Hello everyone,
I have a long history of digestive ailments dating back to around 2012 or so. At the time I was experiencing 3-5 bowel movements per day on a regular diet. Messy bowel movements but not diarrhea. about two years later I experienced a perianal abscess that was successfully eradicated through fistulotomy, but there was suspicion of Crohn's due to the associated bowel symptoms. However, more thsn 8 years, two colonoscopies, one capsule endoscopy, one MRE, multiple fecal calprotectin and blood tests later and they still cannot find anything, despite my symptoms getting worse. I now only eat chicken, potatoes, rice, melon, banana, cucumber, and a few other things. I drink a health shake to make sure I dont get vitamin deficiencies. This all keeps my symptoms under control, but if I venture away at all, I get pain below my navel and diarrhea. Recently, I stopped being able to tolerate fats as well- so no more butter or olive oil. Which makes restaurants a no go. Despite all of this, my calprotectin is consistently under 30 and both colonoscopies and capsule are normal. They DID find mild gastritis and duodenal blunting, without H. pylori or celiac (tested extensively for both). I dont get major flares often, but the last one I had 2.5 years ago I went and had a CT scan at the hospital and they found "mesenteric adenitis" without any obvious infectious cause. All of my GI docs (I have been to five) have written it off as "IBS", but IBS doesnt caude mesenteric adenitis. When I tell them that, they just shrug. I really don't know what to do. My symptoms are well controlled, but I miss going to restaurants and enjoying veggies. Fiber supplements give me pain and diarrhea, so those dont help. I tested negative for the most common pathogens, but my blood is positive for mycobacterium paratuberculosis, but in the absence of endoscopic findings they will not treat me for it. Any suggestions? Anyone with a similar history?
You've had an extensive work up over the years & thank goodness you don't have an IBD.
Mesenteric adenitis is aka known lymph mesenteric adenitis is inflammation of the lymph nodes in the stomach. It is a temporary condition that goes away on it's own. A couple of things that can cause this is an infection or food not properly prepared.
I understand the eating out situation, however, you have found food that agrees with you, so you have to decide do I keep my routine or run the risk of feeling bad for a few days. Perhaps consider asking for a consultation with a dietician for some ideas concerning different foods.
Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums
Mesenteric adenitis is aka known lymph mesenteric adenitis is inflammation of the lymph nodes in the stomach. It is a temporary condition that goes away on it's own. A couple of things that can cause this is an infection or food not properly prepared.
I understand the eating out situation, however, you have found food that agrees with you, so you have to decide do I keep my routine or run the risk of feeling bad for a few days. Perhaps consider asking for a consultation with a dietician for some ideas concerning different foods.
Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums
I have both IBD and IBS. I am sensitive to many foods and sugar overload. I have found that a daily dose of about 1-2 oz. of a lactose free unflavored kefir with lots of probiotics keeps my symptoms at bay. If I skip more than a couple of days I flare. It keeps my good bacteria healthy .
Have they ever done gall bladder testing on you?
Moderator Crohn's disease, Osteoarthritis and Irritable Bowel Forums
Currently on Stelera. Temporary ileostomy, 7/18 - reversal 10/18; CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.
Moderator Crohn's disease, Osteoarthritis and Irritable Bowel Forums
Currently on Stelera. Temporary ileostomy, 7/18 - reversal 10/18; CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.