Follow my progress with TSO (whipworms)http://journals.aol.com/keah/KeahsTSOJournal/
~Sherry~
Ulcerative Colitis since 1992
Meds: Colazal & VSL#3
Secondary Raynauld's Syndrome since 2004
Meds: Niacin when needed
Donate today to helps others like yourself!
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~Sherry~
Ulcerative Colitis since 1992
Meds: Colazal & VSL#3
Secondary Raynauld's Syndrome since 2004
Meds: Niacin when needed
Donate today to helps others like yourself!
http://www.healingwell.com/donate
Maui, welcome to HW!
Hello, All!
I'm a lifelong asthmatic and started Xolair about two years ago. There's a posting here somewhere about my experience with it, the short version is that I'm considered a severe, persistent asthmatic and was on Pulmicort twice a day with albuterol in the mix at least two times a day. After being treated with Xolair, I'm off the Pulmicort unless I get a cold or, as now, when the spring pollen count is off the charts. I also climb a 900 foot waterfall and/or trailrun about 3 miles each day with the dog.
I was one of those asthmatics years ago who had multiple courses of antibiotics and prednisone often related to getting a cold, but just as often not related to anything I could put my finger on.
I highly recommend anyone whose symptoms are not in control to check back in with their doctor. Remember, if you are newly on one of the steroidal inhalers, it may take up to 10 days to see any real relief. Your doctor may want to put you on prednisone for a short taper to help you through the adjustment period.
I also recommend educating yourself about how to boost your immune system. Asthma is considered an immune system type disease because, generally, your histamine (allergic inflammation) response is out of control. And all the meds you take can leach nutrients out of your system and affect your adrenal glands (which may result in the fatigue you're feeling).
Also, look into taking a yoga class or finding a workshop on "pranayama" (pronounced PRAH nah yahm), which is yogic breathing. When I started on my long journey from unable to walk too far to where I am now, yogic breathing techniques and yoga itself, helped unlock the tightness in my ribcage thus allowing my lungs to expand more easily. These techniques also teach you how to take a complete breath, most of us breathe very shallowly. And, the most important part is emptying your lungs completely. It's not so much that you can't get air in with asthma, you can't get it completely out so you're carbon dioxide level builds up, creating that panicked, "I'm drowning," feeling. And I also recommend, once your symptoms are under control, start exercising SLOWLY!!!!! A little at a time. I started out doing about a tenth of a mile, roughly five hundred feet. That's the distance along a line of five telephone poles. Take it slow, increase as you can and you will recover old strength. I did, I was a high school track star...a sprinter who, by the age of 23, couldn't go upstairs without my albuterol either.
And keep at your doctor. If he or she is dismissive, ask to see a pulmonary specialist and an allergist if you haven't already. Asthma is not a cookie cutter disease and one inhaler may not be the best for all patients (although the insurance company doesn't realize that!!). If your request to be referred to specialists is denied...find another doctor.
Good luck to all, and by the way, I'm 47 now and intend climbing that little mountain every day for as long as my knees hold out!!
I just started a new medication Asmanex It seems to be helping quite a lot . Thanks for the advice on excercise I'm going to try it I would like to get to where I could ride again. I'm going to walk alittle each day and see if it helps. Then I hope by the end of summer to be back on the bike.
Best Wishes to all
I wanted to bring this back up because I am so tired and dopey. I went at 4 pm and had a cup of coffee. It is the only thing that seems to expand me mentally and physically but the doctors are very much against it. They say I can have herbal teas. I might have GERD and do have alot of dry mouth problems and hoarseness but I don't know why. I have tried to lose weight but today I am so sick of being so slow...I leaped into a cup of joe. Any thoughts? Is java BAD or GOOD?
I love the way it tastes too.
Also, the asthma makes me tired sometimes. I was recently on prednisone for a flair and was I ever tired.
Good luck with your asthma
My mom would smoke and drink coffee around me all the time and I really never liked the coffee. Both smells together made me sick (coffee & smoke) and she couldn't understand why I was sick all the time.
Anyway, take care and good luck
I have no dismissive doctors and could get referrals...it is just that all this medicine has side effects too. Also, I feel extremely rushed when I see my prime care doctor who is really very excellent but he has to deal with the whole me. I suspect my allergist would be more in favor of the java.
I just want to be active enough to "have a life" but do not hope to "conquer the world" since I am getting a bit too old for that!