I can just go where I want. I don't need a referal as far as I know. Yes I could go get checked out, but somehow I have a feeling with the way things are going lately with doctors, they would make me have a referal. But I can try. But I will ask for someone who deals with auto immune diseases and make sure its a woman who is caring.
Thanks. I really am not ruling out heart. with still feeling so bad, I know how my mom and sister felt when they had heart problems. At least my sister said her arms ached and never knew it was a symptom of women having heart problems. along with nausea and sweating. But my stomach is killing me. I can't seem to get that pain under control even taking two vicacin at 500 mg each.
just have a heaviness in my chest all the time like I am weighted down. And am tired all the time. I will be glad to see the rheumetologist on thursday and see what she says. the prednisone isn't taking the discomfort away. That makes me think there is something else going on and maybe; heart related. And I have my endo on Thursday afternoon. So we'll see what happens. a male friend at church has only 19 % of his heart working and they are making him wait till july to get a defribulator in. don't know why they make people wait like that when they know they have such weak hearts.
back to square #1- off meds for now-Not been diagnosed as of yet. Have a positive ANA. . Pain reliever. sublingual B-12 , Chronic sinus infections. Asthma.
And I was just thinking the other day about talking to my husband about getting a cycle. I know he would enjoy it and I just think we need to do some fun things. Our 4x4 is almost paid, 4 more months. Although we did get a sleep number bed to see if that would help some of our problems with aches and things. didn't me. but after that is paid for, we could get a bike. He used to use his brothers when we were young. we know of some people who have them, might be fun.
have a great time on your trip. it's time for us to get away again too. hope it doesn't rain for you. And yes I will post on the heart forum and the gastro and the lupus.
back to square #1- off meds for now-Not been diagnosed as of yet. Have a positive ANA. . Pain reliever. sublingual B-12 , Chronic sinus infections. Asthma.
Hi deb, I am so sorry your having such a hard time finding answers...Hang in there
(((hugs)))
Elisha
I get severe pain in my breasts and my upper chest,ribs in ubder my breast and my stomach, both sides, it radiates to the underarm, my neck and shouders. I went to my DR. with the pain, she did a ekg, bloodwork and echo everything was fine. She started palpataing my chest and I was screaming in pain, she said I have costochondritis (chest wall pain).I went to the ER one evening with the pain, it was so bad. Did not tell the ER Dr. I had costo or fm until she checked me out thougherly and she dxed costro also. Plus I have fibrocystic breast disease. No fun at all. My Dr. told me with any chest pain if you press around and find spots that hurt like crazy it is muscular or the costro not heart. I sure hope she is right.
Good luck, Linda
linda
Thanks Shady Lady
I am six years older then you, but I was feeling like it's all in my head because of the doctors. And did you know lupus is a symptom of sun sensitivity? You may want to get that checked out for yourself. Check out the lupus forum. they are a great bunch of people on there. I have some kind of auto immune diseae, they just are taking their good ole time with it.
Anyway, my mom an sister have a history of heart problems. I don't know if I wrote on the post about them. But since I have my mothers tendancies and my sister was in her forties when she had her stroke, then a 5 bypass early fifties. Now she has kidney cancer. But she smoked and drank and had a tough life. I do not smoke nor does my husband. But I have asthma and I was feeling like my asthma was getting worse. I still am short of breath if I climb stairs and walk uphill. I even feel so full after eating just a little. I do not have to have a referal, I can just call myself to set up an appt.
I just think there should be something to do to make this all better. I know my sister said she felt better and so did my mom after their bypasses. And my hands and feet are swelling up a bit again. Everytime I have chest pain it happens. I have pain from my chest into my back most of the time. The family doctor told me it's muscles and I just need some good therapy, well I did have therapy for it and it did not get better. But then he said I need more. HA.
the only meds I am on are prevacid and hydrocodone when I need it. I started taking some herbal things,, I just got so very tired of dealing with doctors. ya see them, then wait for a month to go back for results, then you try a medication and then you wait 4-6 weeks to go back, then more tests and then you wait. No wonder the ladies on the lupus forum said it took years to get a DX.
Then I felt it's all because of hormones, I am in perimenopause. But the gals on the lupus forum said they didn't think its that, but one never knows. I do have to make an appt. with the cardio doc. I told the family doc I did not want to go to the one who did the stress test. Even the family doc said that he had patients who had a stress by him and had a heart attack that night or days weeks later after he told them the stress test was negative. The one guy even died of a heart attack the same night he was told nothing is wrong. so yeah those stress tests are worthless. I just am really tired of going through life like this. Not much quality of life. And I can't enjoy things.
I just hate spending money on copays and then tests and not getting anywhere. I just know sometimes my stomach feels like my my heart is beating in it.
back to square #1- off meds for now-Not been diagnosed as of yet. Have a positive ANA. . Pain reliever. sublingual B-12 , Chronic sinus infections. Asthma.
I forgot to tell you too. I do not take the cold meds. I found out that it raises my blood pressure. So I stay away from them. I have cut back on my Dr. Pepper. I am not a coffee drinker. But althought coffee is supposed to help asthma. I really am hoping the glucosamine, chondroitin with MSM will help my pain throughout my body. But as for the heart, well I have to call for some herbs. hawthornberry with capsicum is supposed to help. I use some hawthronberry syrup under the tongue and it helps to take away pain. I have been on meds for so many years, meaning antibiotics and this is what caused all my problems. With all that I read about things, I am almost sure it was the antibiotics. I had sinus problems for many years and the ENT and family doc just kept putting me on them. I tried the herbs and cleaned out my body as best as I could. But I think the antibiotics got into my muslces and it's hard to get it out. The reason I say this is, when my mother had her heart surgery 8 years ago, she had a hard time waking up. the surgeon said that the anesthesia went into her muscles since she is a larger person and it's having a hard time working out and will sleep more. Made sense to me at the time and I remembered it and said this to the herb guy and he said the same thing. toxins get into the muscles and it has to work out. I was told I should to a complete cleanse. But they cost around $300 and ya have to go to another state to do them. I can't afford it. I would be all for it if I could.
Like I said, I am only on prevacid right now and my inhalers for asthma, which the inhalers could cause problems too since it gets into the lungs. And since I am not on very much medication, I will try the herbs and see. My husband is on the glucoamine/condroitin msm and he said after two months he feels less tired at the end of the day and less achy. So I have nothing to loose.
back to square #1- off meds for now-Not been diagnosed as of yet. Have a positive ANA. . Pain reliever. sublingual B-12 , Chronic sinus infections. Asthma.
I am 49 but know how my sister and mother felt before their heart attacks and it's scary. but I have to be the one to beg for things to be done. Just don't know why doctors are dragging their feet and they say they are doctors. The dictionary must have changed the meaning.
I have a long story, but today was at the GYN and she kind of passed me off too. Don't they know we have lives to live. I am not that old yet that I can just keep going on with pain. They even treated my elderly parents better then what I am being treated. the gyn did say that maybe some of my problems would be eliminated if I had a hysterectomy. which I am tending to agree with her. But she thinks i should see the urologist or a person who is trained in kegal excersizes. My bladder pushes down but she thinks with excersize it would help. I have been doing these excersizes for years now. I had three babies, two over nine pounds and one over ten pounds. I did hear that makes things worse too having such big babies and I am only 5'2".
Well I do hope things work out for you with the niacin med. I did not know they did that. I may suggest it to my family doc. He would like me to go on lipator and I won't do it. I have heard too many people have problems and meds don't agree with me. I get too many reactions.
good luck.
back to square #1- off meds for now-Not been diagnosed as of yet. Have a positive ANA. . Pain reliever. sublingual B-12 , Chronic sinus infections. Asthma.
Well if it was intelligent I may not keep up with it. LOL. I have too many brain fogs lately. I would imagine when you say bike, it's cycle? My brother in law and his wife take trips too, well they did before they got the boat. They have a 45 footer. We are lucky enough to be invited down and we had the honor of having a small ride last weekend to make sure it works good for their trip they are going on.
I have been trying to hang in there. But someone else said to go see a cardio dr. I just don't know where to turn to right now. I was having some more discomfort, actually jagging pains on the left side and I carry an herb with me, hawthornberry syrup it's called, I put it under my tonque and keep it there for a while. It's for the heart and it actually helps to take away some of the discomfort. So my husband is thinking too it's heart related. But the doc who did the stress tests says my heart is fine. But the same day he did one on one of the family docs patients, that guy had a heart attack that night and died. He was told his heart was fine too, nothing wrong. I think they better get another doctor to do them. It wasn't the first person he gave a thumbs up to. I just think there is something that would help to take this heavy painful weight off me. I did gain ten pounds this last year and am a bit over weight, but ten pounds shouldn't have done this. I know weight can create problems, but I also had this pain a couple of years even before the stress tests. I was to the ER twice, different ERs, mainly because the first Er doc didn't really care how sick I felt , did a couple of blood tests and a chest x-ray, didn't find anything and sent me home feeling just as bad as when I went in. The second time they kept me. But they tried nitro and it didn't help. But they wanted to keep me because they suspected heart problem. They didn't do any other heart related tests though, just digestive. so I need to push the family doc. I don't need a referal to see a cardio doc, but I think it helps when ya do.
Take care. good to hear from you.
back to square #1- off meds for now-Not been diagnosed as of yet. Have a positive ANA. . Pain reliever. sublingual B-12 , Chronic sinus infections. Asthma.