New guy. Had UC. Meds stopped working or did not work at all. Had colon removed in December. Next surgery is in May. Surgeon says since I have been off meds, especially the prednisone and immunosupressants, he is going to form the pouch and reconnect in one surgery. Has anyone else done this?
Hi there, this forum is extremely slow, however, there are some members in the UC forum with j-pouches, so you may want to ask your questions in that forum.
Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums
Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums
A lot of people do it in 2 steps, but typically they do the removal and creation in one step and the reconnection as the second step. It's great that you're going to get to have surgery complete in two steps rather than three. i did three steps and it took quite a while. I would have jumped at the opportunity to be done after the second step, but I would have probably wanted to ask for questions. Does the newly built pouch need time to heal? That's what I always thought, then again, there are rare people who get it done in one step!
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free
Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish
Moderator: UC
Currently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free
Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish
I had one and it failed. Because they left a piece of my rectum in there and it had uc. I'm fine with the bag.
1998 diagnosis of fibromyalgia
Aug 2011 half of colon removed from gangrene.
Nov 2011 illiostomy takedown and diagnoised with Ulcerative colitis
Had colon removed 12/17/13
J-pouch surgery April 15 2014
Reconnect Dec 17 2014
Constant cuffitis.
Dec 4 2017 happy to have perm ileostomy
but keep getting Pyroderma.
Also have Meineres, insomnia, vertigo, dystonia and migraines.
1998 diagnosis of fibromyalgia
Aug 2011 half of colon removed from gangrene.
Nov 2011 illiostomy takedown and diagnoised with Ulcerative colitis
Had colon removed 12/17/13
J-pouch surgery April 15 2014
Reconnect Dec 17 2014
Constant cuffitis.
Dec 4 2017 happy to have perm ileostomy
but keep getting Pyroderma.
Also have Meineres, insomnia, vertigo, dystonia and migraines.