Having trouble getting all the fluid out of the Rowasa enema. What am I doing wrong?
ellen
Ellen
diagnosed pancolitis mild to mod Sept. 2009
On Pred since March 20, 2009 -- now 30 mg.
12 400 mg. Asacol daily, 1000 mg. Canasa - daily, Mesaline enemas nightly; 1 tbs psyllium husk powder VSL-#3 -- one packet daily, multi-vitamin; 1200 mg calcium plus D, 1000 mg fish oil.Biotin 5,000 (hair loss)
Eliminated dairy, red meat,alcohol caffeine, spicy, fried, greasy, vinegar and citrus.
Bipolar - Lamictal 200 mg, trileptal (900 mg) trazadone 25 mg. and Klonipin (whatever it takes)
I don't get "all" the fluid out, either, but most of it.
First I squeeze the middle of the bottle until the sides collapse in so as to touch each other, then I move my hand and fold the flat bottom of the bottle down onto the bottle, then I kind of roll the bottle up, from the bottom.
I assume it's made with plenty in it, figuring most of us won't completely empty it.
Age 54. Diagnosed UP 1983, Azulphidine
Diagnosed UC 1986 Prednisone almost 2 years
Asacol - 16 pills/day, cortenemas, Rowasa
Metamucil - 2 doses/day since '86, and psyllium seed powder
VSL#3DS, Multivitamin, Calcium and D, Flax Seed Oil
homemade yogurt each day
Ryzolt for arthritis pain
Son, 16, dx pancolitis 2007
First I squeeze the middle of the bottle until the sides collapse in so as to touch each other, then I move my hand and fold the flat bottom of the bottle down onto the bottle, then I kind of roll the bottle up, from the bottom.
I assume it's made with plenty in it, figuring most of us won't completely empty it.
Age 54. Diagnosed UP 1983, Azulphidine
Diagnosed UC 1986 Prednisone almost 2 years
Asacol - 16 pills/day, cortenemas, Rowasa
Metamucil - 2 doses/day since '86, and psyllium seed powder
VSL#3DS, Multivitamin, Calcium and D, Flax Seed Oil
homemade yogurt each day
Ryzolt for arthritis pain
Son, 16, dx pancolitis 2007
I use the roll up trick, too but still never get all of the liquid. Honestly, I never worried about it I figure they probably put a little extra in there.
Jennifer
Originally Diagnosed: 7/08 Mild left sided UC
Current Flare started 12/26/09: Severe Inflammation through Entire Colon, some patchiness indicates might be Crohn's promethius test coming later this month.
Current Meds: Prednisone 60mg, starting Imuran 3/5/2010.
Past Meds: Mesalamine, Canasa, Hydrocortisone Enema & Supp. Asacol.
I've hit rock bottom. Trying to get healthy!
Jennifer
Originally Diagnosed: 7/08 Mild left sided UC
Current Flare started 12/26/09: Severe Inflammation through Entire Colon, some patchiness indicates might be Crohn's promethius test coming later this month.
Current Meds: Prednisone 60mg, starting Imuran 3/5/2010.
Past Meds: Mesalamine, Canasa, Hydrocortisone Enema & Supp. Asacol.
I've hit rock bottom. Trying to get healthy!
I just figured mine out..I didnt even know what I was doing at first but now its easy..I just squeeze slowly in a fist till it gets smaller and smaller and keep squishing till its as flast as i can get it
27 yr old female
27 yr old female
Pancolitis since Aug 2006
Been a constant battle since Feb 08 after the birth of my son
Salofalk 8 pills a day
Salofalk 4g Enemas nightly, started March 9/2010
Fish oil, VSL, Vit D, Vit C, Vit B12 3x weekly , reduced red meat, refined grains and dairy
Current Status: 1-3 BM a day, no blood, urgency issues getting better
I did the same as songlady and Ugh when the Salofalk bottles were the same as the Rowasa.
Krissy...yeah, technique is everything. Oh, btw, the last enema I did was very hard to squeeze. Strangely, I thought of you while doing it. lol! Interesting what reminds us of whom...but in a nice way!
q
Krissy...yeah, technique is everything. Oh, btw, the last enema I did was very hard to squeeze. Strangely, I thought of you while doing it. lol! Interesting what reminds us of whom...but in a nice way!
q
LOL! Its nice to know you are thinking of me..even while doing your enemas haha
I dont warm it anymore and I dont shake more then 10 times up and down..that did it for me..
now i want to see them work!!!
27 yr old female
I dont warm it anymore and I dont shake more then 10 times up and down..that did it for me..
now i want to see them work!!!
27 yr old female
Pancolitis since Aug 2006
Been a constant battle since Feb 08 after the birth of my son
Salofalk 8 pills a day
Salofalk 4g Enemas nightly, started March 9/2010
Fish oil, VSL, Vit D, Vit C, Vit B12 3x weekly , reduced red meat, refined grains and dairy
Current Status: 1-3 BM a day, no blood, urgency issues getting better
Once in a while, what with various generics and suppliers over the years, I'll get a box of bottles that are a stiffer plastic, and those are real buggers to squeeze. Ho well....
Age 54. Diagnosed UP 1983, Azulphidine
Diagnosed UC 1986 Prednisone almost 2 years
Asacol - 16 pills/day, cortenemas, Rowasa
Metamucil - 2 doses/day since '86, and psyllium seed powder
VSL#3DS, Multivitamin, Calcium and D, Flax Seed Oil
homemade yogurt each day
Ryzolt for arthritis pain
Son, 16, dx pancolitis 2007
Age 54. Diagnosed UP 1983, Azulphidine
Diagnosed UC 1986 Prednisone almost 2 years
Asacol - 16 pills/day, cortenemas, Rowasa
Metamucil - 2 doses/day since '86, and psyllium seed powder
VSL#3DS, Multivitamin, Calcium and D, Flax Seed Oil
homemade yogurt each day
Ryzolt for arthritis pain
Son, 16, dx pancolitis 2007
I too want to see them work, KrissyUC, especially for someone with pancolitis.
Ellen
diagnosed pancolitis mild to mod Sept. 2009
On Pred since March 20, 2009 -- now 30 mg.
12 400 mg. Asacol daily, 1000 mg. Canasa - daily, Mesaline enemas nightly; 1 tbs psyllium husk powder VSL-#3 -- one packet daily, multi-vitamin; 1200 mg calcium plus D, 1000 mg fish oil.Biotin 5,000 (hair loss)
Eliminated dairy, red meat,alcohol caffeine, spicy, fried, greasy, vinegar and citrus.
Bipolar - Lamictal 200 mg, trileptal (900 mg) trazadone 25 mg. and Klonipin (whatever it takes)
Ellen
diagnosed pancolitis mild to mod Sept. 2009
On Pred since March 20, 2009 -- now 30 mg.
12 400 mg. Asacol daily, 1000 mg. Canasa - daily, Mesaline enemas nightly; 1 tbs psyllium husk powder VSL-#3 -- one packet daily, multi-vitamin; 1200 mg calcium plus D, 1000 mg fish oil.Biotin 5,000 (hair loss)
Eliminated dairy, red meat,alcohol caffeine, spicy, fried, greasy, vinegar and citrus.
Bipolar - Lamictal 200 mg, trileptal (900 mg) trazadone 25 mg. and Klonipin (whatever it takes)
Ellen are you not doing ANY better at all..really thinki about it..IS THERE NO DIFFERENCE? If there is even the slightest I would keep trying..I was thinking the same as you..then I decided to just keep going with it cause I did notice a slight improvement....
27 yr old female
27 yr old female
Pancolitis since Aug 2006
Been a constant battle since Feb 08 after the birth of my son
Salofalk 8 pills a day
Salofalk 4g Enemas nightly, started March 9/2010
Fish oil, VSL, Vit D, Vit C, Vit B12 3x weekly , reduced red meat, refined grains and dairy
Current Status: 1-3 BM a day, no blood, urgency issues getting better
It didn't reverse anything once I went into a flare. I started it a week before everything got really bad.
My colon up top was on fire painwise, so I don't know what an enema would do at that point.
I'm doing it now religiously but I'm on steroids so I don't know what good it is doing. I don't mind doing them at all.
I'm having 4-5 BMs, some diarrhea, no blood right now. But again I'm on 40 mg pred. In a little over a week I start to taper. Trying very hard to heal and maintain on Asacol, supp and enemas
Ellen
diagnosed pancolitis mild to mod Sept. 2009
On Pred since March 20, 2009 -- now 30 mg.
12 400 mg. Asacol daily, 1000 mg. Canasa - daily, Mesaline enemas nightly; 1 tbs psyllium husk powder VSL-#3 -- one packet daily, multi-vitamin; 1200 mg calcium plus D, 1000 mg fish oil.Biotin 5,000 (hair loss)
Eliminated dairy, red meat,alcohol caffeine, spicy, fried, greasy, vinegar and citrus.
Bipolar - Lamictal 200 mg, trileptal (900 mg) trazadone 25 mg. and Klonipin (whatever it takes)
My colon up top was on fire painwise, so I don't know what an enema would do at that point.
I'm doing it now religiously but I'm on steroids so I don't know what good it is doing. I don't mind doing them at all.
I'm having 4-5 BMs, some diarrhea, no blood right now. But again I'm on 40 mg pred. In a little over a week I start to taper. Trying very hard to heal and maintain on Asacol, supp and enemas
Ellen
diagnosed pancolitis mild to mod Sept. 2009
On Pred since March 20, 2009 -- now 30 mg.
12 400 mg. Asacol daily, 1000 mg. Canasa - daily, Mesaline enemas nightly; 1 tbs psyllium husk powder VSL-#3 -- one packet daily, multi-vitamin; 1200 mg calcium plus D, 1000 mg fish oil.Biotin 5,000 (hair loss)
Eliminated dairy, red meat,alcohol caffeine, spicy, fried, greasy, vinegar and citrus.
Bipolar - Lamictal 200 mg, trileptal (900 mg) trazadone 25 mg. and Klonipin (whatever it takes)
Hey Ellen, don't forget that I have pancolitis and the enemas made a huge difference for me.
Co-Moderator, UC Forum
Co-Moderator, UC Forum
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son
Diagnosed with pancolitis on 1/30/09
Meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, multivitamin. Used prednisone (starting dose 40 mg) to get into remission.
You're my inspiration!!
Ellen
diagnosed pancolitis mild to mod Sept. 2009
On Pred since March 20, 2009 -- now 30 mg.
12 400 mg. Asacol daily, 1000 mg. Canasa - daily, Mesaline enemas nightly; 1 tbs psyllium husk powder VSL-#3 -- one packet daily, multi-vitamin; 1200 mg calcium plus D, 1000 mg fish oil.Biotin 5,000 (hair loss)
Eliminated dairy, red meat,alcohol caffeine, spicy, fried, greasy, vinegar and citrus.
Bipolar - Lamictal 200 mg, trileptal (900 mg) trazadone 25 mg. and Klonipin (whatever it takes)
Ellen
diagnosed pancolitis mild to mod Sept. 2009
On Pred since March 20, 2009 -- now 30 mg.
12 400 mg. Asacol daily, 1000 mg. Canasa - daily, Mesaline enemas nightly; 1 tbs psyllium husk powder VSL-#3 -- one packet daily, multi-vitamin; 1200 mg calcium plus D, 1000 mg fish oil.Biotin 5,000 (hair loss)
Eliminated dairy, red meat,alcohol caffeine, spicy, fried, greasy, vinegar and citrus.
Bipolar - Lamictal 200 mg, trileptal (900 mg) trazadone 25 mg. and Klonipin (whatever it takes)
hahaha. Gonna serenade me with a version of that song????? :)
Co-Moderator, UC Forum
Co-Moderator, UC Forum
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son
Diagnosed with pancolitis on 1/30/09
Meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, multivitamin. Used prednisone (starting dose 40 mg) to get into remission.
What I do is before I actually put it in I squeeze out all the air (it makes it more comfortable), then i put it up (which I hate haha), then i squeeze it from the bottom. It works quite well for me
UC diagnosed November '08
Age: High School
Prescriptions: Colazal (5x2 daily) Iron (2 daily) VSL#3 DS (2 daily)
Extras: Fish Oil, Curamin, multivitamin, bee propolis
Probiotics: Florastor, Primal defense (Garden of Life)
Also: Partially on Maker's Diet,
Always looking for new and good ideas! :D
Its a LONG AND WINDING ROAD but you just gotta LET IT BE you may need some HELP but it will be worth it in THE END (Beatles songs hehe)
UC diagnosed November '08
Age: High School
Prescriptions: Colazal (5x2 daily) Iron (2 daily) VSL#3 DS (2 daily)
Extras: Fish Oil, Curamin, multivitamin, bee propolis
Probiotics: Florastor, Primal defense (Garden of Life)
Also: Partially on Maker's Diet,
Always looking for new and good ideas! :D
Its a LONG AND WINDING ROAD but you just gotta LET IT BE you may need some HELP but it will be worth it in THE END (Beatles songs hehe)
singnrun said...
What I do is before I actually put it in I squeeze out all the air (it makes it more comfortable), then i put it up (which I hate haha), then i squeeze it from the bottom. It works quite well for me
What I do is before I actually put it in I squeeze out all the air (it makes it more comfortable), then i put it up (which I hate haha), then i squeeze it from the bottom. It works quite well for me
I do the same thing as it keep that air out of my colon which helps keep the liquid up there/reducing the urge
Dx'd with moderate Pancolits 05/07 better with Pentasa and Cortifoam.
I also take Probiotics, Fish Oil, Curcumin, Benefiber and cannot tolerate
artificial sweetners (never could even before UC) I also stay away from products with high fructose corn syrup.
UC Forum Co-Moderator
I am not a healthcare provider. I am offering support and guidance based upon my own conclusions and/or research. ALWAYS consult with a qualified healthcare provider.
bbc said...
I do the same thing as it keep that air out of my colon which helps keep the liquid up there/reducing the urge
singnrun said...
What I do is before I actually put it in I squeeze out all the air (it makes it more comfortable), then i put it up (which I hate haha), then i squeeze it from the bottom. It works quite well for me
What I do is before I actually put it in I squeeze out all the air (it makes it more comfortable), then i put it up (which I hate haha), then i squeeze it from the bottom. It works quite well for me
I do the same thing as it keep that air out of my colon which helps keep the liquid up there/reducing the urge
27 yr old female
Pancolitis since Aug 2006
Been a constant battle since Feb 08 after the birth of my son
Salofalk 8 pills a day
Salofalk 4g Enemas nightly, started March 9/2010
Fish oil, VSL, Vit D, Vit C, Vit B12 3x weekly , reduced red meat, refined grains and dairy
Current Status: 1-2 BM a day, no blood, urgency issues getting better...I think these enemas just might be WORKING...no jinx..fingers crossed...
journey2health said...
It didn't reverse anything once I went into a flare. I started it a week before everything got really bad.
My colon up top was on fire painwise, so I don't know what an enema would do at that point.
I'm doing it now religiously but I'm on steroids so I don't know what good it is doing. I don't mind doing them at all.
I'm having 4-5 BMs, some diarrhea, no blood right now. But again I'm on 40 mg pred. In a little over a week I start to taper. Trying very hard to heal and maintain on Asacol, supp and enemas
It didn't reverse anything once I went into a flare. I started it a week before everything got really bad.
My colon up top was on fire painwise, so I don't know what an enema would do at that point.
I'm doing it now religiously but I'm on steroids so I don't know what good it is doing. I don't mind doing them at all.
I'm having 4-5 BMs, some diarrhea, no blood right now. But again I'm on 40 mg pred. In a little over a week I start to taper. Trying very hard to heal and maintain on Asacol, supp and enemas
That is my goal too..just the 5asa, I had my bouts of steroids and humira and I dont care for them anymore..hopefully my body agrees too..
I would keep going with them..how many asacol are you taking? maybe up that and it will take over once you stop the roids..
27 yr old female
27 yr old female
Pancolitis since Aug 2006
Been a constant battle since Feb 08 after the birth of my son
Salofalk 8 pills a day
Salofalk 4g Enemas nightly, started March 9/2010
Fish oil, VSL, Vit D, Vit C, Vit B12 3x weekly , reduced red meat, refined grains and dairy
Current Status: 1-2 BM a day, no blood, urgency issues getting better...I think these enemas just might be WORKING...no jinx..fingers crossed...
UCKrissy, I can't up the Asacol past 12 that I'm already on, which concerns me. If I start to flare and I'm maxed out on supps, enemas and asacol, where can I go from there?
I also had another question. I guess I haven't been shaking the enema bottle. Need to do that. Hope I haven't messed things up because I haven't.
Which method is preferrable in terms of getting the most medicine in the right place. Butt on side or butt in air. Also, what is this about, bending the bottle back? I don't understand that.
Ellen
diagnosed pancolitis mild to mod Sept. 2009
On Pred since March 20, 2009 -- now 30 mg.
12 400 mg. Asacol daily, 1000 mg. Canasa - daily, Mesaline enemas nightly; 1 tbs psyllium husk powder VSL-#3 -- one packet daily, multi-vitamin; 1200 mg calcium plus D, 1000 mg fish oil.Biotin 5,000 (hair loss)
Eliminated dairy, red meat,alcohol caffeine, spicy, fried, greasy, vinegar and citrus.
Bipolar - Lamictal 200 mg, trileptal (900 mg) trazadone 25 mg. and Klonipin (whatever it takes)
I also had another question. I guess I haven't been shaking the enema bottle. Need to do that. Hope I haven't messed things up because I haven't.
Which method is preferrable in terms of getting the most medicine in the right place. Butt on side or butt in air. Also, what is this about, bending the bottle back? I don't understand that.
Ellen
diagnosed pancolitis mild to mod Sept. 2009
On Pred since March 20, 2009 -- now 30 mg.
12 400 mg. Asacol daily, 1000 mg. Canasa - daily, Mesaline enemas nightly; 1 tbs psyllium husk powder VSL-#3 -- one packet daily, multi-vitamin; 1200 mg calcium plus D, 1000 mg fish oil.Biotin 5,000 (hair loss)
Eliminated dairy, red meat,alcohol caffeine, spicy, fried, greasy, vinegar and citrus.
Bipolar - Lamictal 200 mg, trileptal (900 mg) trazadone 25 mg. and Klonipin (whatever it takes)
LOL Ellen you sound like me now..
nevermind bending the bottle back just put it up there and squeeze gently but firm and continuously..thats what i have learned. i do butt on side cause i want to make sure some stays in the rectum.
Just shake it a few times as you would with other things thay indicate shaking is required..dont overshake though.
27 yr old female
nevermind bending the bottle back just put it up there and squeeze gently but firm and continuously..thats what i have learned. i do butt on side cause i want to make sure some stays in the rectum.
Just shake it a few times as you would with other things thay indicate shaking is required..dont overshake though.
27 yr old female
Pancolitis since Aug 2006
Been a constant battle since Feb 08 after the birth of my son
Salofalk 8 pills a day
Salofalk 4g Enemas nightly, started March 9/2010
Fish oil, VSL, Vit D, Vit C, Vit B12 3x weekly , reduced red meat, refined grains and dairy
Current Status: 1-2 BM a day, no blood, urgency issues getting better...I think these enemas just might be WORKING...no jinx..fingers crossed...
So you are saying the preferrable method is on the side, eh?
Ellen
diagnosed pancolitis mild to mod Sept. 2009
On Pred since March 20, 2009 -- now 40 mg.
12 400 mg. Asacol daily, 1000 mg. Canasa - daily, Mesaline enemas nightly; 1 tbs psyllium husk powder VSL-#3 -- one packet daily, multi-vitamin; 1200 mg calcium plus D, 1000 mg Biotin 5,000 (hair loss)
Eliminated dairy, red meat,alcohol caffeine, spicy, fried, greasy, vinegar and citrus.
Bipolar - Lamictal 200 mg, Zyprexa 5 mg.
Anxiety - Klonipin
Sleeping - Lunesta.
Ellen
diagnosed pancolitis mild to mod Sept. 2009
On Pred since March 20, 2009 -- now 40 mg.
12 400 mg. Asacol daily, 1000 mg. Canasa - daily, Mesaline enemas nightly; 1 tbs psyllium husk powder VSL-#3 -- one packet daily, multi-vitamin; 1200 mg calcium plus D, 1000 mg Biotin 5,000 (hair loss)
Eliminated dairy, red meat,alcohol caffeine, spicy, fried, greasy, vinegar and citrus.
Bipolar - Lamictal 200 mg, Zyprexa 5 mg.
Anxiety - Klonipin
Sleeping - Lunesta.