctor recommendations (doesn't hurt to get a 2nd opinion) is welcome.
Thanks, again
Jean
Hi Teresa
Good luck with the pisiform removal. I had mine done in September and on my left wrist in October. Once the bone was removed on my right wrist (which is fused) the pain was gone immediately. My left wrist is taking longer to heal, probably because it wasn't immobilized after the surgery (I did have a splint, but it wasn't casted after that). I did not lose any mobility in my left wrist and you can't even tell it's gone other than the scar which isn't too bad. The shape of my hand hasn't changed. You wouldn't know it unless I turn it palm side up and then you would see the scar.
Did you have Kienbock's disease (avascular necrosis of the lunate bone)? From the surgeries you described it sounds like you've been treated for it. i.e. shortening of the ulna, etc.
If I can answer any questions on the pisiform removal or Kienbock's, let me know.
Hope this helped.
Regards,
Jean
Hi Jean,
Thanks for the info. I think the doc. said pisiform arthirtis. This all statred with cracking my wrist at work.I hope I also don't lose any mobility. I will let you know more when I can type, cause it is my primary hand. And by the way I am not a good speller.
Thanks again,
Teresa
Hi Teresa
Don't worry about the spelling! You should see my handwriting - it looks like a doctor's!!
Anyway, good luck with your surgery. I hope all goes well for you.
While you're there, you might want to ask the dr. about kienbock's or avascular necosis of the lunate because it can be caused by an injury. The lunate bone shows up white on an x-ray and black on an MRI. It's caused by lack of blood supply to the bone.
Post when you can and just remember to ice and elevate after the surgery. It will definitely help.
Good luck.
Jean
I was wondering after your surgery, the first visit did they put a cast on or did you just go to therapy? Just wondering what to look forwards to.
I am doing good just some pain but I am use to that. Hope to hear from you soon, and thank you for taking time to talk to me.
Thanks aigan,
Teresa
I have had arthritis most of my life and I am 42. We adopted a Military Working Dog and he dislocated my wrist and it has taken me almost 2 years to find something that helped. I only had 2 injections between my pisiform bone and the one near/next to it.....but it only lasted 6 months. I am having surgery May 20th of this year and I hear it's fairly easy and takes a majority of your pain away even though you may still have a little pain----but my Ortho doc said it should (after removing it) take away at least 80-85% of my pain and I am happy with that.
Nice to meet you both and welcome to HW...
You've found an older posting from 2006, and while it's good to read, I'm not sure if
RuskyBiz or Erin are still on here posting anymore...
Please start a new thread and introduce yourselves...we'd like to meet you both.
TommyH sure hope you got your surgery done by a hand expert...
also there might be more information about this on a google search, but please do keep us informed about
your surgery date, so we can send you both well wishes...
this is a good forum...
TommyH get a second opinion on the lumbar back surgery, as I've been told once surgery always surgery
and that's major surgery hun and will keep you laid up for several weeks...look at older posts in the chronic pain forum on
for spinal surgeries...many there have had them done...well wishes indeed on that...
Hope this helps you both Thanks
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* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
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Thanks for the help!
Up until now, that is. I believe I may be experiencing arthritis in the joint as a result of the surgery. Is this possible? My wrist aches at that same location for about the last two months. It is worse the more I work at my computer (my job).