Dear All,
My problem with Parksinon's disease centers around "freezing" (sticking to the ground) of the feet - especially when I pass through narrow passages, sit on a chair in front of a table, find my way between two obstacles and so on.
Generally, the advice given by experts relate to "freezing" while walking. I rarely experience this while walking. I would like to know if anyone else has a similar experience and if so, what remedy measures they resort to besides standard medication. It is generally felt that medications do not help to get rid of this problem. Some other effort has to be made to counteract this problem.
Your responses with regard to this matter will be much appreciated. Hope to hear from you soon.
Regards,
T Krishnarajan
Dear T.
I am sorry to hear about your mobility problems. I am also Parkinson's sufferrer, however my major issues are dyskenesias, balance and medication resistance. I have several acquaintances who do suffer from PD related freezing. Their freezing is of the classic nature and occurs while they walk. From talking with them, freezing is difficult to manage. The PD meds work better with movement related symptoms than rigidity and freezing. Even after DBS, their freezing and rigidity remained. I wish I could offer better insight, but it is my understanding that freezing is a "beast" to be reckoned with and is harder to medically manage then some of the other hallmark PD symptoms. Best of luck.
You never have to grow up....
I am sorry to hear about your mobility problems. I am also Parkinson's sufferrer, however my major issues are dyskenesias, balance and medication resistance. I have several acquaintances who do suffer from PD related freezing. Their freezing is of the classic nature and occurs while they walk. From talking with them, freezing is difficult to manage. The PD meds work better with movement related symptoms than rigidity and freezing. Even after DBS, their freezing and rigidity remained. I wish I could offer better insight, but it is my understanding that freezing is a "beast" to be reckoned with and is harder to medically manage then some of the other hallmark PD symptoms. Best of luck.
You never have to grow up....
"take the second star to the right and straight on 'til morning"
Peter Pan's directions to Neverland
i can relate to that .My freezing episodes occur mainly when i come up against an obstacle.This proves to be very frustrating in stores,and other situations of limited space.Pushing a shopping cart helps me there.The meds (stalevoand mirapex)are of limited help with this problem.out where i have room ,I can walk at a fast pace ,and focus on an object straight ahead.This stops any freezing.This is not possible indoors and in tight spaces.If you haven't already u might try using a cane to assist you,and ideally have someone accompany you.Wishing you the best.Welcome to Healing Well.Ed
Ed
I have PD, but don't experience 'freezing' episodes (yet). I can only relay what others say. To break free of a 'freezing' episode, try walking backwards. If using a walker, get the ones with a laser light that shines on the floor from one side of the walker to the other. Somehow looking at the laser light line that shines from one side to the other in front of your feet breaks your brain free of the 'freeziing' episode.
I have heard the same comments about 'freezing' in doorways and small areas. Best of luck.
Life is a dance. Don't sit it out. --- H. Jackson Brown
Life is a dance. Don't sit it out. --- H. Jackson Brown
I sorry to hear all of your pain about Parkinson.
Is there anyone hearing about Cellgen?
Why nobody try it?
Therer is no harm to try it. As far as I know, everyone who tried it gets beter.
Everyone should have a good life. If there is any hope, don't give up.
Is there anyone hearing about Cellgen?
Why nobody try it?
Therer is no harm to try it. As far as I know, everyone who tried it gets beter.
Everyone should have a good life. If there is any hope, don't give up.
As Lisa says consult with your Dr.before using anything nonprescription The co. which produces cellgen has a disclaimer which states"The above statements have not been evaluated by the FDA.This product is not intended to diagnose,treat,cure or prevent any disease."I will not mention the company name tnat sells cellgen,as it is against Healing well rules,but at 109 bucks for a 45 day supply they must be hitting it big time.
Ed
Ed
But cellgen has FDA certificate. Also, it is not a drug, it is a new product which is used for anti-aging.
Also, I read it's reports, the results are good. So I told one guy who has parkinson. He tried it, now he can take a walk by himself, also he said his memory improved a lot.
I am not sure how many doctors know it. LIke vitamins, it doesn't need doctors' approval.
Anyway, it is just a suggestion.
Also, I read it's reports, the results are good. So I told one guy who has parkinson. He tried it, now he can take a walk by himself, also he said his memory improved a lot.
I am not sure how many doctors know it. LIke vitamins, it doesn't need doctors' approval.
Anyway, it is just a suggestion.
Vivien,
Thanks for the input,cellgen has been around for yrs.I have not tried it but would like to hear from anyone with P.D. that has.
Ed
Thanks for the input,cellgen has been around for yrs.I have not tried it but would like to hear from anyone with P.D. that has.
Ed
Ed:
Thank you. I thought cellgen is 2-3 years only.
I can ask my neighbour to post his words here. I saw what kind of live he had before, and I see how happy he is now. I am surprised at the result.
V.
Thank you. I thought cellgen is 2-3 years only.
I can ask my neighbour to post his words here. I saw what kind of live he had before, and I see how happy he is now. I am surprised at the result.
V.
Hi,
I am Heekee. Vivien told me there are a few PD sufferers on this board. It is my pleasure to share my experience of taking CellGen if it can be any help.
My PD symptom started about 4 years ago. First my right hand began to shake, then both hands. It got worse and worse until I can't write any more and even difficult for me to go to bathroom. Besides, my memory became terrible. I could not remember anything. I frequently fell down while walking. As a result, I could not get outside my home for year and a half, except when going to see my doctor.
Three months ago, Vivien talked with me about CellGen. I gave it a shot without much hope. I wouldn't call it a miracle, but things are obviously getting better. Now I can step outside my door to the neighboring park just by myself and my memory seems recovering. Although my hands still shake, but at least now I can type in this post now.
Now I am continuing to take CellGen. It may not be so effective to everybody, but it won't harm to give it a try for other PDs like me.
Heekee
I am Heekee. Vivien told me there are a few PD sufferers on this board. It is my pleasure to share my experience of taking CellGen if it can be any help.
My PD symptom started about 4 years ago. First my right hand began to shake, then both hands. It got worse and worse until I can't write any more and even difficult for me to go to bathroom. Besides, my memory became terrible. I could not remember anything. I frequently fell down while walking. As a result, I could not get outside my home for year and a half, except when going to see my doctor.
Three months ago, Vivien talked with me about CellGen. I gave it a shot without much hope. I wouldn't call it a miracle, but things are obviously getting better. Now I can step outside my door to the neighboring park just by myself and my memory seems recovering. Although my hands still shake, but at least now I can type in this post now.
Now I am continuing to take CellGen. It may not be so effective to everybody, but it won't harm to give it a try for other PDs like me.
Heekee
HeeKee
Welcome to healing Well,glad to hear that cellgen has helped you.Are you currently on any PD medications,and did you check with your neurologist before starting CellGen?I'm always concerned about drug interactions,especially with non prescription drugs.Stay well and ty for your input Ed
Ed
Welcome to healing Well,glad to hear that cellgen has helped you.Are you currently on any PD medications,and did you check with your neurologist before starting CellGen?I'm always concerned about drug interactions,especially with non prescription drugs.Stay well and ty for your input Ed
Ed
Ed
Thanks!
Before CellGen, I had been taking Madopar for four years, two pills per day. It helps to relieve my PD, but seems only temporarily. All the symptoms started to come back after a few hours. While with CellGen, I still take Madopar, but reduce to one pill per day, according to the suggestion of my doctor. Therefore, either CellGen is healing me or it improves the effect of Madopar, I am definitly benefited from CellGen.
The only drawback of CellGen is its price, $80 per 90 capsules, and it is not covered by health insurance.
H.K.
Thanks!
Before CellGen, I had been taking Madopar for four years, two pills per day. It helps to relieve my PD, but seems only temporarily. All the symptoms started to come back after a few hours. While with CellGen, I still take Madopar, but reduce to one pill per day, according to the suggestion of my doctor. Therefore, either CellGen is healing me or it improves the effect of Madopar, I am definitly benefited from CellGen.
The only drawback of CellGen is its price, $80 per 90 capsules, and it is not covered by health insurance.
H.K.
Heekee,
Y.W. You must be either from Europe or Australia,as madopar is not generally prescribed in U.S.In fact i've talked to hundreds of PD 'ers over the years( I may be stretching it but least 100)lol and you are the first I've heard from on madopar.For those of us unfamiliar with it it is a combo of levodopa and beserazide.our euivalent would be sinemet which is levodopa/carbodopa(excuse spelling typos got pd fingers tonite).many of us myself included add comtan to sinemet to increase the effctive time of sinemet.If cellgen works for you i glad to hear it .Id be reluctant to mix it with the witches brew Im on which includes meds for other medical conditions.stay well and in touch .Ed
Ed
Y.W. You must be either from Europe or Australia,as madopar is not generally prescribed in U.S.In fact i've talked to hundreds of PD 'ers over the years( I may be stretching it but least 100)lol and you are the first I've heard from on madopar.For those of us unfamiliar with it it is a combo of levodopa and beserazide.our euivalent would be sinemet which is levodopa/carbodopa(excuse spelling typos got pd fingers tonite).many of us myself included add comtan to sinemet to increase the effctive time of sinemet.If cellgen works for you i glad to hear it .Id be reluctant to mix it with the witches brew Im on which includes meds for other medical conditions.stay well and in touch .Ed
Ed
Luckily for me despite some pretty advanced PD my balance is good and I try to get it checked at a gym or kessler (physical theraphy) with the proper equipment every month or two. I usually freeze when I am walking and I abruptly need to stop short. I can usually tell when I am more likely to freeze and it has to do with a full mid-section (say if I need to uruinate) it will happen when I am taking those small jerky steps. Looks like a shuffle.
The only thing I have found is just to keep on moving even if that means falling forward or to one side/knee or into a wall maybe holding onto a chair. I am young and again my balance is good so I am not afraid to fall and I usually don't. It ain't pretty but it works...it is like if the bus is racing down the street PD or no PD I am finding some deep dopamine stor and I am getting out of the way.
The only thing I have found is just to keep on moving even if that means falling forward or to one side/knee or into a wall maybe holding onto a chair. I am young and again my balance is good so I am not afraid to fall and I usually don't. It ain't pretty but it works...it is like if the bus is racing down the street PD or no PD I am finding some deep dopamine stor and I am getting out of the way.
Generalcatburd,
Welcome to HealingWell,wish you the best and keep up the battle against PD.Thank you for your input.All of the pd folks ,myself included ,like to hear how others cope with PD Ed
Ed
Welcome to HealingWell,wish you the best and keep up the battle against PD.Thank you for your input.All of the pd folks ,myself included ,like to hear how others cope with PD Ed
Ed
Here are the ingredients of Cellgen mentioned by Vivien and Heekee above. Hope this can help the PD patients understand the product:
Acetyl L-Carnitine (ALC) is a cognitive enhancer and neuroprotective agent that protects against a wide range of age-related degenerative changes in the brain and nervous system. ALC is an ester of carnitine that modulates cellular concentrations of free coenzyme A and acetyl-coenzyme A, two compounds integrally involved in numerous cellular functions, including the transfer of fatty acids across mitochondrial membranes for energy production.*
Creatine Monohydrate is a popular new supplement that serves as an energy reserve in muscle cells. Muscular contraction is powered by the breakdown of ATP (adenosine triphosphate) to ADP (adenosine diphosphate). When all the ATP is broken down, creatine phosphate in the muscle donates a phosphate group to ADP, and further energy reactions can occur. Creatine monohydrate is a precursor to creatine phosphate. By supplementing with creatine monohydrate, creatine phosphate levels in muscle apparently are maximized, and more muscular work can occur, since there are greater energy reserves to use.
Choline is substances needed by the brain to produce acetylcholine, a major brain/motor neuron neurotransmitter that facilitates the transmission of impulses between neurons. High doses of choline are an effective way of achieving optimal acetylcholine levels. Lower levels of acetylcholine are associated with memory loss and learning difficulties that occur in aging brains.*
Alpha Lipoic Acid (ALA) is a nutrient that comes close to being a vitamin. ALA is an extremely important part of the body's anti-oxidant network. It's the only anti-oxidant that can boost levels of glutathione (an extremely powerful anti-oxidant). High levels of glutathione are essential for a strong immune system and optimal functioning of the body's defense systems. ALA not only protects the nervous system, but also may be involved in regenerating nerves. ALA is soluble in water and also able to penetrate lipid environments, a property lending considerable versatility to this nutrient
Acetyl L-Carnitine (ALC) is a cognitive enhancer and neuroprotective agent that protects against a wide range of age-related degenerative changes in the brain and nervous system. ALC is an ester of carnitine that modulates cellular concentrations of free coenzyme A and acetyl-coenzyme A, two compounds integrally involved in numerous cellular functions, including the transfer of fatty acids across mitochondrial membranes for energy production.*
Creatine Monohydrate is a popular new supplement that serves as an energy reserve in muscle cells. Muscular contraction is powered by the breakdown of ATP (adenosine triphosphate) to ADP (adenosine diphosphate). When all the ATP is broken down, creatine phosphate in the muscle donates a phosphate group to ADP, and further energy reactions can occur. Creatine monohydrate is a precursor to creatine phosphate. By supplementing with creatine monohydrate, creatine phosphate levels in muscle apparently are maximized, and more muscular work can occur, since there are greater energy reserves to use.
Choline is substances needed by the brain to produce acetylcholine, a major brain/motor neuron neurotransmitter that facilitates the transmission of impulses between neurons. High doses of choline are an effective way of achieving optimal acetylcholine levels. Lower levels of acetylcholine are associated with memory loss and learning difficulties that occur in aging brains.*
Alpha Lipoic Acid (ALA) is a nutrient that comes close to being a vitamin. ALA is an extremely important part of the body's anti-oxidant network. It's the only anti-oxidant that can boost levels of glutathione (an extremely powerful anti-oxidant). High levels of glutathione are essential for a strong immune system and optimal functioning of the body's defense systems. ALA not only protects the nervous system, but also may be involved in regenerating nerves. ALA is soluble in water and also able to penetrate lipid environments, a property lending considerable versatility to this nutrient
Freezing is not an issue with me yet. Tremor and fatique are my biggest inhibitors now. When I was a girl I had frequent reaccuring dreams of "Freezing". I was always at a crosswalk. THe signal changes to walk and I am stuck to the ground. I can't will my feet to move. I start to rock, finally able to lift my ffeet and stumble into the road, just to have the light change and traffic come towards me and I have to struggle to get back on the curb.
Anyone believe in premonitions?
Babykk
Welcome to healing Well.I hope you get to meet some of our terrific members,and find support here.Stay well,and in touch.ED
Ed-Diagnosed with Parkinson's Disease in 1998.I am also Diabetic,and have major arthritis issues.As long as I can fish life is good.
Welcome to healing Well.I hope you get to meet some of our terrific members,and find support here.Stay well,and in touch.ED
Ed-Diagnosed with Parkinson's Disease in 1998.I am also Diabetic,and have major arthritis issues.As long as I can fish life is good.
support Healing Well thru the sponsors and with donations.The light is always on stay well,and listen to your neurologist.
I too have had problems with freezing, especially when stepping up over a curbstone. I was told to approach the curb and pick any spot on the pavement beyond and concentrate. This breaks the freeze.
A laser pointer can also be purchased and it is about the size of a ball point pen. It creates a light spot on the pavement to conentrate on . Hope this helps, Jack
There is a medication called Apokyn (apomorphine) that is used as an as needed basis that should help you get through the freezing spells. It is used primarily for freezing and tremors. It is very fast acting and most patients experience relief within 10 minutes.