Hi all, I am new to this forum-- Just found it. I usually hang around the ACSN -American Cancer Survivor network forum, but there aren't too many total colectomy members there. I had a hemicolectomy in March, but after finding more cancer-- (long story)-- a total colectomy was performed last Thursday-- a week ago. I went home after five days but had to return 2 days later with extreme dehydration and elevated white blood cell count. I had been vomiting all night so the dr. re admitted me. NG tube went back in, so did the IV with hydration and TPN for nutrition. Today, sunday, I am better-- the NG tube is out and I am supposed to start back with liquids only. My DR. had told me that I could eat anything-- so that's what I did--- did not work- This time I will take it slowly. Can anyone give me advice on how to stay nourished and hydrated? nHow do you adjust work and bms? I am a highschool teacher--- No time for lots of bms---
This forum seems like mostly ladies with total colectomies-- all nice and down to earth. Please share with me what has worked for you.
There is a lot of information that has been posted over the last few months in the total colectomy section. Under ostomies, and then Total Colectomy, followed by parts 2, 3 & 4. There are a lot of unique stories within all the posts. It would be a great help to read those first and see if some of your questions have been answered/discussed. As far as I know, most or all of the ladies on these boards have had partial/subtotal/total colectomies due to colonic inertia/severe constipation.
It looks like you are both having separate issues--I'm sure if you post under total colectomy part 4, someone can/will relate to your issues :) It may also be that people don't see these messages from you if they automatically pull up the total colectomy part 4 string.....
Hope that helps--there's always room for new members on our postings! I had surgery in January and was fortunate enough to have talked to 2 women before surgery....but this site has helped a lot since then--we all help each other!