I am still pretty nauseous and I don't know how much more I can take. Saw my onc yesterday and both me and my DH left feeling a little discouraged. We are starting to feel that he is grasping at straws because he thinks the nausea should be much better or gone. I feel like people are starting to think I'm faking it! He had no rememdies except more drugs and more tests. I have to go in at 7AM Monday for an endoscopy of my stomach and then Tuesday for a CT of my chest, abdomen, and pelvis (which means drinking that stuff which will no doubt make me puke). If anything significant is found then I will probably have to start chemo immediately along with rads. Just don't know if I can do it. I don't feel like I have anything to look forward to anymore except more of the same: treatment, illness, puking, fatigue. And my DH gets mad because all I want to do is lay around and "not try". I can't help it. I have no motivation or inspiration left in me. I just want it to be over.
((((Hugs))))
Carla
Oh Carla, your post makes me feel so sad, wishing there was some way I could help. I learned that brain tumors or lesions can cause nausea and sometimes high temperatures when I was looking in my medical book about Denise's problem. I didn't know that before. Are your doctors considering this? You know after surgery there is a suppository they give you to knock down the nausea, wonder if that might work in this case? I can't imagine always feeling so sick. It must be horrible. Husbands just don't have a clue sometimes. What can I say, mine gives me a bad time sometimes, too. Grrr. I will keep you in my prayers that someone finds relief for you. Hugs, MK
Carla, please tell your DH to come here so we can kick him in the butt. Tell him you are SICK and he needs to let you rest or lay around do whatever you feel up to doing. It seems like his expectations all along have been unrealistic, with you working full time and then coming home to clean up after your DH and kids, cook, do laundry, etc.
I can tell how frustrated you are, and feel so badly for you. Perhaps ask about the bracelets for nausea? I am not sure the details, but they use them for motion sickness and I think Chris used them to help her with chemo. You might also consider a 2nd opinion after you get your test results back from the CT.
If only we could get you feeling better for a couple days, I think you would have a renewed boost of morale and will to fight. I hope it comes to you soon.
L&H,
Lori
I can tell how frustrated you are, and feel so badly for you. Perhaps ask about the bracelets for nausea? I am not sure the details, but they use them for motion sickness and I think Chris used them to help her with chemo. You might also consider a 2nd opinion after you get your test results back from the CT.
If only we could get you feeling better for a couple days, I think you would have a renewed boost of morale and will to fight. I hope it comes to you soon.
L&H,
Lori
I am so sorry that you are still sick! I will be praying for you during this difficult time. I know that our DH's mean well but sometimes they come across the wrong way. Mine was angry with me yesterday for being so nervous before I saw the onc and found out my PET scan was normal. I finally yelled at him and told him that he wasn't in MY shoes and he didn't really know how HE would handle it. I think he kind of took that in. He really tries to be there for me. He's cleaned the house and cooked most meals, washed most of the clothes since April 19th when I had mast. and then thru the chemo. DH's get upset because it's not them and they really want to do more and they are limited. They're not GOD....I know they mean well - they want to make this go away and they can't. Oh well, enough defending the men. Hang in there girl!!! You are a survivor!!!! YOU CAN DO THIS!!!! Know that you are in a lot of thoughts and prayers!
Teresa King
Hi Carla,
I'm so sorry you're still going through this. It really sucks big-time. I'm praying that they can do something for you to alleviate the nausea. Hang in there, girl. I'm praying for you.
L&H,
Rita
I'm so sorry you're still going through this. It really sucks big-time. I'm praying that they can do something for you to alleviate the nausea. Hang in there, girl. I'm praying for you.
L&H,
Rita
Carla,
Being nauseated is HORRIBLE....The only thing that helped me was Zofran. But 1 time I did have to use the suppositories because I
couldnt keep anything down. They did help.
I pray that you will feel better soon and that the test result will be
okay..I am sorry your husband isnt being more understanding....
I agree with Lori, I think a huge kick in the butt is in order !!!
Love and Hugs
Cathi
Being nauseated is HORRIBLE....The only thing that helped me was Zofran. But 1 time I did have to use the suppositories because I
couldnt keep anything down. They did help.
I pray that you will feel better soon and that the test result will be
okay..I am sorry your husband isnt being more understanding....
I agree with Lori, I think a huge kick in the butt is in order !!!
Love and Hugs
Cathi
Sometimes it is a slender thread, Sometimes a strong,
stout rope; She clings to one end, I the other;
She calls it friendship; I call it hope....
Oh God Carla- where to begin!
Do you think your DH would have lunch with me and Lori? I think we can get his attitude adjusted. You know ME and how I get that is why I think Lori should come- she could be the voice of reason and keep the police away, etc....but I think he might grab a glove and get in the game after we are done!
Now here is some medical advice from someone who is NOT a doctor and is just making a few suggestions so you can ask your own REAL doc's opinion!
I heard there is a new anti-nausea med that is an injection called Aloxi. My friend Kathy had it and it REALLY helped her. She had some heavy duty chemo for mets to her pancreas, liver and esophogus. So you might ask about that.
As far as the endo- you have had upper GI problems for a while now. I wouldn't be surprised if they found major irritation there. Maybe once they do find the cause they can actually TREAT you! Are they going to check for H.Pylori virus too? That causes most ulcers and they have a specific treatment for that.
I don't know if you remember, but I have had a problem since chemo with something called meunier's disease and it causes severe vertigo and/or severe nausea. I got it from the chemo. The only thing that helped was lowering my sodium intake and taking something called Diamox. It is a (sp?) vasodiolator that works in the brain to help relieve pressure on the nerve that causes vertigo and Nausea - vas vagle- or something like that. It is also a diuretic and it clears up too much water retention even in the skull which can cause the pressure which can then cause the nausea. It has no side effects and it worked wonders. I still take it. I have to.
So maybe you can approach your doc and ask him about the Aloxi for nausea, the H. Pylori as a cause for your GI pain and other symptoms, and perhaps taking Diamox short term to relieve the pressure.
PLEASE DO NOT GIVE UP.
I know you Carla. You are in a bad place right now and you have EVERY RIGHT TO BE! But you are the comeback kid if there ever was one!!!
And the spot on your brain is solitary and small and CAN AND WILL BE ZAPPED.
If ANYONE thinks or says you are "faking it" then perhaps Jo-Ann and I need to have lunch with THEM!
HANG ON. You were given a boatload of bad news and you feel like crap. BUT there ARE things that can make you feel better and you will get them. And you WILL feel better again. YOU WILL.
And hell yeah! GET that second opinion!!!
I am praying for you and routing for you and I KNOW you will make it through this. YOU WILL.
Love,
Jessie
Carla,
I have had to kick butts far too often in my life and then we get sick from the stress. That's what I attribute mine too. Men and teaching school. One year my counselor said my ex had so many expectations for me and none for himself. I have found that that is far from unusual. I don't have the answer but it sounds like you do everything which is what I did. I hope you will just get some rest and he may have to kick in and help if you aren't. I don't know. I wish I could help. I feel so bad for you. At least I wasn't sick when I was going through everything.
I will pray for you. Love, Di
I have had to kick butts far too often in my life and then we get sick from the stress. That's what I attribute mine too. Men and teaching school. One year my counselor said my ex had so many expectations for me and none for himself. I have found that that is far from unusual. I don't have the answer but it sounds like you do everything which is what I did. I hope you will just get some rest and he may have to kick in and help if you aren't. I don't know. I wish I could help. I feel so bad for you. At least I wasn't sick when I was going through everything.
I will pray for you. Love, Di
Jess...lol...you must have me confused with someone who never speaks up! If anyone speaks their mind, it is me, and sometimes to a fault. When I was a senior in high school, I had an English teacher who favored the genius males in the class over the females, who were just above average. I often would be the one to raise my hand and ask a question if I did not understand.
One day, when I acutally did 'get it', my teacher interrupted the discussion to ask me specifically if I understood. I was mortified. She then asked if I knew why she called on me, and of course I said "no". She told us that the reason was because "chances are, if Lori did not understand, several others did not understand too, and Lori was the only one who would ask questions."
Speaking my mind is not a problem, so don't necessarily count on me to be the voice of reason!
L&H,
Lori
One day, when I acutally did 'get it', my teacher interrupted the discussion to ask me specifically if I understood. I was mortified. She then asked if I knew why she called on me, and of course I said "no". She told us that the reason was because "chances are, if Lori did not understand, several others did not understand too, and Lori was the only one who would ask questions."
Speaking my mind is not a problem, so don't necessarily count on me to be the voice of reason!
L&H,
Lori
TOO Funny Lori!
I of all people know you how you can speak your mind! 
But you ARE a diplomat...I have great faith that you could keep the police away!
At least I hope so- or we are both going to need bail money! 
Jessie