Optic Nystagmus

Diseases & Conditions Multiple Sclerosis
1
Does anyone suffer from this? Through all the docs I've seen one was an eye doc and the other an opthamologist. I told both of them I was having vision problems. My eyes would get tired easy and blurry then hurt. I can't even where my contacts anymore. Neither of them noticed that I have a twitchy left eye. The NP I saw last week caught it right away. I was wondering if this is common. I can feel when it does it.

Thanks,

Lysha

When everything's coming your way, you're in the wrong lane.

2

My presenting symptom was nystagmus. I have never had optic neuritis. However, my nystagmus was severe and anyone walking down the street that looked at me could see it. There was about a week I say I was "blind" from the diplopia and nystagmus. I did see 20/20 but I also say 20 of everything.

Hope this helps, good luck to you

 

Sandy C.
Diagnosed with Multiple Sclerosis September 2003 currently taking Copaxone SQ QD, Aricept 10 mg PO QD, Welbutrin XL 300mg PO QD, and Provigil 200mg PO BID.

3
Yes, I have that. Fortunately it's relatively mild, and I'll go for long periods of time without any problem, but if I get overtired, or ill, or otherwise experience a flare, it'll occur again.

...I am not a doctor, nor health professional, and don't pretend to be one, here.....

4
Would this dx play a key element in getting me dx?

Thanks,
Lysha

When everything's coming your way, you're in the wrong lane.

5
I don't know that it's a "key" element, but certainly you should let your doctor know of the diagnosis, if you haven't already. Here is a web page that talks about it: http://www.lowvision.org/nystagmus.htm

Seems like "late" or "adult-onset" nystagmus is caused by brain injury or MS....at least according to this page...

...I am not a doctor, nor health professional, and don't pretend to be one, here.....

6
WOW!! That explained a lot of the problems I have been having with my eyes. Maybe now I can explain it better to my doc. I always just said my eyes were tired and understood.

Thanks, uppity!

Lysha

When everything's coming your way, you're in the wrong lane.