Hia Mouse, How are you doing ?
I haven't been on the CFS board, cuz I avoid it like the plague. (don't know whether to laugh or cry at that one)
Hope you're doing alright.
Because I also have been Dxed with Lyme, I keep hoping that the CFIDS will go away when and if the Lyme does.
At least if I focus on Lyme, I can think, well, when they try the Antibiotics, then maybe I'll get better ... but if I think that's it's the CFS making me this sick and them saying there's no known cure for that ... well, I get really bumbed out and don't want to think about "not getting better", especially when I've only gotten worse in the last 3+ yr.s.
So, anyway, that's why I avoid the CFS board, I noticed.
But I felt rude not coming back to say HI to the Mouse and wondered how you are and wanted to say HI.
It was so nice to meet you here and read your poem and talk with you.
Sorry we have to meet under these conditions though. But that has been the only Plus of all of this ... the great ladies I've met with CFS, FMS, etc. etc.. all keeping the faith, together.
They have a compassion that I haven't found on other Forums, if you know what I mean.
And when I've met with them locally here, it doesn't take forever to get to know each other, as it does when all are healthy. Ya know ?
Something about suffering being a common bond And Who you know. That part I'll forever be thankful for.
Welp, hope you're doing well Mouse and I'm thinking about you and glad you are finding your way on top of this thing.
Hugs in His Love,
Ann
Late Neuro-Lyme & CFIDS.
Hi Ann
it was so good to hear from you. I went to the Lyme site to find out a bit more about it. I'm sorry you have a double whamy. Doesn't seem fair to have one of these illnesses let alone two.
But you know people do get well from CFS too. I know some personally, so there's always hope. Anything can change in a day. It's something to hold onto.
Like you I like the people I meet who have been through the tough stuff. They're real and they've had a chance to test out if what they believe is real.
Believe me, if God hadn't been real, I would have found out by now. There was a time when I couldn't sleep and medication damaged my kidneys. I prayed as was on my own and someone walked into my room, turned me over and said sleep and I slept. There was such a peace.
It's been tough at times but such amazing things have happened I know Gods so real.
Why aren't I well? Who knows but I know that now is just a blink in eternity and this isn't going to last forever. One day we are promised a place where there will be no more sickness or crying. Sometimes I've just felt so loved it's unreal (and it's not the medication!) so I know that God is a God of love.
Plenty of people haven't understood how it feels to be sick but I know that He does and He cares.
Remember that you are just so precious.
I really pray that you will get well and that you will begin to go forward and not backwards. that you would begin to make progress now.
We've had a recent miracle. A daughter that my husband lost 34 years ago through divorce has made contact. She's so lovely. Her sister went with my husband and she went with her mum, so she's found her sister and is looking forward to meeting her other 5 brothers and sisters.
See, you never know what tomorrow may bring. :)
Good to hear from you so keep in touch when you can.
Heaps of Hugs back!
Mouse
it was so good to hear from you. I went to the Lyme site to find out a bit more about it. I'm sorry you have a double whamy. Doesn't seem fair to have one of these illnesses let alone two.
But you know people do get well from CFS too. I know some personally, so there's always hope. Anything can change in a day. It's something to hold onto.
Like you I like the people I meet who have been through the tough stuff. They're real and they've had a chance to test out if what they believe is real.
Believe me, if God hadn't been real, I would have found out by now. There was a time when I couldn't sleep and medication damaged my kidneys. I prayed as was on my own and someone walked into my room, turned me over and said sleep and I slept. There was such a peace.
It's been tough at times but such amazing things have happened I know Gods so real.
Why aren't I well? Who knows but I know that now is just a blink in eternity and this isn't going to last forever. One day we are promised a place where there will be no more sickness or crying. Sometimes I've just felt so loved it's unreal (and it's not the medication!) so I know that God is a God of love.
Plenty of people haven't understood how it feels to be sick but I know that He does and He cares.
Remember that you are just so precious.
I really pray that you will get well and that you will begin to go forward and not backwards. that you would begin to make progress now.
We've had a recent miracle. A daughter that my husband lost 34 years ago through divorce has made contact. She's so lovely. Her sister went with my husband and she went with her mum, so she's found her sister and is looking forward to meeting her other 5 brothers and sisters.
See, you never know what tomorrow may bring. :)
Good to hear from you so keep in touch when you can.
Heaps of Hugs back!
Mouse
Hia Mouse,
That is such great news about your husband's daughter. Praise God.
What a wonderful thing to have happen. Her family can be complete now too.
I appreciated what you wrote. Pain lately has made it hard for me to grab hold of that inner strength we're provided, but my husband has said, Remember the Footprints in the Sand Story.
That helps me.
I wanted to tell you how much I appreciate your posts and your spirit and that they bless me.
I get discouraged about "not getting better", but reading what you write, gives me hope.
I know, as we said, most folks on this site have worse diseases than we do, and I'm sure they want to get better too. I shouldn't be so selfish. I guess I'm just feeling more "useless" than anything. My housework doesn't get done like I'd like, and that makes me feel guilty. My husband is not putting the guilt there, but I feel sorry for all the added extras that have been added to his days.
anyhow ... it's Always nice to come and read what you've posted.
God Bless you and I'll be talking with you again, God willing .... or if you don't run off with those Red Hatters. 
Have a special day, for you.
Love, Ann
Late Neuro-Lyme & CFIDS.
Hi Ann
thanks for your encouragment too. We all need to hear good things.
Hey you should see my house. I know how it feels to have everything a mess and have to live in it. And the guilt that we are making someones life besides our own difficult. But you know we didn't choose to get sick and this is just life for real.
I was reading something the other day about the Mary, Martha thing and it wasn't the usual take on the story. This one was the idea that there are a lot of people out there doing a lot because they are really caring and there's nothing wrong with that,it's good as we all need each other, but when we can sit at His feet, then we are spending time with Him like Mary and that's what He wants.
We have been given a gift of time aside and we can just look up and spend time just asking Him to come and sit with us.
Another time when I was really sick and hadn't been able to eat properly for 2 weeks, because the food was causing reactions, or sleep properly, He came and sat on my bed .
Again the same beautiful peace and love just flooded over me. But what always makes me feel like crying was the fact that I knew as I felt myself falling asleep, He was going to stay there all night while I slept. He didn't come only to make me feel better, He wanted to spend time with me. That's real love.
That need for companionship is so real. This can be alonely,humiliating disease.
I bought these really neat Zebra striped pj's but it is really embarrasing when someone I've never met turns up and there I am sitting in my messy nest in my Zebra pj's.
Mind you after all these years I wonder why I still look for day clothes!
I could look really tidy all tucked up in bed if all I did was read a book and do my hair!
But I keep sane by writing, drawing etc and it all has to be within reach. If I ask anyone to put it away I have to ask them to get it again and I hate asking and I think they would get sick of it ( near Christmas time they just walk past my door and say "NO".
That's when I know I can't ask for one thing more! Especially when I know I need a jug of water or other essential), so when the room gets me down I look out the window.
Got to admit it does feel like heaven and I do love it when it's all tidy - you know, tidy house tidy mind!
But here we are and that's how it is until it changes one day.
What amazes me is not that I've lost friends but that I have any left!
But my best ones come and sit in the mess with me, with my messy hair and Zebra pj's.
However besides all that I do really feel for you. And I'm praying for you each day. That you will make progress. I was reading in the Bible about how God knows if we are under too much strain or difficulty for too long how discouraged we can become and do things we wouldn't normally do. So I think it isn't out of order to remind Him that He's God and we're not, so enough is enough. ( I guess if it is out of order He'll let us know).
Take heart.There has to be something come out that is good from all this, otherwise there would be no justice.
The footprints in the sand story is beautiful.
May you know that companionship in a special way today.
Love and hugs
Mouse
thanks for your encouragment too. We all need to hear good things.
Hey you should see my house. I know how it feels to have everything a mess and have to live in it. And the guilt that we are making someones life besides our own difficult. But you know we didn't choose to get sick and this is just life for real.
I was reading something the other day about the Mary, Martha thing and it wasn't the usual take on the story. This one was the idea that there are a lot of people out there doing a lot because they are really caring and there's nothing wrong with that,it's good as we all need each other, but when we can sit at His feet, then we are spending time with Him like Mary and that's what He wants.
We have been given a gift of time aside and we can just look up and spend time just asking Him to come and sit with us.
Another time when I was really sick and hadn't been able to eat properly for 2 weeks, because the food was causing reactions, or sleep properly, He came and sat on my bed .
Again the same beautiful peace and love just flooded over me. But what always makes me feel like crying was the fact that I knew as I felt myself falling asleep, He was going to stay there all night while I slept. He didn't come only to make me feel better, He wanted to spend time with me. That's real love.
That need for companionship is so real. This can be alonely,humiliating disease.
I bought these really neat Zebra striped pj's but it is really embarrasing when someone I've never met turns up and there I am sitting in my messy nest in my Zebra pj's.
Mind you after all these years I wonder why I still look for day clothes!
I could look really tidy all tucked up in bed if all I did was read a book and do my hair!
But I keep sane by writing, drawing etc and it all has to be within reach. If I ask anyone to put it away I have to ask them to get it again and I hate asking and I think they would get sick of it ( near Christmas time they just walk past my door and say "NO".
That's when I know I can't ask for one thing more! Especially when I know I need a jug of water or other essential), so when the room gets me down I look out the window.
Got to admit it does feel like heaven and I do love it when it's all tidy - you know, tidy house tidy mind!
But here we are and that's how it is until it changes one day.
What amazes me is not that I've lost friends but that I have any left!
But my best ones come and sit in the mess with me, with my messy hair and Zebra pj's.
However besides all that I do really feel for you. And I'm praying for you each day. That you will make progress. I was reading in the Bible about how God knows if we are under too much strain or difficulty for too long how discouraged we can become and do things we wouldn't normally do. So I think it isn't out of order to remind Him that He's God and we're not, so enough is enough. ( I guess if it is out of order He'll let us know).
Take heart.There has to be something come out that is good from all this, otherwise there would be no justice.
The footprints in the sand story is beautiful.
May you know that companionship in a special way today.
Love and hugs
Mouse
Thank you Mouse.
So nice of you to share all of that with me, and I feel like we'd make a great pair in our gorgeous wardrobes and hair-doos. (o: }
We'd sure have a great time looking out that window of yours. That's sounds so beautiful.
And we'd have a great time reading things together.
I pray The God of All Comfort, comforts you with the same comfort you've given me.
You've become a great long-distance sister and friend.
A Hug through Him from me.
In His Love.
Ann
Late Neuro-Lyme & CFIDS.
So nice of you to share all of that with me, and I feel like we'd make a great pair in our gorgeous wardrobes and hair-doos. (o: }
We'd sure have a great time looking out that window of yours. That's sounds so beautiful.
And we'd have a great time reading things together.
I pray The God of All Comfort, comforts you with the same comfort you've given me.
You've become a great long-distance sister and friend.
A Hug through Him from me.
In His Love.
Ann
Late Neuro-Lyme & CFIDS.
Thanks for your friendship Ann. Shows that distance is no barrier or the fact you haven't met to be able to relate when we are all going through a similar experience.
What is always the miracle to me is how people just get put together or met up.
I hope that you can get the pain down. Is it fibro type pain?
Have you read any of Frances J Roberts books? they are beautiful if you can find them. They would be in second hand shops now I think.
You would love the veiw from my window. It looks over the valley and in winter the fog comes and fills the valley but we are sitting above it and it looks as if we are on an island.
New Zealand is really green so it looks very lush most of the time and because of that the sheep look like they've just been scrubbed up. They are lovely and white.
At the moment my grey cat is curled up on the bed asleep. We've got a couple of others and a dog (a weimaraner) who is a middle aged dog and too fat! But very lovely.
The cats we found on the side of the road as kittens but they have cost so much at the vet we've decided they are definitely pedigree if price is what qualifys a pedigree.
Do hope you have a better day today and an even better one tomorrow. One day at a time, but you will get there!
Take care and a hug for you,
Mouse
PS 94: 18+19
What is always the miracle to me is how people just get put together or met up.
I hope that you can get the pain down. Is it fibro type pain?
Have you read any of Frances J Roberts books? they are beautiful if you can find them. They would be in second hand shops now I think.
You would love the veiw from my window. It looks over the valley and in winter the fog comes and fills the valley but we are sitting above it and it looks as if we are on an island.
New Zealand is really green so it looks very lush most of the time and because of that the sheep look like they've just been scrubbed up. They are lovely and white.
At the moment my grey cat is curled up on the bed asleep. We've got a couple of others and a dog (a weimaraner) who is a middle aged dog and too fat! But very lovely.
The cats we found on the side of the road as kittens but they have cost so much at the vet we've decided they are definitely pedigree if price is what qualifys a pedigree.
Do hope you have a better day today and an even better one tomorrow. One day at a time, but you will get there!
Take care and a hug for you,
Mouse
PS 94: 18+19
Hia PhotoHouseSophMouse, (o: }
Don't mind me, I just confuse easily. Doesn't take much at all. I was just reading the advise you gave a new comer and it was Fantastic. A nice long post but I forget their name, it wasn't Tony, but the other new person.
Anyhowz, Now that we're on page 2, I can't look up to see if I already told you about allllllll of my cats.
More than a dozen, that's all I can say. :)
I'm going to go do a search on Frances J Roberts now, cuz I've found things on the Net that only came in book form formerly.
Have you downloaded www.e-sword.net yet ? It's the greatest. It takes a while to download all that you can put into it. But after you have the main body of it.... you can download two books at a time, while you're browsing other sites or something.
I love that program and it can do any type of Study you'd like to do.
Well, I'd love to see New Zealand. It sounds so beautiful. One Day I will :) and the rest of the universe at the same time. Oh Happy Day. Can't Wait.
Thank you for your encouragement and I'm glad I read your other posts, as there was even more good info on CFS in them. Thank you and Lord Bless you both, Your daughter and you. Amen.
Ann
Late Neuro-Lyme & CFIDS.
Don't mind me, I just confuse easily. Doesn't take much at all. I was just reading the advise you gave a new comer and it was Fantastic. A nice long post but I forget their name, it wasn't Tony, but the other new person.
Anyhowz, Now that we're on page 2, I can't look up to see if I already told you about allllllll of my cats.
More than a dozen, that's all I can say. :)
I'm going to go do a search on Frances J Roberts now, cuz I've found things on the Net that only came in book form formerly.
Have you downloaded www.e-sword.net yet ? It's the greatest. It takes a while to download all that you can put into it. But after you have the main body of it.... you can download two books at a time, while you're browsing other sites or something.
I love that program and it can do any type of Study you'd like to do.
Well, I'd love to see New Zealand. It sounds so beautiful. One Day I will :) and the rest of the universe at the same time. Oh Happy Day. Can't Wait.
Thank you for your encouragement and I'm glad I read your other posts, as there was even more good info on CFS in them. Thank you and Lord Bless you both, Your daughter and you. Amen.
Ann
Late Neuro-Lyme & CFIDS.
Hi Ann,
your cats sound amazing. We've just got three and one of them has taken to keeping me company.
I enjoy his company.
I didn't realize I was still logged in under Sophie's name.Still I guess that happens with the brain fog. We're on the same wave length anyway.
I met a couple from Canada a few days ago. She's had CFS for 6 years and is just starting to come right. So that was encouraging!
Yes I've got e-sword but haven't used it. Have been prompted lately to take a look so will do that.
You would love New Zealand. Just because there is so much to see in such a relatively small area.
Hot water pools and glaciers, plains and deep sounds eg Milford Sound. The top end is semi tropical and the southern tip a bit icy.
Today my husband and other daughter have gone fishing out in the Hauraki Gulf. It's a beautiful day.
We're off to see a specialist for Soph on Wednesday so will have to be well enough to go with her. I could do more to help her I think if I was well, but perhaps with this thing, I would just feel as helpless but with no excuse.
What's the weather like where you are? Are you in Summer or winter?
Do you like Daniel O'Donnell's songs? I want to try and get his CD. They've got really nice words.
Just a short hello as Soph not well and I have to go.
Will be in touch soon
Hugs
Mouse
your cats sound amazing. We've just got three and one of them has taken to keeping me company.
I enjoy his company.
I didn't realize I was still logged in under Sophie's name.Still I guess that happens with the brain fog. We're on the same wave length anyway.
I met a couple from Canada a few days ago. She's had CFS for 6 years and is just starting to come right. So that was encouraging!
Yes I've got e-sword but haven't used it. Have been prompted lately to take a look so will do that.
You would love New Zealand. Just because there is so much to see in such a relatively small area.
Hot water pools and glaciers, plains and deep sounds eg Milford Sound. The top end is semi tropical and the southern tip a bit icy.
Today my husband and other daughter have gone fishing out in the Hauraki Gulf. It's a beautiful day.
We're off to see a specialist for Soph on Wednesday so will have to be well enough to go with her. I could do more to help her I think if I was well, but perhaps with this thing, I would just feel as helpless but with no excuse.
What's the weather like where you are? Are you in Summer or winter?
Do you like Daniel O'Donnell's songs? I want to try and get his CD. They've got really nice words.
Just a short hello as Soph not well and I have to go.
Will be in touch soon
Hugs
Mouse