My mother, 76, was diagnosed with Parkinson(ism) less than two months ago. For a few years she has been slowing down, and we thought it was just due to aging. We first started noticing bigger changes last year, but my Mom doesn't much like doctor visits and put off seeing a neurologist for many months.
At the time of her appointment, she was still living independently, and though "down" in mood was still engaged. She has never taken medications before, and wanted to try a naturopathic approach to her PD. So we saw an ND. But not only have those treatments had no effect, she has gone steeply downhill in the last two weeks--no motivation, uncontrollable crying, barely eating and barely moving. We are now going to order medication ASAP. I have two questions:
1) I thought PD was something that unfolded gradually over years or even decades. Why is my Mom's condition declining literally by the day? This feels like a life/death situation right now and my siblings and I are freaking out.
2) Sinemet (the drug she will likely start on) is supposed to increase dopamine, which to my knowledge helps motor skills, motivation, and mood. So why is DEPRESSION also listed as a possible side effect? My Mom doesn't need any more of THAT.
Would appreciate anyone sharing your experience. I can view answers this evening but will be away from the computer for the next week, staying with my Mom. Thanks.
Hi Roberts89, I saw your post. So sorry to read about your mom's recent diagnosis. This was a huge shock for your mom & the entire family. She is probably very upset the ND was of no help, this too could also be contributing to how she is feeling & acting. She has to process this as much as you kids. Try to engage your mom in things that will help distract her, even if it's only for a short time.
You did not mention when she was suppose to be seen by her prescribing dr again. You may want to contact the drs office & see what they have to say. In the meantime, I would get her started on the Sinemet, doing nothing is not going to help her. Please keep in mind the FDA requires pharmaceutical companies to list potential side effects with all medications. Because it is listed that does not mean this will happen to her. Once she starts the medication & you it getting worse, contact her dr immediately.
If you & your siblings are going to be her care givers keep in mind that you all have to take care of yourselves too. I took care of my mother when she was diagnosed with terminal lung cancer.
Please do not look at this diagnosis as a death sentence. I know everyone is overwhelmed, Educate yourself about Parkinson's & the various treatments. Have a list of questions written down at her dr appts. I also suggest looking for a Parkinson's support group locally & all of you attend with your mom. Being in a support group can be helpful to everyone.
Some close friends of ours son was diagnosed with Parkinson's at the age of 42. He was married with 2 boys at home. After finding which medications worked the best for him he returned back to work in the IT field. He has done well. He has had to make some adjustments in life but today 4 years later he is doing well.
Please do not give up hope. Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums
You did not mention when she was suppose to be seen by her prescribing dr again. You may want to contact the drs office & see what they have to say. In the meantime, I would get her started on the Sinemet, doing nothing is not going to help her. Please keep in mind the FDA requires pharmaceutical companies to list potential side effects with all medications. Because it is listed that does not mean this will happen to her. Once she starts the medication & you it getting worse, contact her dr immediately.
If you & your siblings are going to be her care givers keep in mind that you all have to take care of yourselves too. I took care of my mother when she was diagnosed with terminal lung cancer.
Please do not look at this diagnosis as a death sentence. I know everyone is overwhelmed, Educate yourself about Parkinson's & the various treatments. Have a list of questions written down at her dr appts. I also suggest looking for a Parkinson's support group locally & all of you attend with your mom. Being in a support group can be helpful to everyone.
Some close friends of ours son was diagnosed with Parkinson's at the age of 42. He was married with 2 boys at home. After finding which medications worked the best for him he returned back to work in the IT field. He has done well. He has had to make some adjustments in life but today 4 years later he is doing well.
Please do not give up hope. Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums
Hello Roberts89,
Sorry about your Mother's diagnosis. One thing you'll find is that no two people with PD are the same they will have different symptoms, respond to meds differently, etc. Your comments indicated she may have Parkinsonism (spelled incorrectly), is that right? It tends to ;progress more quickly. I was diagnosed 20 years go and worked the first 15 years.
Please let us know if you have further questions.
lizzy4451
Moderator
Parkinson's Disease Moderator
Diagnosed with Parkinson's disease 2001. Meds: 32 mg extended release Ropinerole (generic for Requip), Amantadine 300 mg
Life is a dance. Don't sit it out. ---- Jackson H. Brown
Sorry about your Mother's diagnosis. One thing you'll find is that no two people with PD are the same they will have different symptoms, respond to meds differently, etc. Your comments indicated she may have Parkinsonism (spelled incorrectly), is that right? It tends to ;progress more quickly. I was diagnosed 20 years go and worked the first 15 years.
Please let us know if you have further questions.
lizzy4451
Moderator
Parkinson's Disease Moderator
Diagnosed with Parkinson's disease 2001. Meds: 32 mg extended release Ropinerole (generic for Requip), Amantadine 300 mg
Life is a dance. Don't sit it out. ---- Jackson H. Brown