Hi everyone.
Do i have the record for going the longest amount of time without getting a leak?
I have had my Ileostomy for 17 months and i can honestly say that until last night i had never ever got even one leak.
That all changed though,because last night just before bed,i went to empty and found the left side of my one piece bag was peeling off,and i had mess everywhere 
Oh well i suppose it had to happen at some point.I am sooo glad that i was at home though.
Oh well i suppose it had to happen at some point.I am sooo glad that i was at home though.Sue
We've all had some leaks, and some embarrasing moment, my worst was the clip to the bag breaking and spilling down my leg at work, I survived though, that was 20+ years ago.
I think that is why you get a new clip, I use them now.
I keep a little squeeze container of Karaya powder in my car and desk, if I had a purse, it would be there. when I am away and have a leak I go into the rest room and lift the edge and squirt the powder in. I seals it up until I get home.
I keep getting leaks. Sometime I will change it and go for 4 days without a leak, then there are other times when I change it and it leaks every 4 to 6 hours. I try to be tolerant, but sometimes I just want to cry because I keep going through my paste and supplies so fast. Not to mention the mess and changing clothes and sheets. Any suggestions? I keep doing the same thing and sometimes success and other times I'm changing my pouch every 3 to 4 hours.
Hi cross stitch.
I am so sorry that you are having so many problems with leaks 
i can imagine that it could realy get you down at times.
what type of apliance do you use?and have you ever tried somthing like the Eakin seal.You fit it snugly around the stoma before putting on your bag.I have heard that it has helped many people because it is so good at preventing leaks.
Do you have a stoma nurse?or if not ask your supplier if they can get you the Eakin or somthing similer.The Eakin is made by Salters i think but other company's do things much the same.
Sue
Hi Cross Stitch
So sorry to hear about your leaks. I know how leaks can affect you. You didn't say how long you've had the ostomy. I agree with Sue about contacting ET nurse. After my surgery the leaks were constant.I determined that my stoma was retracting not so that it was flush but enough so that when I was lying down the stool was going under the wafer. I can only tell you what worked for me. I changed to a wafer with convexity.I also use the Eakin seals. I hope you figure this out .
Leslie
I used to leak under the flange a lot in the first month I had my stoma. My nurse changed me over to a convex flange and no leaks since- over 2 years now.
26, from the UK, Crohn's-colitis and ileostomy.
I've had my stoma for 2 months. For the first 6 weeks I really had no problems, but for the last 10 days I've had an average of a leak a day. The ET nurse had a box of Hollister wafers sent to me (model #14603). She also started me using the Eakin cohesiveseals. I used this combination for the first time yesterday, but within 24 hours I had another leak. The leak is in the same place everytime. Does anyone know if the wafter I've started using is a convex one? I'm pretty much at wits end. The nurse was pretty confident this would stop the leaks, but here I am. Any advise, suggestions, etc., would be welcome. Thanks.
gerrye, hi i have a urostomy and a colostomy and i was having leak after leak every day . i usualy lay down when changing the appliances, then as soon as i stood up, a leak!! so i went ot the dr , and i found out that one side of my belly was smaller than the other , so i had ot have fat injected into the side that was smaller so that the flange would fit flush to my skin . and i also switched to using the stomahesive paste strips and eakin cohesive seals . i love it and i hardly leak at all now!! . i have had my ostomys since birth , i am now 34 . write me and let me know if any of this helps!!! pagirl .
Since I posted my note on 9/9, the ET nurse has started me using a convex wafer and the Eakin seals. It has only been 5 days, but so far no leaks. I changed the first one after 3 days, and am on the second day with the 2d one. I'll take 3 solid no leak days between changes and be happy. I'm certainly not getting cocky about it, but so far so good.
Hey everyone,
I've had my ileostomy for 19 yeaars, and have certainly had my share of disasters. I had a stoma revision after my ostomy surgery because it was too long and that was creating problems. I did find what I think are the best products. I haven't used a flange in many years, since they cause lots of problems, the bag pops off, etc. I use Active Life bags form Convatec, and Stomahesive paste, also from Convatec. The bags are one piece, which makes them strong, and they don't pop off. Once the stoma is settled from surgery, the paste and bags make for a great, reliable seal. The bags are also really thin and flush against the body, so you can wear lots of stuff and get away with it. This systen has really worked for me, and I've been lucky - no public disasters in many years. Of course leaks do occasionally happen at night, usually because the clip pops off! Everyone tries a bunch of things and eventually finds solutions which are best for them. I really recommend the Active Life one-piece though. Two-piece bags were a horror for me.
I've had my ileostomy for 19 yeaars, and have certainly had my share of disasters. I had a stoma revision after my ostomy surgery because it was too long and that was creating problems. I did find what I think are the best products. I haven't used a flange in many years, since they cause lots of problems, the bag pops off, etc. I use Active Life bags form Convatec, and Stomahesive paste, also from Convatec. The bags are one piece, which makes them strong, and they don't pop off. Once the stoma is settled from surgery, the paste and bags make for a great, reliable seal. The bags are also really thin and flush against the body, so you can wear lots of stuff and get away with it. This systen has really worked for me, and I've been lucky - no public disasters in many years. Of course leaks do occasionally happen at night, usually because the clip pops off! Everyone tries a bunch of things and eventually finds solutions which are best for them. I really recommend the Active Life one-piece though. Two-piece bags were a horror for me.
You are so lucky! I had a colostomy done one month ago, and they still haven't found anything to stop me from leaking! I am very discouraged and stressed out. Home health care has to come everyday to change me!
My ET nurse suggested not only the Hollister convex wafers, using skin prep under the wafer, and using a belt attached to the flanges of the bag to hold things tight to my tummy. I can get several days this way before leaking on the bottom of the wafer because of the position of my stoma. Hope this helps!
TracyE
TracyE
I made it four months without leaking. Until about 3 weeks ago. Now I'm averaging one leak a week. Last night was the worst. The first two happened either when I was at the end of my shift or when I was in the car on my way home from work. Last night happened in the middle of a movie at the cinema! :( Needless to say I didn't see much of the movie.
I was going to ask how often most people get leaks, and if what I was experiencing was normal, but from reading this, It looks like some people can go for years without leaks! Lucky! :p
Male, 22, diagnosed with Crohn's at 13.
Permanent ileostomy in February 2010.
Medication:Salofalk, Infliximab infusions, Humira injections .
On and off Prednisone for years. Currently only at 5mg
Loperamide (aka Gastro-stop) when needed.
Favourite Quote: Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.
I was going to ask how often most people get leaks, and if what I was experiencing was normal, but from reading this, It looks like some people can go for years without leaks! Lucky! :p
Male, 22, diagnosed with Crohn's at 13.
Permanent ileostomy in February 2010.
Medication:
On and off Prednisone for years. Currently only at 5mg
Loperamide (aka Gastro-stop) when needed.
Favourite Quote: Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.
Wasteful- you have home care changing your appliance every day a MONTH after your surgery?? Wow. When home care was visting me I was changing my stuff right away, in fact I wasn't allowed to be discharged from the hospital until I showed the ET nurse that I could do it by myself.
Have you thought about a convex wafer/flange system? I use the Hollister brand with the Eakin ring under the wafer and wear a belt for the first few hours after a change and i've been fine.
-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
Have you thought about a convex wafer/flange system? I use the Hollister brand with the Eakin ring under the wafer and wear a belt for the first few hours after a change and i've been fine.
-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."
Be aware this thread started in 2004.
Please don't bring up older threads like this. It's much better to start a new thread on your chosen topic otherwise people don't realise that they're responding to people who probably left the board years ago.
Thanks :)
Ileostomy for 34 years due to UC
Moderator of the Ostomy and Psoriasis Forums
_______________________________________________
I'm not a complete idiot - some parts of me are missing!
Please don't bring up older threads like this. It's much better to start a new thread on your chosen topic otherwise people don't realise that they're responding to people who probably left the board years ago.
Thanks :)
Ileostomy for 34 years due to UC
Moderator of the Ostomy and Psoriasis Forums
_______________________________________________
I'm not a complete idiot - some parts of me are missing!
Truth be told, I had the 'community nurse' coming to my house for a little over a month after I got out of hospital (I got out a month after I had the initial surgery). Although the head of the ward only let me out on the condition that they would see me every day to look after the giant hole in my stomach. Eventually it went down to every second day then third then never.
During that time I mainly changed my bag when they were here, not because I needed them, but just out of convenience in doing it all at once (especially considering the fact that the bandage for the hole in my stomach went over parts of the bags base plate.
I went through a magazine today and called some companies for some free samples ( I <3 free samples :p ). So I'll be able to give that a try, although I kinda feel bad doing it wihtout letting my STN know. But it cant hurt!
Although, What is the belt for? And why only wear it for a few hours after changing? Is that similar to the waistband?
Male, 22, diagnosed with Crohn's at 13.
Permanent ileostomy in February 2010.
Medication:Salofalk, Infliximab infusions, Humira injections .
On and off Prednisone for years. Currently only at 5mg
Loperamide (aka Gastro-stop) when needed.
Favourite Quote: Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.
During that time I mainly changed my bag when they were here, not because I needed them, but just out of convenience in doing it all at once (especially considering the fact that the bandage for the hole in my stomach went over parts of the bags base plate.
I went through a magazine today and called some companies for some free samples ( I <3 free samples :p ). So I'll be able to give that a try, although I kinda feel bad doing it wihtout letting my STN know. But it cant hurt!
Although, What is the belt for? And why only wear it for a few hours after changing? Is that similar to the waistband?
Male, 22, diagnosed with Crohn's at 13.
Permanent ileostomy in February 2010.
Medication:
On and off Prednisone for years. Currently only at 5mg
Loperamide (aka Gastro-stop) when needed.
Favourite Quote: Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.