Dx 6 years ago Age 64 [BRCA2+] bone metastatic PC. Never thought I’d see this day. Had a really great party.
Shortly after my Dx I made this “Save the Date” Card for my 75th B Day. That was 100% a joke. That would require 11 years survival. Seriously, it really was A JOKE
Is it too much to ask for 11 years survival w/ advanced stage IV w/ distant bone Mets? That, too, was a joke, but one Dr. emphatically said “NO!”
Time will tell. I’m still in pretty good shape after six years. I’m not giving odds yet on my making it to 75. The important thing is it’s not a joke any more.
To my Fellows: Fight hard as best you can [no one can do everything—do what you can with diet, exercise and just taking care of yourself].
Do a bit of reading so that you understand Treatment options that are available.
Lastly, really try to keep a positive attitude. You’re ALIVE! Look at the sky, smell the air, look around. What’s that worth?
Think about what you have, not what you have lost.
Respectfully, your Colleague
12/16 T4M1b GS=8,PSA=240.Mets:femur,ribs,pelvis,scapula,spine. ADT 2/17.Docetaxel:NADIR=0.7@13mos; PROSTVAC NCT02649855; PROVENGE 3/18. RALP/5/18; Zytiga8/18-3/19. BAT:3/19-6/19.Castrate resistant 5/20.PSA MAX=2.0.ENZA(24 days 7/20) PSA=0.2.Stop Enzo for 8 mo.Resume for 12 days.PSA=0.6]. At 11/23/22 on Ola.
BAT(‘21) Ola 2mos. ‘22
Happy Birthday! You have a great story that offers hope for so many with advanced Pca. I hope there are many more birthdays in your future.
Happy 70th!! With your attitude…see you for 75 and longer.
Rising PSA
11/12 1.98
11/13 1.95
9/15 3.28
10/16 5.94
1/17 3.0 (different lab)
TRUS 1/17
Bx: 3 of 12 cores adenocarcinoma Gleason 6 (3+3)
all on left side
DOB 7/21/47 good health.
Age 69 @ Dx
SBRT by Dr. Tendulcar @
Cleveland Clinic 6/23/17
Reduced ejaculate is only side effect. Everything works
PSA’s post SBRT 1.1, 1.1, .9, 1.8, 2.7, 1.0, 0.3, 0.6, 0.8, 0.4, 0.4
Rising PSA
11/12 1.98
11/13 1.95
9/15 3.28
10/16 5.94
1/17 3.0 (different lab)
TRUS 1/17
Bx: 3 of 12 cores adenocarcinoma Gleason 6 (3+3)
all on left side
DOB 7/21/47 good health.
Age 69 @ Dx
SBRT by Dr. Tendulcar @
Cleveland Clinic 6/23/17
Reduced ejaculate is only side effect. Everything works
PSA’s post SBRT 1.1, 1.1, .9, 1.8, 2.7, 1.0, 0.3, 0.6, 0.8, 0.4, 0.4
Happy Birthday and happy thanksgiving to you, Anb.
Mic
Mic
H-A-P-P-Y B-I-R-T-H-D-A-Y, ANB!
CELEBRATE The Day, In A Special Way!
C-Y-C-L-O-N-E ~ # Iowa State University
CELEBRATE The Day, In A Special Way!
C-Y-C-L-O-N-E ~ # Iowa State University
Happy Birthday ÀNB.
My original survival goal from 7 years ago was 65. Since it seems probable that I will make it, I have revised it to 70. When I first started this quagmire the current PCa management strategies didn't exist. Hopefully the treatment improvements will continue.
Many more Thanksgivings and birthdays to come.
Part I 2015, Age 54. Age now 62
PSA: 20.8 Bx: All cores G7 (4+3)
RALP & Adjuvant RT
Pathology: G8 (4+4)+5
PSA nadir: 0.1, steady increase
Part II 2019
Lupron/Xtandi, PSA: <0.01
2021: Reclast (annual infusion)
My original survival goal from 7 years ago was 65. Since it seems probable that I will make it, I have revised it to 70. When I first started this quagmire the current PCa management strategies didn't exist. Hopefully the treatment improvements will continue.
Many more Thanksgivings and birthdays to come.
Part I 2015, Age 54. Age now 62
PSA: 20.8 Bx: All cores G7 (4+3)
RALP & Adjuvant RT
Pathology: G8 (4+4)+5
PSA nadir: 0.1, steady increase
Part II 2019
Lupron/Xtandi, PSA: <0.01
2021: Reclast (annual infusion)
Happy Birthday!!! Here is to many more!!!!
Happy 70th! I have your 75th on my calendar. Can't wait!
Dx 5/18/17
11/12 cores 2 4+4
RALP 7/27/17;3 pos nodes
psa post op 0.15 to 0.28
scan=multiple bone mets
Clev Clinic ups to G9
CClinic MO+my MO say ADT+Zytiga+Pred
lupron 11/17/17
zytiga 12/15
psa 12/28 0.03
4/4/18=<0.01
7/3=<0.01
stop Zytiga 7/16 bad liver #'s
9/11/18 restart Zytiga 1/2 dose
10/5=<0.01
10/30 start 3/4 dose
1/19 through 7/22=<0.01
Dx 5/18/17
11/12 cores 2 4+4
RALP 7/27/17;3 pos nodes
psa post op 0.15 to 0.28
scan=multiple bone mets
Clev Clinic ups to G9
CClinic MO+my MO say ADT+Zytiga+Pred
lupron 11/17/17
zytiga 12/15
psa 12/28 0.03
4/4/18=<0.01
7/3=<0.01
stop Zytiga 7/16 bad liver #'s
9/11/18 restart Zytiga 1/2 dose
10/5=<0.01
10/30 start 3/4 dose
1/19 through 7/22=<0.01
Happy 70th Birthday ANB! You are an inspiration to all of us fighting this disease. Keep up the positive attitude and you will see 75 and we will be celebrating with you!
Ron (Boomer)
69 Y.O.; DX 11/3/2021 Gleason 4+3=7, R Base 80% involved, R mid 1% involved, R Apex, L Base, mid, Apex Benign; 3/2/22 JHU upgraded to 4+5=9; 18 Mo. ADT2 started 2/3/22; PSA: 7/23/2020 4.34, 8/18/2021 5.86, 10/18/21 6.70, 3/24/22 3.24, 5/18/22 0.60, 11/18/22 <0.06; 6/15/22-8/16/22 IMRT 25 fractions 160 cGy prostate bed, 19 fractions 180 cGy Prostate
Ron (Boomer)
69 Y.O.; DX 11/3/2021 Gleason 4+3=7, R Base 80% involved, R mid 1% involved, R Apex, L Base, mid, Apex Benign; 3/2/22 JHU upgraded to 4+5=9; 18 Mo. ADT2 started 2/3/22; PSA: 7/23/2020 4.34, 8/18/2021 5.86, 10/18/21 6.70, 3/24/22 3.24, 5/18/22 0.60, 11/18/22 <0.06; 6/15/22-8/16/22 IMRT 25 fractions 160 cGy prostate bed, 19 fractions 180 cGy Prostate