HELLO. I WAS TOLD about 6 YEARS AGO THAT I HAD PD AT 36YRS OLD.I ALSO HAVE HIGH BLOOD PRESSURE GOING BACK ALMOST 20YRS IN THE ARMED FORCES. I HAVE DEPRESSION AND HAVE A VERY HARD TIME SLEEPING. IT FEELS LIKE EVERY YEAR THAT GOES BY ITS A LITTLE HARDER ON ME. THE ONLY THING THAT KEEPS ME GOING IS MY WIFE, AND TWO KIDS AGES 12 AND 10. I TAKE about 23 PILLS A DAY AT 6 DIFFERENT TIMES. FOR PD I'M ON (7) 25/100 PER DAY, (3) .5MG MIRAPIX PER DAY, AND (3) ARTANE A DAY. AND ALL THE OTHER MEDS DAILY FOR DEPRESSION, HIGH BLOOD PRESSURE, ACID REFLEX, SLEEPING PILLS.. I'M ALWAYS TIRED,AND HAVE GOOD DAYS AND BAD DAYS. I STILL GO TO WORK EVERYDAY AT 4AM I DRIVE about 1 HOUR TO WORK AND START AT 5AM. AND STILL WORK FROM 10-11 HOURS A DAY. SOMETIMES IT IS SO HARD TO KEEP GOING. ALMOST LIKE THE WEIGHT OF THE WORLD IS ON MY SHOULDERS. AND TO MAKE IT WORSE MY WIFE LOST HER JOB about 2 YEARS AGO, BUT JUST GOT HIRED BACK TO THE SAME COMPANY 1 MONTH AGO, BUT MAKING SOME 15,000.00 LESS THAN SHE WAS MAKING 2YEARS AGO. SO I'VE BEEN TRYING TO WORK AS MUCH AS I CAN TAKE TO TRY AND MAKE ENDS MEET. MY COMPANY HAS BEEN REAL GOOD TO ME. BUT BECAUSE OF ALL MY PD PROBLEMS AND MEDS I'M ON THEY PUT ME IN THE PARTS ROOM SO I WOULDN'T HAVE TO OPERATE HEAVY EQUIPMENT OR DRIVE BIG TRUCKS ON THE ROAD. BECAUSE OF THE STESS ON THE JOB AND DRIVING SO FAR 2 OF MY DOCTORS WANT ME TO TAKE A MEDICAL RETIREMNT FROM MY UNION AND FIND A PART TIME JOB CLOSE TO HOME. BUT I JUST CAN'T AFFORD IT. I FEEL LIKE I'M IN MY OWN WORLD SOMETIMES OR LOST. MY TASTE AND SMELL ARE GONE. I HAVE SEXUAL PROBLEMS, AND SO MANY MORE THINGS THAT I HAVE NOTICED YEAR AFTER YEAR. SOME TIMES IT JUST REALLY SUCKS. BUT I LOVE MY FAMILY, STILL COACHING MY SON IN BASEBALL AND FOOTBALL, AND LOVE TO HUNT AND FISH, BUT IT'S GETTING HARD FOR ME TO DO THINGS ON MY OWN. WE DID GO TO COOPERTOWN N.Y. FOR A WEEK AND GOT TO WATCH MY SON IN A WEEK LONG TOURNAMENT OF ALMOST 100 TEAMS FROM ACCROSS THE COUNTRY. IT MAKES MY DAY TO WATCH HIM IN HIS SPORTS BECAUSE OF ALL THE TIME I HAVE SPENT WITH HIM OVER THE LAST 7 YEARS PLAYING BASEBALL AND FOOTALL. THATS WHAT KEEPS ME GOING FORWARD. WINNERS NEVER QUITAND QUITERS NEVER WIN. THATS WHAT I LEARNED FROM ONE OF MY DRILL INSTRUCTORS IN MARINE CORPS BOOT CAMP.
Semperfi ~
Sorry to hear about the various things you are dealing with. It is bad enough to have PD, much less to have to struggle with all the others. You do have the right attitude, and rembering the important things in life is crucial to dealing with this disease. I am glad to hear about fellow hunters who suffer with PD too. This will be my first year of bow hunting on a disabilty permit. Don't know how it will go, but you can bet I'll be out there trying!! Keep your spirits up and good luck!
JB
Sorry to hear about the various things you are dealing with. It is bad enough to have PD, much less to have to struggle with all the others. You do have the right attitude, and rembering the important things in life is crucial to dealing with this disease. I am glad to hear about fellow hunters who suffer with PD too. This will be my first year of bow hunting on a disabilty permit. Don't know how it will go, but you can bet I'll be out there trying!! Keep your spirits up and good luck!
JB
jbphotonut
NICE TO HEAR FROM YOU. GOOD LUCK IN THE WOODS. I STARTED USING A CROSS BOW about 4 YEARS AGO. FIRST MORNING I WENT OUT LAST FALL 40 YARDS GREAT 10 POINT.
BEST I'VE GOT IN MICH IN 25 YEARS OF HUNTING. TAKE CARE
Hi my name is diane, i live in the uk. my father has pd that is why i am on this forum, many questions i need to ask so as to help my mother and of course my father. wow! what can i say, and i think i have a bad time, I actually am signed up with the cheshire
lung disease forum, as i have heart and lung problems. i just wanted to say hello to you and your family. at times life can be hard, but we find strength in this although it may be tiring. i wish you all the best. diane.
Semperfi,
I here you loud and clear. I was first diagnosed with PD in early 2005 at the age of 48 and began to progress rapidly. I noticed some odd presentations, problems with blood pressure, urinary incontinence, PD meds not effective at they us to be and the beginning of assorted non traditional muscle spasms and aches, visual problems, taste disturbances, chronic fatique. I was rediagnosed with an atyical form of Parkinson’s Plus called (MSA) Multiple System Atrophy. Ironically, one of the first hallmark symptoms for males is sexual dysfunction. I would highly recommend that you consult with a neurologist that specializes in movement disorders. There are a variety of non-trandition Parkinson’s presentations out there, not all are as progressive as MSA, but sexual dysfunction is a initial presentation for many. Unfortunately, most people do not want to discuss this situation so you rarely see it mentioned.
Good luck. If you diagnosis do not make sense, press on for answers. It took me awhile, as non-traditional Parkison's is rarely discussed. But in actuality, one out of ten Parkinson's patients receive a final diagnosis of atyipcal PD after death. MSA and a whole list of alphabet soup non-traditional atyipcal PD's usually receive a final dx at autopsy. Until then, we are defined as either probable or possible dx's. I finally had to go to a major teaching institute that had nationally known PD expert to receive an accurate dx. Most neurologists just say that we have an "unusual" PD presentation and try a throw everything against the wall and see wwhat sticks approach to treatment. You can do better then that.
Stella Marie
Dx'd with with rare neurodegenerative disease called Multiple System Atrophy.
Blessed are the caregivers for there is a special place for them in heaven and my husband will be sitting at the head of the table.
I here you loud and clear. I was first diagnosed with PD in early 2005 at the age of 48 and began to progress rapidly. I noticed some odd presentations, problems with blood pressure, urinary incontinence, PD meds not effective at they us to be and the beginning of assorted non traditional muscle spasms and aches, visual problems, taste disturbances, chronic fatique. I was rediagnosed with an atyical form of Parkinson’s Plus called (MSA) Multiple System Atrophy. Ironically, one of the first hallmark symptoms for males is sexual dysfunction. I would highly recommend that you consult with a neurologist that specializes in movement disorders. There are a variety of non-trandition Parkinson’s presentations out there, not all are as progressive as MSA, but sexual dysfunction is a initial presentation for many. Unfortunately, most people do not want to discuss this situation so you rarely see it mentioned.
Good luck. If you diagnosis do not make sense, press on for answers. It took me awhile, as non-traditional Parkison's is rarely discussed. But in actuality, one out of ten Parkinson's patients receive a final diagnosis of atyipcal PD after death. MSA and a whole list of alphabet soup non-traditional atyipcal PD's usually receive a final dx at autopsy. Until then, we are defined as either probable or possible dx's. I finally had to go to a major teaching institute that had nationally known PD expert to receive an accurate dx. Most neurologists just say that we have an "unusual" PD presentation and try a throw everything against the wall and see wwhat sticks approach to treatment. You can do better then that.
Stella Marie
Dx'd with with rare neurodegenerative disease called Multiple System Atrophy.
Blessed are the caregivers for there is a special place for them in heaven and my husband will be sitting at the head of the table.
Stella,
Long time no see.Think of you often,and hope all is well.Thoughts and prayers your way.Godbless.Ed
Ed-Diagnosed with Parkinson's Disease in 1998.As long as I can fish life is good.Keep a great attitude.It benefits all.
Long time no see.Think of you often,and hope all is well.Thoughts and prayers your way.Godbless.Ed
Ed-Diagnosed with Parkinson's Disease in 1998.As long as I can fish life is good.Keep a great attitude.It benefits all.
support Healing Well thru the sponsors and with donations.The light is always on stay well,and listen to your neurologist.
Stella
How did your vision and blood pressure problems manifest themselves? I have problems with both and chronic fatigue and was diagnosed with PD in 2004 at 51 years old and have no tremors.
Thanks
Chris
Sempfori....are you SURE you need to work these long hours. even a well person would find this overwhelming. Could you get some advice on your income-outgoings to really look at your budget.
I can't help thinking that less hours might make all the difference health & depression wise and you might be able to see through the trees!
Girlirish
I can't help thinking that less hours might make all the difference health & depression wise and you might be able to see through the trees!
Girlirish