Hi everyone!
I have a question has anyone with anklosing spondylitis had any problems with the sun? My husband has spondylitis and has had it for at least 30years and recently he has had problems like weakness and flu like symtoms. He takes indomathicine. And OTC's pain meds once in awhile. But thats all. Any ideas what we are dealing with. Thanks.
sisterbabe 
Sisterbabe; mother of two 7yr and 5yr and wife/helpmate to a farmer.
Sisterbabe; mother of two 7yr and 5yr and wife/helpmate to a farmer.
DX Lupus 2003, Menopause 2003,asthma 1984,
Meds; plaquenil 400mg aday, OTC pain meds
suppliments; ST Johns wort, black cohosh, B complex,and Vit C
Hi!
I just try to stay out of the sun, if at all possible. If not, I use a pretty heavy duty sun BLOCK, not sun screen. I wear a big hat, sunglasses, and have a long sleeve shirt available to put on, if I need it. I've had sun poisoning one time and it is NOT fun!!! I was a real sick puppie!!! So, on my trip to St. Maarten in June, I thought I had taken all my usual precautions and I was ready to go sailing! By the end of the day, I realized I missed two spots - my bottom slip which blistered terribly and the fron of my chest that really burned badly. It has finally healed this week. I did look funny on the sailboat wearing a big hat, a long sleeved blouse, I did wear my swimsuit, and long pants over it plus 50+ sunblock. It's better to take those precautions than suffer afterwards. The suffering lasts a really long time.....much longer than the fun......Besides, the sun isn't good for your skin anyway. So, that's my story and in spite of all my coverups, we had an incredible time in St. Marteen. We enjoyed it to the fullest - not just in the direct sunlight! On the boat I sat under the shades, just kept out of the sun. Most people want to be right in the sun anyway and be careful not to get dehydrated. Drink lots of water. That will help. I just told everyone that in my family white porcelain skin is considered beautiful so I don't worship the sun. Also, I don't want wrinkles very faster! People are more educated these days about the sun so I do think it will be okay for you
deejane
Current DX: psoriatic arthritis/rheumatoid arthritis/spondylitis/fibromyalgia, CD, carpal tunnel, degenerative disc disorder, nerve damage, high blood pressure
Current meds: Remicade 400 mg. every 5-6 weeks, methotrexate, celebrex, lortab, folic acid,
flexeril, topamax, toprol XL, lortab 10-500
Previous meds: Enbrel, humira, bextra, vioxx
hey sisterbabe,
that was great input deejane gave you.
i would think that the indocimethacine is contributing to the sun sensitivity. it's listed as something one should avoid while taking that drug due to making the patient photosensitive.
be careful & take care
Active, Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
that was great input deejane gave you.
i would think that the indocimethacine is contributing to the sun sensitivity. it's listed as something one should avoid while taking that drug due to making the patient photosensitive.
be careful & take care
Active, Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Pred 20mg prn; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 30mg; Reglan; Meclizine; LidoDerm; MiraLax & too many others.