Today, I have two healthy boys (1 and 3) and live a very normal life where Lyme no longer impacts me.
No two paths are the same, and it can be incredibly hard to see the light when you’re in it. But things can get better.
I tried just about everything because you never know what your body will respond to. I did over a year of antibiotics, magnet therapy, Wave-1, some IV treatments, daily infrared sauna for over a year, and pretty much anything else you can think of. At the one-year mark, I still didn’t feel good and truly wondered if I’d ever get better.
For me, around the 16-month mark, things started to shift. I had more energy, and my symptoms slowly began to ease.
During that intense treatment period, I ate extremely clean. Now I still eat well, but much more normally.
I just wanted to check in and offer some encouragement to anyone going through this. It’s a very tough journey, but there is hope. No two cases are the same, and improvement and life where you don't think about lyme is possible.
You taking the time to post and encourage others tells a lot about you. Enjoy your life, and thanks for the positive news. Always helps to see a post like yours.
I spent three years mostly bedridden, and have been in remission for seven years now. I appreciate every minute.
Lyme, Bartonella, Babesia, Mycoplasma, EBV
Mold, MCAS, POTS, CFS/ME, HPA axis
Herbs, DNRS, diet, nutrients, EOs
i remember seeing your forum name here - thanks for coming back to let us know you recovered -
many people just want to get on with life again and don's come back to the forum
keep up the good work!
ill since Feb 2015 – Lyme (Armin), Mycoplasma Pn, suspected Bart
Bart now conclusively diagnosed by microscopy see https://tinyurl.com/2eatxxz7
60% recovered - most useful approaches:
=Wholefood Keto Diet
=Exercise – initially walking – now weights too
=Buhner Lyme herbs and co-infect herbs
=Immune modulation- Ivermectin and LDN
=Methylene Blue (Bart)
+T4 and T3 for thyroid
Fronton said...
Thanks for the success story. Did you do 12 months of antibiotics initially then transitioned to those other treatments mentioned? Wondering what you were taking after the abx at the 16 month mark that you really noticed a positive difference.
I think I did a little over a year of antibiotics initially, and I mixed in other things along the way. There wasn’t one specific thing I can point to as “the thing” that fixed it, and it definitely wasn’t like I woke up one day and suddenly felt better. It was more gradual. A symptom I had four times a week would drop to three, then two, then once a week, then once a month, and eventually I’d realize I hadn’t thought about it in a long time.
I slowly started trying different things like infrared sauna, dry brushing, and switching out toxic household products for cleaner ones. It can feel really overwhelming, so I just focused on adding one thing at a time and seeing how my body reacted, then maybe trying something else the next month.
One of the biggest things to remember is that no two cases are the same. Everyone heals differently, so it really can feel like a bit of trial and error where you’re trying a lot of different approaches. The hardest part is not always knowing what’s working and what isn’t, so sometimes you just have to trust your gut.
I know how tough it is when you’re in the middle of it, but I really do believe that staying positive plays a big role in the healing process.
I would like to chime in about recovering. I got Lyme in 2014, I believe, although the tick bite was in 2013. I was sick for a decade. I had several very positive WB tests over a period of years. The worst period was 2015-2020.
I was misdiagnosed for 2-3 years (migraines, chronic fatigue). After that, I saw at least a half dozen Lyme specialists. (I would be here for an hour if I counted all doctors I saw before I got the right diagnosis). I had multiple AB courses for years. (I was positive for Sjögrens and Bartonella also.)
I wanted to share (briefly) my recovery story - I am now much, much better. Before I got Lyme Disease, I loved hiking and mountain climbing. During the period when I was the sickest, I could not walk up my own driveway without extreme fatigue. As many people know, even driving to the grocery store was a huge problem. (In addition to fevers, sweating, fatigue, and near zero immune protection from ordinary colds, I had chronic trigeminal neuralgia type headaches from Lyme. Some weeks I could not go out at all. Or I had to pull over and stop the car due to headache.) This went on for years. As I tried to recover, I would get Lyme symptoms again after attempting to exercise.
Anyway, this summer I climbed my first Adirondack high peaks since getting Lyme. (It was Cascade and Porter, which are considered the easiest, but it was such a major accomplishment for me. I started to get tears of joy.) I have been hiking most weekends and feeling better.
I won’t lie and say my life is the same as before Lyme. I definitely do not have the stamina I had before Lyme. I still have symptoms at times. But apparently, it is possible to significantly recover, which is something I doubted for many years.
Wishing everyone here recovery (as fast as possible). You’re in my prayers.
always good to hear a recovery story - well done and thanks for posting
every journey is different - but it would be interesting to hear what main treatments or factors you attribute your recovery to - if you would like to share.
wishing you continued improving health and energy