what does these results mean?? please help

Diseases & Conditions Cystic Fibrosis
1
spirometry:
fvc= actual: 3.04   predicted: 3.75   percent  81
fev1  actual: 2.10  predicted 3.75     percent: 65
fev1/fvc       69                  86
fef25%         2.07               5.97                 35
fef50            2.20                4.70                47
fef75             1.18                2.06                57
fef max          2.27                6.24                 36
fif50               1.93                  3.96              49
fif max               25                   115              22
 
volumes
svc           actual: 2.28       predicted 3.91    % 58
ic               1.46                  2.37                 62
erv              .82                   1.54                   53
tgv                2.43                 2.83                86
rv                1.61                1.29                 125
tlc             3.89                 5.20               75
rv/tlc        41                     24
 
diffusion
dlcounc        15.33           25.60           60%
dl/va             4.30             4.92
va                  3.57            5.20           69
 
ok what does all of this mean? i dont see my doc for another 2 months. everyone says i need oxygen according to this? huh? how can they tell? im lost. im confused. can someone please help??
thanks
tricia
2
From what I can tell, your FEV1 is 65% and your FEVC is 81%. Those are great numbers, Im not sure why everyone says that you need oxygen. I dont use oxygen, never had and my FEV1 is 60% and my FEVC is 79. Im actually fairly healthy for having those numbers with mild lung involvement. Have your doctors tested your oxygen levels to see if you even need it? People who go on O2 at night are made to go through a study, where the doctor monitors your O2 levels all night to see if they dip, and that you require O2 at night. What is your O2 level at a regular checkup? Doctors and nurses have told me that they dont even worry about your O2 until it dipes below 92%. My levels are never any lower tha 95, so Ive never required O2.

Youll have to remind me, are you going to an accredited CF centre? HOw long have you had CF?
3

Well first of all, thanks for replying. they are not really concerned with the Fev and fvc numbers it more of the diffuse number. they said with my height weight etc etc etc i should be no less than 80% and im sitting at 60. they said it means im not getting enough oxygen in my blood. ive always had problems breathing at night. i have moderate lung obstruction,asthma and im not so sure about the whole Cf thing anymore. i am not going to accredited cf center yet. i am waiting on them to call me for an apt. i am going to a normal cf clinic as of right now and i been in testing for diff things for almost 2 yrs now.i just turned 23 and all my problems started at 18 19 yrs old. ive always gotten sick a lot since i was born.ive had to had about 100 brochitus and gastritis infections in the last 10 yrs. my weight is now back down to about 108. at one time i was at 145 lbs.i love losing all the weight dont get me wrong. i still feel fat and huge. but thats a diff story. im just so confused and lost right now and at the same time scared. no one in my family has lived to 30 yet with all these problems and im getting close to the 25 mark. my aunt died at 27. i just dont know what to do right now. im so about to quit just give up. i love my son but however, its not worth putting him to a babysitter every stupid week to do more tests. the doc said i was only a carrier today. and i told him fine. i quit ,i wont take anymore meds. its fine with me i dont want cf anyways i just want to know do i have it or not and if not then wth do i have ya no.i love life. im jus getting scared. my aunt went thru this and it killed her cuz they told her the same thing she didnt have cf just a carrier. my oxygen in the doctors office is usually 95 96 and at night thru the test that they did it drops to 75 to 80. thats why they r putting me on it.

thanks again,

i wish someone would just be straight with me for once and thats  why im switching to a credited cf center.

take care,

tricia

4

Hello Tricia.  Did you get your full results back from the genetic testing (I know you stated a few days ago you were waiting on the results)? 

Sorry to hear about your Aunt dieing, if I may ask, what was her diagnosis (cause of death)?

Hope you get to feeling better soon.

 

 

Sandra
 
Absence is to love what wind is to fire, it extinguishes the small yet enkindles the great...

5

no i didnt. it takes 6 to 8 weeks for the results. im curious. im still waiting on my results from sinus cat scan as well. i should get that back in a few days. i hope it tells why i get so many sinus infections and why my nose is so swollen. As for my aunt. she passed away way before i was even born. and back then they didnt believe adults could have cf so they diagnoised her with lung inpairment/collasped lung. see they took her off oxygen and all her meds and a few weeks later she couldnt breathe,her lungs gave out and her oxygen dropped, and it killed her. my grandma wanted a biospy done to see if infact she did have cf and they told her no its not needed. everyone said she had cf but her doctor.go figure.hmm the same thing im going thru. thats why its so scary ya no.she as well had a 3 yr old. my son turns 3 tomorrow. so right now my mind is spinning with all these neg and scary things right now. everything is the same as it was with my sister and my aunt. my sister was dxed with cf at 3 weeks old. she had the delta f508 too but they couldnt find her other gene and they still dxed her on her syptoms. but then again she was a baby.i dunno if that has ne thing to do with it but im just confused ,scared and pretty much stressed out. im just tired of worrying and wondering.

well hope all ios well with ya lil one thanks for replying where is twinside?

tricia

6

Tricia, so sorry to hear about all your familie's health troubles.  I hope you do find some answers soon. I know how hard it can be "not knowing" the outcome of some tests and the diagnosis on your health.  Maybe a therapist can help ease your mind a little bit? 

I haven't seen Twinstride (Kathy) lately.  Kathy, are you here? I do believe she pops in now and then - Kathy, hope everything is ok? 

Keep us posted Tricia.  Take care.

Sandra
 
Absence is to love what wind is to fire, it extinguishes the small yet enkindles the great...

7

Twinstride's last message on forum thread said something about boys being off for a few weeks and a possible trip to Austin Texas-swimming holes.    We all feel for you Tricia.

Sea 2

8
I am here tonight for a few minutes.  I am now back to working my long hours, so, I am on limited time while I am working (finishing up my rotation next week).
 
All my whole last 7 days off was spent going to Austin, taking kids to Schlitterbahn water park in Galveston, going to the doc myself (have to have some physical therapy), doing the stuff I needed to take care of before heading back for my long days to work.  This is one reason why I ask for a co-mod to help me out.... tongue    I didn't have a chance to get on the computer before I left for Austin and my cousin does'nt have a computer.....can you imagine that in this day and time...lol. 
 
All is purty good here!, except a few minor issues going on. 
 
Hope your all doing well.
 
Kathy 

Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
 
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
 
Moderator, Cystic Fibrosis.  "If there is questionable doubt, check it out"....with your healthcare provider!.  We are here to offer support, encouragement, a shoulder to lean on, and answer your questions as best we can.  Don't hesitate to step on in and enjoy and remember!  "Never give up hope for a cure" one day we will get there!".  

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